Greetings from Buffalo NY

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Post Reply
Barbee
Posts: 20
Joined: Sat May 31, 2008 2:19 am

Greetings from Buffalo NY

Post by Barbee »

I suffer terribly from RLS and read somewhere on the Internet that RLS may be caused by low iron. So I asked my doc to order a blood test.
The office called to say my levels were normal at 47. The range, they said, was 40- 110. And they think 47 isn't low???????

What do you people think of this?

ViewsAskew
Moderator
Posts: 16216
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Post by ViewsAskew »

Barbee, did the office say what iron they were checking? That range isn't familiar to me.

When checking ferritin, they usually say 10, 15, or 20 for the low end and between 200-300 for the high end (each lab is slightly different).

Now, maybe what your doc is saying is that for RLS, he/she prefers the ferritin to be a minimum of 40-100 and you're in the range at 47. Many doctors do say that people with RLS should have their ferritin be at least 40, some say 45, some say at least 50. Again, it's variable.

So, I guess I'd ask what range he/she is using (if this is a ferritin test).

Welcome to the group. Sorry you had to find us. :cry:
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Barbee
Posts: 20
Joined: Sat May 31, 2008 2:19 am

Post by Barbee »

As far as I know it was just a routine blood test to see what my iron levels were. The order just said "iron".

Barbee
Posts: 20
Joined: Sat May 31, 2008 2:19 am

Post by Barbee »

I found this on the Internet:

Normal results

Iron level test

Normal serum iron values are as follows:


Adult males: 75-175 micrograms/dL


Adult females: 65-165 micrograms/dL


Children: 50-120 micrograms/dL


Newborns: 100-250 micrograms/dL.

ViewsAskew
Moderator
Posts: 16216
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Post by ViewsAskew »

Unfortunately, ever lab is different. You have to know what this lab's values are.

The most important test for you is the ferritin test. If it wasn't that, that is what you need to have.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

satipler
Posts: 3
Joined: Mon Nov 17, 2008 12:11 am

Post by satipler »

I'll be talking to my dr. tomorrow about doing an iron test, along with testing other levels such as my magnesium and b-complex if that's possible.

I'm not new to RLS (been suffering for at least 10 years) but I am new to the message board; so hello everyone!

P.S. My nickname is "Twitchy" :wink:

ViewsAskew
Moderator
Posts: 16216
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Post by ViewsAskew »

Twitchy, just make sure it's a test for ferritin levels, not just a "regular" iron test.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

mackjergens
Posts: 406
Joined: Sat Jul 21, 2007 5:10 am

Post by mackjergens »

I am pretty sure that you have to request a ferrintin iron test. its not part of the routine blood work. I suggest that you find the research about rls and ferrintin iron and print it off and take it with you to your Dr. I think you can find that info on the Mayo Clinic web site.

Barbee
Posts: 20
Joined: Sat May 31, 2008 2:19 am

Post by Barbee »

I'm really upset with my doctor. I called her office and told her DA that I wanted an iron test for RLS and she sent me a script. All they tested was iron... period. No ferritin. So now she is trying to prescribe some RLS drug that starts with an "R" and my insurance company is refusing to pay because she didn't do a ferretin level. So now she sends me a script for a ferretin level blood test.

That's what I asked for 3 months ago!

SquirmingSusan
Posts: 2991
Joined: Sun Nov 12, 2006 4:08 am
Location: Minnesota
Contact:

Post by SquirmingSusan »

Well, at least she's starting to get it figured out. Some doctors never do. :roll: It seems to be the sorry state of medicine when it comes to getting the RLS treated, and treated right. So sorry it's taking you so long to get some relief! Hang in there.
Susan

User avatar
woodsie357
Posts: 147
Joined: Wed Feb 04, 2009 7:54 am

Post by woodsie357 »

Ive heard that anyone who's ferratin levels are below 50 should take Ferrus sulfate. Ferrus sulfate is the form your body stores iron.
Someone cares about your sleepless nights

mackjergens
Posts: 406
Joined: Sat Jul 21, 2007 5:10 am

Post by mackjergens »

Barbee,
you have just discovered that most drs know very little about rls. So your best bet is to read and educate yourself about rls. Go to the Mayo Clinic site and print off their info of rls. you can try to give your dr a copy, but dont be surprised if he/she refuses to read it.

RLS has been around forever, but just in recent yrs has the medical field began to become educated some what about it. So most Drs know just enough about rls to be dangerous.*L*

There is a list of meds used to treat rls and a list of meds including OTC meds such as cold meds, antidepressants and etc, that you really need to print off and keep with you at all times. Things such a tylenol PM or other PM OTC meds can increase your rls to almost unbearable feelings. so please read and read and educate yourself.

here are afew web sites that I like
www.rlshelp.org where you will find the lists of things
www.wemove.org
www.rls.org.
www.mayoclinic.com

The more you know about rls the better treatment you can find for yourself, it might require going thru several drs before finding one that will listen.

Post Reply