Hello and thanks for the welcome and about me
Posted: Fri Nov 10, 2023 4:36 am
I am just shy of 70 and I can trace my first jumpy legs back to my mid-20's at a concert. Fast forward to my 40's and it was more like RES - Restless Everything Syndrome, up into my arms and a squeezing in my midsection and I was driving my fingernails into my legs trying to stop the sensation --- when around this time, I met my husband and had the amazing discovery from his Mom - who told she too suffered AND - there's a drug for this?? And I began a whole new life, with Mirapex/Pramipexole allowing my freedom to sleep!! The only bad times were the occasional oops when I forgot to take my pills - and the NEXT night was hellish.
But a year ago the 1 mg. wasn't hacking it, so my PA suggested switching to Ropinerole. OY! I toughed it out for a week and went back to Pramipexole and determined to up it myself to 2 mg. and then my PA agreed and things settled down.
What brought me to this forum was being blindsided by COVID and taking Paxlovid, which may or may not have triggered it, but I experienced the worst night ever, ever, ever. I was dizzy from both medications and exhaustion and trying to "walk it off" with a cane to steady myself going in circles around my patio at 2 a.m. until about 6 a.m. when I finally slept. The next day I decided it split up my dosage throughout the day and it helped some, but still a bad night. So, of course, I'm searching the internet, seeking that Holy Grail of sleep and I see that crazy suggestion pop up all the time. The Bar of Soap. Pffft. Really.
Well, sez I what have I to lose, right? And hubby just happens to have a new, still in the box bar of Zest. So I pop it under the covers.
And, of course, take my meds. But, dang, didn't I also have a totally peaceful night. And ever since then (2-1/2 weeks ago).
And, that bar of soap is still there, under fresh sheets and it is staying there.
P.S. I also don't walk under ladders; throw salt over my shoulder when I spill any and I knock on wood (or my head as substitute) all the time!
I also have an new doctor who insisted it is all due to low iron and viola isn't my Ferritin off the charts at 165 (I eat alot of arugula, salmon, avocados - lots of iron rich food!).
But a year ago the 1 mg. wasn't hacking it, so my PA suggested switching to Ropinerole. OY! I toughed it out for a week and went back to Pramipexole and determined to up it myself to 2 mg. and then my PA agreed and things settled down.
What brought me to this forum was being blindsided by COVID and taking Paxlovid, which may or may not have triggered it, but I experienced the worst night ever, ever, ever. I was dizzy from both medications and exhaustion and trying to "walk it off" with a cane to steady myself going in circles around my patio at 2 a.m. until about 6 a.m. when I finally slept. The next day I decided it split up my dosage throughout the day and it helped some, but still a bad night. So, of course, I'm searching the internet, seeking that Holy Grail of sleep and I see that crazy suggestion pop up all the time. The Bar of Soap. Pffft. Really.
Well, sez I what have I to lose, right? And hubby just happens to have a new, still in the box bar of Zest. So I pop it under the covers.
And, of course, take my meds. But, dang, didn't I also have a totally peaceful night. And ever since then (2-1/2 weeks ago).
And, that bar of soap is still there, under fresh sheets and it is staying there.
P.S. I also don't walk under ladders; throw salt over my shoulder when I spill any and I knock on wood (or my head as substitute) all the time!
I also have an new doctor who insisted it is all due to low iron and viola isn't my Ferritin off the charts at 165 (I eat alot of arugula, salmon, avocados - lots of iron rich food!).