MAY 2024 - New Members

[Rustsmith]

Friday, May 3

Welcome to

Guy Saint-Martin, whose RLS at night that keep him from sleeping. Sometimes RLS during the day while he reads. Disturbance to his spouse at night too.

Is your RLS currently being treated? Has your doctor checked your iron levels, specifically ferritin?

If you have any questions or would like some suggestions for improving the control of your RLS, just post a message.

[Polar Bear]

Sunday 5 May 2024

Welcome today to

Texaslady63 who has RLS and so does her 84 yr old Dad.
The RLS keeps her Dad awake many nights.

We are glad that you have found us but sorry that you have needed to do so.
Are you and your father being treated by your doctor for RLS and if so have you both had your Ferritin Serum level checked. This is important because although 20+ may be considered as 'normal', a sufferer of RLS need their Ferritin Serum to be up around 100.

If you make a post and give some information about how you are currently treating your symptoms we will do our best to help you.

[Polar Bear]

Monday 6 May 2024

Welcome today to

valerie1227 who suffers immensely with rls which she has had since the early 90’s. valerie1227 has experienced augmentation to the point of titreing herself off of Mirapex…a feat she says is not for the faint of heart. She would like to communicate with peers who know this anguish alongside as she feels she has travelled this road alone too long.

You have been a sufferer of rls for around 30 years and it is likely that you have tried all sorts of the remedies that we read of.
Well done on getting off the Mirapex. How are you coping with your symptoms at present.
We are all very different and can respond differently to various treatments be they prescribed or over the counter. We understand how you feel and if you will make a post giving us details of how you are currently managing your symptoms we will do our best to help.

[Polar Bear]

Tuesday 7 May 2024

Welcome today to johnhig

who finds RLS has taken away many enjoyable aspects of his life. Pain and fatigue have been discouraging but he is making progress with iron supplementation, gabapentin and exercise.

We are glad to hear that you are making some progress. RLS does indeed affect so many aspects of our lives and all in a negative way. Have you had your Ferritin Serum checked hopefully to find that it is up near 100 (best for RLS sufferers) and not at around 20 which is often accepted as normal. Please feel free to post and tell us of your experiences with RLS and to ask any questions you may have. We would like to try and help you.

[Rustsmith]

Wednesday, May 8

Welcome to

Brenda Mansel Reno, whose RLS has affected her life severely. All the medicines issued by neurologists cause severe side effects. She researchs constantly for help. Have used some products on Amazon with little results.

You can learn about some of the non-prescription meds that work in our Non-Prescription forum. There is also a non-medication treatment that was recently approved for use by prescription named TOMAC that some have found useful. You can also learn about all of the medications used by the leading experts in the document that the link in my signature points to.

And if you have any questions, feel free to post a message so that we can try to help.

[Polar Bear]

Saturday 11 May 2024

Welcome today to

Mjm who I has lived adult life very sleep deprived. RLS definitely altered Mjm's ability to manage everyday stressors, diminished the ability to be career successful and has left Mjm with personal doubt.

RLS affects all aspects of our lives and it feels like we are always pushing water uphill. We have all spent time sleep deprived but many of us have found if we can get reasonable control of our RLS the sleep will improve.
If you will make a post giving us the background of your RLS treatment, what has or has not worked. Have you been treated with a DA such as Ropinerole or Pramipexole because these will generally eventually cause augmentation. Do you know your Ferritin Serum levels which for an RLS sufferer should be up around 100 and not just 'normal' which could be anything from 20+.
Please post and ask any questions that come to mind so that we may try to help you.

[Rustsmith]

Sunday, May 12

Welcome to

Janny, who has had RLS since her early teens. It was a minor irritant until she reached her 40's when it became more troubling. She has tried every medication working with her RLS doctor. She now takes gabapentin and pramipexole. She dreads augmentation and going "cold turkey" for a week or ten days when augmentation gets too bad, but this combination is the only one that has worked or her.

Withdrawal from pramipexole when augmented doesn't necessarily require going "cold turkey". If a doctor is willing to prescribe an opioid, the opioid will cover the withdrawal symptoms and may be what you will need following withdrawal. If you have any questions about that or any other RLS topic, just post a message so that we can try to help.

[Rustsmith]

Sunday, May 12

Welcome to

Lisamason50, who wants to know what works for other people.

You can get an idea of the things that everyone does by scanning our forums. You can also see the variety of treatments recommended by the experts by reading the document that the link in my signature points to.

If you have any questions, all you need to do is post a note. We love hearing from everyone.

[Rustsmith]

Tuesday, May 14

Welcome to

SilviaC, whose life partner suffers from this condition since 25 years (he’s turning 50 yo this year) and it’s getting worse, despite the medication he has been taking daily since one year. We are looking for more information in this syndrome and some alternative solutions.

The simple description that you gave sounds like he may be augmenting on a dopamine agonist (Mirpaex or Requip). If so, he needs to find a doctor that is familiar with treating augmentation so that he can switch to a different type of treatment, which may be difficult. Take a look at the document that the link in my signature points to and feel free to post a message with any questions that you have.

[Polar Bear]

Wednesday 15 May 2024

Welcome today to

Softtailgolf who has had to deal with rls forever thru augmentation to long term methadone therapy.

It sounds like you've been living with RLS for a long time. Reading through the Forums you will see how others have been managing their symptoms, successfully and otherwise. It can take a long time to find what regime will work best. If you have any questions please feel free to make a post and ask. We are here to try and help.

[Rustsmith]

Tuesday, May 16

Welcome to

kmquinn108, who has suffered from RLS for several years. kmquinn is off medications for now and is experimenting with alternative treatments.

You can find lots of information about the few non-medication treatments that work and many that do not in our Non-Prescription and Physical Treatments forums. If you have any questions, feel free to post a message and we will do what we can to help you out.

[Rustsmith]

Friday, May 17

Welcome to

WebDemon, who was recently diagnosed with RLS but has suffered for quite a long time before getting diagnosed.

Many of us suffer for many years (decades) before being diagnosed. If you have any questions, feel free to post a message and we will try to answer it.