Restless Legs Syndrome (RLS) Discussion Board

Wednesday, October 25

Welcome to

GEMMA, who has no life, can't eat out, go to movies, no concerts, no car trips, her legs have to move anytime day or night !! She has had RLS since she was 16, now 71 getting worse all the time.

After all this time, you have probably been through most of the treatments. If you would like some suggestions for something else to try, just post a message and tell us what hasn't worked for you. Otherwise, feel free to join any of our ongoing discussions or ask any questions that you have.

Saturday, October 28

Welcome to

Ritute, who is suffering from RLS, increased with insomnia. The lack of sleep is also leading to problems in ritute's relationships.

Insomnia is part of RLS. Are you getting treatment? Do you know your ferritin number? There are ways that your doctor can help. If you would like some suggestions of what to ask for, just post a note that tells us what you are currently doing to manage your RLS.

Sunday 29 October 2023

Welcome today to

paulawesterlund who is 87 and feels worn out, robbed of sleep nightly and so restless in the daytime that concentration is difficult but needs to keep moving. Paula has quit all forms of stimulants.

We are sorry that you are suffering and understand very well how you are feeling. Is your GP supportive and providing helpful treatment?
Perhaps if you would make a post and tell us some of your rls history, what medications/dosages have or have not worked. Have you had your Ferritin Serum levels checked, this is very important because generally anything from 20+ is considered OK but us rls sufferers need our level to be up around 100. It is not done as part of normal blood tests and needs to be specifically requested. Tell us how you have been managing to date and we will do our best to try and help you.

Monday, October 30

Welcome to

NativeNewYorker, whose sleep issues caused by RLS have increased her anxiety, and impacted her health in negative ways.

If you would like suggestions on how to improve control of your RLS so that you get better sleep, all that you need to do is post a note telling us what you are currently doing to manage your RLS.

Monday, October 30

Welcome to

Kellyrush4!, whose RLS is horrible and Drs aren’t helping.

The problem is that most doctors are not familiar with treating RLS and are not trained to admit what they don't know. Read through the document that is linked in my signature, highlight a couple of relevant sections and then give it to the doctor you think that you think might be most receptive to new information. Don't say "I found this on the Internet", ask the doctor for his/her opinion about how this might help with your RLS. And if you have any questions, feel free to post a message. We are here to help when doctors won't.