AUGUST 2023 - New Members

[Rustsmith]

Thursday, August 17

Welcome to

sadietexier, who is the wife of a 79-year-old dialysis patient with kidney failure. She needs help understanding his illness. His doctors are French and it is not her native language. She feels overwhelmed.

RLS is a common side effect of dialysis. RLS is due to low iron in a specific part of the brain and dialysis helps to keep the iron content of his blood low enough that it is hard to get the iron where he needs it. Here is a link to a publication on the management of RLS that has a section on special conditions, such as your husband's. https://www.mayoclinicproceedings.org/a ... 0/fulltext

And if you have any questions, feel free to post them here. Most of us have RLS due to causes other than dialysis, but we are all familiar with the various treatments.

[Rustsmith]

Thursday, August 17

Welcome to

Ladyamom, who has RLS often. Her doctor's whole practice treats restless legs the same way and it's helped her tremendously, so she thought she would share.

We look forward to hearing about how your doctor manages RLS.

[Rustsmith]

Saturday, August 19

Welcome to

CAnnOs, who had mild symptoms for about 15 years, but recently, after a fall and head injury, it has gotten Bad. She is just looking for ideas of what to do.

Other than talking with your doctor, the best document to learn about the various ways to treat RLS can be found at https://www.mayoclinicproceedings.org/a ... 0/fulltext

If you have any questions, feel free to post them or join in any existing discussion.

[Rustsmith]

Saturday, August 19

Welcome to

wesleepbetter, who has been suffering from PLMD for little over a month now. wesleep can only sleep well for 3 hours max, for the other 5 hours or so wesleep goes through light sleep with constant waking and it has led to fatigue, difficulty concentrating, headaches, feeling of tensions in the brain, and in general lack of energy and spirit. wesleep hopes to get and share good information through this forum.

Although there are disagreements about the connection between RLS and PLMD, there is agreement that the treatments are very similar. Your doctor can provide you with a treatment that will allow you to get better sleep. Your best bet would be to print off a copy of this document and share with with your doctor so that you don't start off with one of the dopamine agonist meds, which have some potentially severe side effects. https://www.mayoclinicproceedings.org/a ... 0/fulltext

In the meantime, feel free to post a message with any comments or questions that you have.

[Polar Bear]

Sunday 20 August 2023

Welcome today to

aplieberman whose mother suffers from RLS. aplieberman also suffers but less severely.

We are glad you have found us . There is a lot of information on the Just Joined Forum. If you make a post giving us details of how you and your mother are managing your symptoms we will do our best to help you.

[Rustsmith]

Sunday, August 20

Welcome to

rlssucks, who is desperate to find solutions! She has lived with this since childhood and it just seems to be getting worse.

There are a number of ways to treat RLS. Take a look at the document in my signature to learn more, or just post a message with any questions that you have.

[Rustsmith]

Monday, August 21

Welcome to

blueskies118, who has difficulty flying, going to the movies/theatre, sitting at night. Finally got on mirapex. Better, but tension remains in her body so she drinks to relax which causes more problems. She is wanting to know if others have tension in their bodies (she wants to claw something or do push ups until she is burnt out). If so, how have they dealt with this issue?

Mirapex (pramipexole) is actually a tier three treatment for RLS. Did your provider do blood work to check your ferritin level? Often, either oral or IV iron therapy to increase your ferritin to at least 75 will help with moderate RLS. Gabapentin or Lyrica are the second tier treatments and work for about 65% of us. To learn more, take a look at the document in the link in my signature. And if you have any questions, feel free to post a message so that we can respond to your specific issues.

[Rustsmith]

Monday, August 21

Welcome to

hutchslj76m who since the age of 9 has had sleep onset insomnia and disrupted sleep due to RLS. hutchljs76 is now 47 and work productivity relies on having control of a daily schedule to allow for sufficient sleep.

Have you discussed this with your doctor? There are treatments, such as gabapentin, that help with sleep onset and remaining asleep. Be wary if your doctor recommends Requip or SIfrol since these have some potentially severe downsides and are hard to quit. Unfortunately, many doctors (especially those in the UK) are behind the times and think that Requip and Sifrol are the first line treatments for RLS.

If you have any questions, feel free to post a message and we will do what we can to help.

[Polar Bear]

Tuesday 22 August 2023

Welcome today to

NewDawn who has had rls for years but didn't know it had a name. NewDawn is now 55 and believes it had contributed to inconsistent sleep and mental health issues.

We all understand the difficulties of sleep issues. Please ask any questions you have in mind. If you post and tell us how you are presently treating your symptoms we will do our best to try and help you.

[Rustsmith]

Tuesday, August 22

Welcome to

Sharon Pritchertt, who has suffered from RLS more than 50 years and in the last few years (she is 74), it has gotten almost unbearable.

There are a number of ways to manage RLS symptoms, as described in the document in my signature. If you have any questions or would like to join in an existing discussion, just post a message.

[Polar Bear]

Saturday 26 August 2023

Welcome today to

JudyinIdaho who suffers from RLS almost constantly and it becomes virtually intolerable in the evenings. Judy has been to many doctors and neurologists with no relief.

Many doctors are just not experienced in the proper treatment of RLS. Is your GP willing to learn.If so, the link in my signature will be very useful. If you will post and give us details of your treatment, what medications have or have not worked, we will do our best to help you.

[Rustsmith]

Saturday, August 26

Welcome to

SGoldman, whose RLS causes sleep deprivation and heightened anxiety about going to sleep. When SGoldman is walking all night, it leads to eating and choices that are not healthy. SGoldman's weight is at it's lifetime high, so health is negatively effected.

Other than walking at night, what are you doing to manage your symptoms? Do you know your iron levels? Are you taking any meds that could cause or mitigate the symptoms? If you post a message and tell us more, we should be able to help you stay in bed at night.

[Polar Bear]

31 August 2023

Welcome today to

Sjosiah who has had RLS for at least 10 years and wants to learn more about it an potential treatments.

We are glad you have found us but are sorry that you have needed to do so. Please feel free to ask questions. Just make a post giving details of how you have been managing your symptoms and this will give us a starting point to try and help you.

[Rustsmith]

Thursday, August 31

Welcome to

nbreck, who has had RLS for 25 years and it is tormenting. nbreck has been given medicine and told not to eat this and that. For the last 2 months, nbreck has done 30 squats before bedtime and not had one occurrence. Thank you Jesus.

You are fortunate to have mild to moderate RLS if 30 squats is enough to prevent bedtime symptoms. If you have any questions, feel free to post a message.