January 2024 - NEW MEMBERS

[Rustsmith]

Monday, January 15

Welcome to

Destinye4life, who used to have RLS in the legs. Now, recently, when laying down to watch a movie or something and it's just in the right ankle/foot! It's so bad that Destinye can't even concentrate on the movie!

RLS isn't limited to just the legs, it can hit any part of the body. Are you taking anything to help? Has your doctor checked your serum ferritin levels? If you post a message to tell us more, we may be able to help you enjoy that movie.

[Polar Bear]

15 January 2024

Welcome to

Charlie6 who has RLS and is looking for options. Augmented twice on requip and can't tolerate most of the other drugs commonly prescribed.

As you have already augmented on requip, you might find the Augmentation Forum relevant.
What are you currently using to control your RLS symptoms. Has your doctor checked your ferritin serum level which as an RLS sufferer needs to be up around 100 and not 'normal' which can be considered ok at 20. I suggest you make a post give details of what has not worked for you. This gives us a starting point to try and help you.

[Rustsmith]

Friday, January 19

Welcome to

insanolayne, who has had RLS in the thighs ever since insanolayne can remember at age 5 or 6. insanolayne would get up late at night and do laps around the house. insanolayne is 46 now and it's not changed any.

Are you receiving any medical treatment to help? Has your doctor checked your ferritin number? I can help with suggestions but need a few more details in a note that you can post.

[Rustsmith]

Saturday, January 20

Welcome to

Gette1274, who has had RLS for 30 years. It started when she was 20 and in the last trimester of her first pregnacy. She has had to take medication for it for the last 25 yrs.

Do you have any questions? Is your medication currently working? We would love to hear more from you. All you need to do is post a message.

[Polar Bear]

Sunday 21 January 2024

Welcome today to

Junietta whose life has been impacted by RLS.

We are all sufferers here and understand the impact that RLS has on every aspect of life. There is a lot of reading available and I suggest you make a start with the Just Joined Forum. If you have any questions, please make a post and give us a brief history of how you are treating your symptoms and this will help us to help you.

[Polar Bear]

Sunday 21 Kamiaru 2024

Welcome today to Happy23 who has terrible RLS and wants to learn more about it and ways to conquer it!

We are glad you have found us (but sorry that you need us). There is a lot of information to be found and we hope you find it useful.
Have you had your Ferritin Serum checked and if so make sure you know the result number, don't just accept that it is normal. Normal can be anything from 20+ but us RLS sufferers need it to be up around 100. If you haven't had your Ferritin Serum checked please ask your doctor to do so. It is not part of the standard blood panel and needs to be specifically requested. Also check out the link in my signature.
Please feel free to ask questions, either by joining a relevant thread or starting your own thread.

[Polar Bear]

Sunday 21 January 2024

Welcome today to

MarkA who is a lifelong sufferer of RLS. Chronic insomnia with stress.

Chronic insomnia and stress go hand in hand with RLS and something that most of us will struggle with. We understand how you feel. Is your doctor prescribing medication at present? If you will make a post providing details of your RLS history, what medications have or have not worked for you. Some medications such as most antidepressants may cause or trigger RLS symptoms. If you give us some further information we will do our best to try and help.

[Polar Bear]

Sunday 21 January 2024

Welcome today to

Imm04 who has had rls for over 20 years and the symptoms keep getting worse. Imm04 would love to hear from others who are going through the same thing.

Are you being prescribed medication by your doctor? I wonder have you been prescribed a DA such as Ropinerole/Requip or Pramepexole/Mirapex as these are likely to cause augmentation and make your symptoms worse. I suggest you take a look at the Augmentation Forum and see if you can relate to this.
Do you know what your serum ferritin level is? As you would like to hear from others I suggest you make a post giving your RLS treatment past and present, and how you have been coping. If you have any questions go ahead and ask.

[Polar Bear]

Sunday 21 January 2024

Welcome to

canemba03 who is Interested in current therapies for RLS.

As you read through the Forums please feel free to ask questions.

[Rustsmith]

Monday, January 22

Welcome to

Deanna005, who has had RLS for over 30 years and it has ruined her life.

Most of us can relate to how RLS has changed our life compared to the time prior to getting RLS. If you have any questions or would like some suggestions on how to improve the treatment of your RLS, just post a note and let us know how we can help.

[Rustsmith]

Monday, January 22

Welcome to

Sandra, who I have RLS for many years and all medications she has tried have stopped working. She is looking for ways to help me live a pain-free life.

Most people who say that they have tried all medications were not told by their doctor about all available medications either because their doctor doesn't know about the others or because their doctor is not willing to prescribe opioids. To learn about all of your options, take a look at the document found in the link in my signature.

[Polar Bear]

Monday 22 January 2024

Welcome to

Yvonne whose RLS is having a tremendous affect on quality of life. It is experience throughout the day in legs, arms and torso.

We are glad that you have found us. Have you had your Ferritin Serum checked, this should be up around 100 for an RLS sufferer and not acceptable at 20+ which may be considered as normal. This isn't done as part of a standard blood panel and needs to be requested specifically.
If you will make a post providing details of how you have been treating your RLS, what has and has not worked for you, we will do our best to try and help.

[Rustsmith]

Thursday, January 25

Welcome to

traceyrlouis, who has horrible RLS. tracey has been on 5 different medications and a slew of herbal remedies. Others in her family suffer from this condition. Her doctor is out of ideas. She wants to hear what others have tried.

tracey, you can see all of the recommendations by the RLS experts in the document that appears in the link of my signature. If you have any questions or would like to join one of our existing discussions, just post a message.

[Rustsmith]

Friday, January 26

Welcome to

Had_it_50+years, who has had RLS intermittently since the mid-teens, over fifty years. Had_it couldn't sleep well because either the legs or arms or both were driving Had_it crazy. It wasn't until around twenty-five years ago that Had_it found out it was a known disease with drugs available for treatment. Had_it has used many of them by now and am finally on one that works exceptionally well without noticeable side effects. Without a medication that is working well, RLS can be an agonizing disease.

I am just a few years behind you in experience. Most of us will agree that without an effective treatment, RLS is intolerable. Unfortunately, doctors are either not familiar with the higher tier meds or are unwilling to prescribe them. If you have any questions, feel free to post a message or just join in an existing discussion.

[Rustsmith]

Saturday, January 27

Welcome to

Cbggolf, whose RLS is interfering with having dialysis. Cbggolf is unable to sit to have dialysis when legs are twitching and jerking.

Your RLS needs to be treated with medication to calm them. This can be tricky with dialysis, but is possible. There is a section in the document that appears in the link in my signature for special situations and I believe that kidney dialysis is included in that section.

If you have any questions, feel free to post a message.