Now I have a small dilemma. Should I start a new thread on the pharmaceutical forum or continue this initial thread???
What has brought this on? I went to see a neurologist yesterday. She was tall, slender, attractive, had a quick and sharp mind, and had a lot of experience with RLS. But boy, she was tough! But I immediately realized that she is the kind of doctor I needed and was looking for (with not much hope).
HALLELUJA! So perhaps I shoud change venue and make the thread stop growing?
Just to refresh things:
I went to my gate keeper first. He tried (hydrocodone) but then he sent me to a sleep center led by a pulmonologist (clearly focusing on apnea, which is now quite fashionable and number one concern, next to diabetes). Being a pulmonologist specializing in respiratory problems, clearly he adopted a strict policy against any opiate. (Neurontin, then Mirapex). So my third stop was a pain doctor (Ultram). However, I sensed that all three doctors were uneasy and wanted to pass me on to someone else who could take charge of all the medications and knows more of the disease.
So I was sent to the neurologist by both #2 and #3.
She examined me and some of it it felt like a sobriety test. Then she asked me to squeeze her hand. - Is this all you can do? - she queried.
-Well, I do not want to hurt you! - I replied. [Well, she did look fragile being underweight next to my 50 pound overweight!
Finally, we agreed that she will cooperate with me under some rules which I found not only agreeable but a good idea.
She also asked me that if I find some good stuff in my searches to share it with her. I then asked her whether she would like to see my presentation in Ca in November. Her eyes got big but I did not press the point.
As she thinks (and found in her experience) that usually one drug controls RLS (she did not like Ultram for pain associated with RLS). Apparently she has never heard of Refractory RLS. So the algorithm paper (and the abstract) will be the first thing I will share with her.
For the first time I felt good about the doctor qualified to treat my RLS
and we do complement each other in many ways. This does not mean a rosy relationship but a fruitful one. And she can take it as well as dish it out!
There was a humorous moment and she almost chuckled! I complemented her on her shoes and later she complimented me on my shirt. It was full of fishes. I told her that it was just given me as a gift from my wife and this is the first time I am wearing it. Then she stepped up to me and peeled a label off my shirt. "Well one thing she did not do, she did not remove this label." My reply: "she was not home when I got dressed and left!" All true!!! Then I think I heard a subdued chuckle.
(She must have heard the absent minded professor jokes)
If anyone has an opinion on my first query, please do not hesitate to let me know.
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