Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
luckyluke, who has just been diagnosed with RLS. Luke is a male, 55 y.o. He used to race triathlon from age 30 to 52, stopped with covid in 2020. RLS started in 2021. He still exercises, but high intensity makes his RLS bad. His sleep is very good, so far, but sitting and standing are not so good. He needs to move to feel better.
By joining the group, he hopes to find some solutions to this disease, how to cope with it and have a somewhat normal life. He finds reading our posts useful.....
Hi luckyluke
I just wanted to add that, since your WED/RLS started recently and you may not have taken any medication for it yet, I would advise to avoid medication, except for iron, while pursuing all other possible avenues of relief. Do take iron, or even get an infusion if you can, it might do the trick by itself. There is technical information in my signature link under
The 2018 International RLS Study Group consensus guidelines on IRON TREATMENT for WED/RLS; and
From the Johns Hopkins Center for RLS website, a good description of the role of iron in RLS/WED
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Please start a Topic or comment on someone else's post, if you tell us a bit more (are you taking meds? if so, what? did your WED/RLS start after a covid infection?) we can reply with more info.
Beth - Wishing you a restful sleep tonight Click for info on WED/RLS AUGMENTATION & IRON I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Marthomp who is 77 and has augmentation that is very severe. Marthomp's PCP seems to have a fair understanding Marthomp is hoping
to discuss and get input from others who are trying to cope with this horrible condition.
Please do make a post, join in with a relevant thread in the Augmentation Forum or starting your own would be better. If you give us some details about your current regime we will do our best to help. Please feel free to ask any questions.
Beau, who would like to share his story and get advice on how to treat this malady.
We would love to hear your story and offer advice on the possible treatments. All you need to do is post a note in the appropriate forum.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
csjregan, who says that knowing that night time will not bring a good night’s sleep is something most people can’t imagine. But for RLS sufferers it is reality. Finding at least some relief for himself and others is his goal.
There are numerous ways to get some relief, if you are willing to tell us what you are currently doing to manage your symptoms, we can probably offer some suggestions to you. And if you have any questions, just post a message with them.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
TJ Berg whose RLS has become terrible. TJ used to control it very well with clonazepam and has recently switched to ropinirole. TJ is frightened because RLS is now in the early evening and early to mid morning. Vitamin D3, magnesium and potassium and iron do not help. TJ feels desperate.
I am glad you have found us. Ropinerole or any other DA is no longer a first line treatment for RLS and your symptoms sound like augmentation probably from the ropinerole. What dosage is your ropinerole. We understand your desperation. Please post, start a thread, and tell us of your current and previous treatments, what has and has not worked. We want to try and help.
Sherristockton50, who has been up now for 3 nights. It will not let her sleep at night. She can feel it during the day too but mostly always during the night.
What are you doing to manage your symptoms? We can offer suggestions to discuss with your doctor that will help. In the meantime, try soaking your legs in a tub of VERY hot water. That usually turns off the urges for long enough to be able to fall asleep. But you may need to repeat again during the night.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
jjejjohnston who finds It is a constant challenge to deal with augmentation.
You are so right, augmentation is forever challenging and most often it is caused by a DA medication such as ropinerole or pramipexole. The only solution being to get off the offending DA drug. Please make a post in the Augmentation Forum giving us details of your RLS history, your medications that have or have not worked and how your RLS is currently being managed. This gives us a starting point to do our best to help you.