JANUARY 2022 - New Members

[Polar Bear]

Tuesday 18 January 2022

Welcome today to

charlady who has had RLS for 30 yrs. Now she is older it is worse. In her 40’s she was on Mira apex. Now on a regiment of pills at different times. Some nights it just doesn’t work. charlady cries a lot and feels this is her life and that she has learned to live with it because she has no choice.

charlady, please make a post in Just Joined in a suitable thread, or start your own thread. Give details of your medications and treatments and we will take it from there.
We would like to help you.

[Rustsmith]

Tuesday, January 18

Welcome to

Gittle23, who has had RLS since childhood. It’s affected Gittle's life, who is taking iron supplements with ropinerole daily. Gittle would like to get some helpful information to reduce the daily suffering.

If you can post a message in our forum that best matches the info that you are interested, we will try to provide what you need.

[Polar Bear]

Friday 21st January 2022

Welcome to

Justletmesleep - whose maternal GM had RLS; her mother had RLS; her sister has RLS; I have RLS; my son has RLS. Justletmesleep wonders how long before a cure, or even lasting help? JLMS needs to talk, and needs knowledge.

I am sorry to hear how many of your family suffer from this distressing disease. Knowledge we certainly have together with a great deal of experience. However, there is no cure. To talk - Please post on a relevant thread, or even better, start your own thread. Tell us of your experience and how you have managed your symptoms, ask questions, and we will do our best to help.

[Rustsmith]

Friday, January 21

Welcome to

Erinforever, whose partner has suffered with RLS for 25 years. There are truly no treatments that help much. She is hoping to get some new info and ideas.

We would love to be able to help the two of you out. All that you need to do is post a note in the appropriate forum that gives us an idea of the types of treatments that you have tried so that we will know which options we need to skip over.

[Rustsmith]

Saturday, January 22

Welcome to

Louvanont, who has been a sufferer of RLS for over 35 years.

If you have any questions, just post a note and we will try to answer them. Otherwise, feel free to jump into any of our ongoing discussions.

[Rustsmith]

Saturday, January 22

Welcome to

wife, whose husband has had RLS for decades. His health has declined which has affected the quality of life for both of us.

We can all appreciate what the two of you are going through. Feel free to post a message with any questions that you have about RLS or about what modifications to his RLS treatment(s) that the two of you may want to discuss with his doctor.

[Rustsmith]

Saturday, January 22

Welcome to

foxmfox1, who has experienced RLS for over 10 years now, has been on gabapentin for 2 years but is now less effective. Looking for information for relief.

The first step in treating RLS is to treat your iron levels if your ferritin number is below 100. If your doctor did a ferritin test and just told you that it was "normal", then ask for the number. If it is below 100, then you should start taking an oral iron supplement (65 mg iron equivalent of iron sulfate or one of the other iron supplements) on an empty stomach. You then need to have a discussion with your doctor about an iron infusion.

Otherwise, if you have any questions, just post a note here and we will do our best to answer them.

[Polar Bear]

Monday 24th January 2022

Welcome today to

Sally Boles - who has had RLS since childhood and it has gotten worse with age. It can be debilitating at times. Sally feels the meds she takes are no longer very effective and that it is very misunderstood.

You have had many years of coping with this awful disease and it is indeed misunderstood. If you will make a post telling us of your coping regime we will do all we can to help.

[Polar Bear]

Monday 24 January 2022

Welcome today to

Betlloyd - who is affected every single day to the point some days she cant concentrate at all due to lack of sleep

We understand absolutely how you are feeling and how difficult life can become.
Please do post and tell us what you have been doing to manage your symptoms, your medications and what has and has not worked. This will give us a starting point to try and help you.

[Rustsmith]

Tuesday, January 25

Welcome to

Billie57, who while working her RLS made her life so stressful that she became sick with fibromyalgia. She ended up filing for disability. She now takes care of her 82 year old mother, who has dementia with Alzheimer's. She is suffering from whole body RLS. She paces the back and forth day and night getting snippets of sleep here and there.

A study that was conducted recently by the Univ. of Texas found that it is not unusual for patients with Alzheimer's to also have RLS that often goes untreated. If there is any information that we can provide that would help you or your mother, just post a note to let us know what we can do.

[Polar Bear]

28th January 2022

Welcome today to

K2D2 who is looking for a solution to alleviate nightly RLS. It came on suddenly and swiftly and is affecting K2D2's sleep and overall well being.

It is usually sleep problems that eventually drive a sufferer of WED'/RLS to go see their doctor. There are many and varied solutions that can be tried and a great deal of information available here, especially in the Just Joined Forum. Please do post and tell us how you have been managing your symptoms and what medication (if any) that you have tried, including over the counter medications. We really want to help.

[Polar Bear]

28th january 2022

Welcome today to

Helga who has had RLS since childhood, it runs in her family. Helga wants to be understood and to know she is not alone and also to learn something that can help.

I can promise you that you will be understood here, we are all sufferers and will know exactly how you feel.
Please do tell us what you have done, how have you managed since childhood. We want to help.

[Rustsmith]

Sunday, January 30

Welcome to

HopefulBird, who has recently been diagnosed and is seeking ways to deal with it.

You should find quite a bit of that sort of information in our discussion threads. If you have any questions, feel free to post a message and we will try to answer them.

[Rustsmith]

Sunday, January 30

Welcome to

goatly, whose RLS used to be an occasional nuisance, just at times of theatre or evening concerts or travel; when goatly went to bed sleep was always there. Two years ago, RLS started to be an issue every single night, in the evening and all through the night. Then anxiety set in.

Is your RLS being treated by a physician? Have you had your serum iron levels checked (especially ferritin). These are things that you can do that will probably provide some immediate help. As for tonight, you can try soaking your legs in hot water. This usually provides enough short term relief to allow you to fall asleep. And if you have any questions, feel free to post a note so that we can offer you some personalized suggestions.

[Rustsmith]

Monday, January 31

Welcome to

cbg, whose RLS is largely, but not completely, relieved by Ropinerole. cbg still has issues during the day, and some evenings. cbg is also experiencing serious difficulties with thinking, concentration, reasoning as well as mood issues. These may be secondary to the RLS, to the ropinerole, to the odd sleeping habits --- or combinations thereof.

Those side effects sound a lot like sleep deprivation due to the accumulation of loss of sleep that many of us experience. If you would like suggestions that may improve your sleep or if you have any questions, just post a note and we will do what we can to help you out.