In her latest post she wrote:
Posted: Wed Jul 21, 2004 11:13 am Post subject:
Hi jumpy, as i explained in my first posting i really am new to this i have joined the internet only a week ago so even switching the pc on is still an accomplishment!!! fumbling blindly has it's advantages...it occupies the mind but it doesn't help with complicated projects i have revisited my doc today and insisted he treats me for this and amazingly (enough although he knows very little about rls ) he is willing and very keen to find out more! he's sending me for full blood tests (which i have tomorrow)contacting a specialist(who is fortunatly based at the hospital 5mins walk away )and referring me to a neurologist currently i am taking zopiclone 7.5 for sleep,mefenamic acid 500mg for period pain and codeine based painkillers when necessary,these are to be reviewed once he's consulted the specialist. feeling very positive and knowing it's not in my head has helped enormously with assertiveness my partner on the other hand...well maybe someday she'll pull her head out of the sand !:xas for being easy to live with...that i am not subconciously my life has been geared around having rls and if anything upsets the routine stress sets in and you all know where that road goes i can have rls attacks for 12 hrs and more do others ...attacks of pain can last indefinately even with painkillers (i only use codeine based not nsaid)surely there is light at the end of the tunnel
In response to my post to her (I was late with my offer):
Posted: Wed Jul 21, 2004 8:49 am Post subject: Hello, Clara!
If you want to share the stuff you are taking with you to the doctor, I may help you to document it better. You could reach me by e-mail if you want to preserve your privacy.
I was prescibed phenergan and found that my rls rapidly worsened.
Phenergan (promethazine hydrochloride, an anti-emetic) is a troublesome medication. Interacts with many other medications and is too readily prescribed IMHO.
You need perhaps to be more assertive in your life. It must be a tremendous load being surrounded by unsympathetic people! Your relatives and family are hard to change but what about your significant other? Once he is starting to be part of the problem instead of the solution...? But to be fair, it is not easy to live with an RLS person, either.
You are right. Lack of sleep is one of the major morbidity of RLS. Then you can work on lack of quality sleep (increased stage 3 and 4).
Read some more, then ask! Also consider my offer (top sentence). We are ready to help you!
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JumpyOwl
My comment will be in the next post. Yes, Carla, there is light at the end of the tunnel.