JUNE 2022 - New Members

[Rustsmith]

Monday, June 29

Welcome to

Broncogirl, who has had RLS since she was a little girl. She never knew what it was until she was in Rochester, MN about 15 years ago and was driving by the RLS Foundation there. She immediately stopped the car and went to the door. It was closed but she took a brochure. After reading the brochure, she knew this thing that she suffered from all these years had a name. Unless someone has experienced RLS, they have no idea how much it affects your well-being. She is now 78 years old.

It is great that you found out about your condition and that has to be a unique way to determine your diagnosis. If you have any questions or need suggestions on changing meds, just post a note. Otherwise, feel free to join any of our existing discussions.

[Rustsmith]

Tuesday, June 28

Welcome to

Tallulah Belle, who asks how can she convey in 2-3 sentences how bad her sleep has been for at least 25 years. In March of 2021, I went to a primary doctor to seek help. It worked for a while and then it didn’t, so here she is seeking answers.

My guess is that your primary prescribed either Mirapex or Requip. These meds work great and then you augment (see our forum on Augmentation for more about this) and so the med stops helping and starts making your RLS worse. If you don't find what you need in the augmentation section, all you need to do is to post a note telling us about which med you used and your dose so that we can explain your options at this point. OR, you can take a look at this document and then share it with your primary so that you end up with something that helps and (s)he gets a bit of education so that the next RLS patient in that office doesn't have to go through the same thing.

https://www.mayoclinicproceedings.org/a ... 0/fulltext