APRIL 2022 - New Members

[Rustsmith]

Tuesday, April 26

Welcome to

Dewpoint, who is a retired lawyer with late onset RLS. He has been in treatment less than a year, and has just learned that he has augmentation from having been prescribed Ropinirole. The augmentation and the underlying disorder now limit his attendance of meetings, concerts, seminars and others gatherings which are important to staying engaged during retirement.
Sleep is more complicated to manage. He has already benefited from joining the RLS Foundation and knows the Discussion Boards will be useful also.

Everything that you said is something that almost every one of us has been through, so as the Foundation often says "You are not alone". We would be happy to share our experiences with you or to answer any questions that you have. If you haven't already had a discussion with your doctor about what comes next in respect to treating your RLS, we can explain the various options so that you can be prepared with the advantages and disadvantages of each.

You should also be prepared with the knowledge that the RLS treatment knowledge of many doctors is 10 or more years out of date and although low dose opioids have safely been used to treat RLS for many years, even the CDC and FDA were unaware of this and tried to legislate away our access to these medications. So if the "so called experts" are ignorant of the options available for the treatment of a condition that impacts around 10% of the population, we probably shouldn't expect much more from our local GPs and neurologists and therefore have to search to find a good doctor. And this often requires travel on our part as well as lengthy wait times for appointments.

[Rustsmith]

Thursday, April 28

Welcome to

Wantcure, whose previous membership lapsed. Wantcure is hoping to share fails and successes.

Only Foundation memberships expire (each fall). Discussion Board memberships are free and do not require a Foundation membership (although we certainly encourage everyone to join). As for sharing your experiences, please post a note as we would love to hear about them.

[Rustsmith]

Friday, April 29

Welcome to

macialacc, who has been affected by RLS since childhood.

If there are any questions that you have or if you would like to discuss treatment options, just post a note and let us know what we can do to help you out.

[Rustsmith]

Saturday, April 30

Welcome to

Fred Mc, whose RLS began when he was 20 years old, but only bothered him a few times a year. It became more frequent in his 30's and 40's. He started using a prescription drug at age 50. 7 years ago he switched to 2 drugs. He is 71 years old and has pain most evenings for 1 or more hours.

There is no reason why you should have to tolerate RLS symptoms most evenings. If you would be willing to tell us about your current medications, we can probably offer some suggestions to discuss with your doctor that will help bring everything under control.