DECEMBER 2021 - New Members

[Rustsmith]

Tuesday, December 7

Welcome to

Zzzboy, who suffers from RLS every night and is looking for relief.

We can probably provide you with a number of suggestions that can help you get some sleep. If you don't find what you need, just ask away. We are always happy to share our info about treating RLS.

[Rustsmith]

Friday, December 10

Welcome to

fortiz74669, whose RLS does not allow fortiz to rest at night so during the day fortiz can fall asleep when sitting, eating, watching TV . At times even when walking or standing. fortiz fell several times, broke a rib and had a head injury. Pramipexole and Gabapentin helped some for several years but recently fortiz developed Augmentation. Cutting it down gradually and stopping it was terrible with no sleep at all. fortiz had to retire a few years ago because of this. fortiz takes Iron 325 mg at night, so the Ferritin and Iron levels are normal. Any suggestions?

Many of us have been through augmentation and have had to move on to using low dose opiods. It might also be possible to just use gabapentin (you don't augment on gabapentin), but that only works for about 65% of us. Lyrica or Horizant might also work, but those are just different versions of gabapentin. If you have questions or would like to discuss your options, feel free to post a note and we will see what we can do for you.

[Rustsmith]

Monday, December 13

Welcome to

lorriebg, for whom getting into bed at night has always been a special pleasure, but since August 2021 the RLS has continued to interrupt her sleep nightly. She believes that she has had some success based on a study she came across and would like to share the information, as well as gain insight from other members.

We would love to hear about that study and what you have done to improve control of your symptoms. Just post a note to start the discussion.

[Rustsmith]

Wednesday, December 15

Welcome to

nancyperry81, who has had RLS turned her life upside down. She hadn’t had a good sleep for more than a year until she got diagnosed recently.

We hope that you are getting more sleep now and that that continues for a good long time. If you have any questions, feel free to post a note and we will try to answer them.

[Rustsmith]

Wednesday, December 15

Welcome to

Omehome13rls, who is looking for common threads of people with RLS She hopes to find better alternatives for treatment than the agonists.

We have people who use everything from iron therapy to gabapentin/Lyrica to the dopamine agonists and finally opioids. If you would like to hear more, just post a note with your questions and we will try to answer them.

[Rustsmith]

Thursday, December 16

Welcome to

Unable2sleep, whose RLS has affected her physical presence among others...with symptoms, unable to sit still in a cramped airplane seat, unable to cuddle next to her hubby due to fidgetness and jumpy legs ... and on it goes ...

There are ways to reduce the symptoms of RLS. If you would like some suggestions, just post a note and let us know what you are currently doing to manage your symptoms.

[Rustsmith]

Monday, December 20

Welcome to

Richardboss, whose RLS is very painful especially at night. It is torture.

If you would like some suggestions that can reduce the symptoms of RLS, just post a note telling us what you are currently doing to manage your RLS so that we will have an idea of where to start.

[Rustsmith]

Thursday, December 23

Welcome to

mmmjdcpa, whose RLS means never being comfortable and always being sleep deprived,

If you have any questions or would like some suggestions for changing meds, just post a note and let us know how we can help.

[Rustsmith]

Thursday, December 23

Welcome to

Lyasinski, who is frequently unable to read or focus at night due to constantly moving. Lyasinski is also unable to sit and meditate for any reasonable length of time. And is often anxious about bothering others at movies or talks.

There are ways to address this problems. If you would like our suggestions, just post a note with any questions that you have or telling us a little about what you are currently doing to manage your RLS symptoms.

[badnights]

Welcome tonight to Brigidhogan, whose WED/RLS causes stress and difficulty sleeping. Please look around the board, read as many posts as you'd like, and if you'd like to, start a new Topic to tell us about yourself and your experiences with WED/RLS. Members will try to answer any questions you might have, or point you to resources that might be useful.

[Rustsmith]

Monday, December 27

Welcome to

tommy2, who is 72 years old and has RLS. At times it is worse than others. tommy2 also has periodic limb movement. tommy2 has tried so.....many meds that just do not work or work for a couple weeks. Also have had iron infusions, but it doesn't last.

If you have any questions or would like to discuss meds that might work for longer than a few weeks, just post a note to start a discussion.

[Rustsmith]

Monday, December 27

Welcome to

Johnsonlynne, who has mild RLS and would like to find non drug ways of dealing with it. Her mother had it and she is wondering if it is in our genes.

Your RLS could definitely be in your genes. Over 20 different genes have been identified as being associated with RLS. As for non-drug ways to manage your RLS, take a look through our Physical Treatments and Non-Prescription Meds forums to get an idea of what will and will not work. And then, if you have any questions, feel free to post a note with them. We love to share.

[Rustsmith]

Friday, December 31

Welcome to

acordero, who both she and her husband have RLS.

If you have any questions or would like recommendations for improving control of your RLS, just post a note. Otherwise, feel free to join any of our existing discussion threads.

[Rustsmith]

Friday, December 31

Welcome to

jl3333, whose RLS has ruined both quality of life and the ability to sleep. JL has symptoms 20 hours of the day.

If you would like some suggestions for changing what you are doing to manage your symptoms so that you regain control of your day, just post a note and we will be able to offer some suggestions based upon our experience.

[Rustsmith]

Friday, December 31

Welcome to

relief22, whose quality of life has degraded. relief often experiences sleepless nights without medications. RLS often affects relief's concentration at work, when it is necessary to work nights.

We would love to offer you some suggestions to improve your quality of life. All that you need to do is post a note that tells us a bit more about what you are currently doing to manage your RLS so that we will know where to start.