The only thing that has helped my RLS has been pain meds. I have been taking Methadone for about 9 years now and it works incredibly well. I get it prescribed by a pain specialist as I also have neuropathy in my legs and feet. It drove me absolutely crazy when I first had it and as most of you know, back in the early 90s, more MDs thought RLS did not exist. They thought I was just someone looking to get pain meds. I tried all the Parkinson's drugs and all the new meds for RLS and none have worked as well as the Methadone. The thing that is good about the Methadone vs any other opiate is that it does not impair you at all, so you are clear headed and not feeling dopey all the time. I look forward to reading other people's stories.New to site
New to site
I wanted to introduce myself. My name is Rob Schuh and I'm a professional Jazz drummer currently living in Phoenix, AZ. I've had RLS since 1991 when I developed renal failure. I spent 8 years on dialysis and received a transplant in Oct. of 98. I'm back on the transplant list, but the transplanted kidney is hanging in enough to keep me off of dialysis, so that is at least some good news! The only thing that has helped my RLS has been pain meds. I have been taking Methadone for about 9 years now and it works incredibly well. I get it prescribed by a pain specialist as I also have neuropathy in my legs and feet. It drove me absolutely crazy when I first had it and as most of you know, back in the early 90s, more MDs thought RLS did not exist. They thought I was just someone looking to get pain meds. I tried all the Parkinson's drugs and all the new meds for RLS and none have worked as well as the Methadone. The thing that is good about the Methadone vs any other opiate is that it does not impair you at all, so you are clear headed and not feeling dopey all the time. I look forward to reading other people's stories.
The only thing that has helped my RLS has been pain meds. I have been taking Methadone for about 9 years now and it works incredibly well. I get it prescribed by a pain specialist as I also have neuropathy in my legs and feet. It drove me absolutely crazy when I first had it and as most of you know, back in the early 90s, more MDs thought RLS did not exist. They thought I was just someone looking to get pain meds. I tried all the Parkinson's drugs and all the new meds for RLS and none have worked as well as the Methadone. The thing that is good about the Methadone vs any other opiate is that it does not impair you at all, so you are clear headed and not feeling dopey all the time. I look forward to reading other people's stories.-
ViewsAskew
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Welcome, Rob. Some of my best friends are jazz musicians. What a fun job. My grandfather was a trumpet player in a jazz band in the 1920s - I used to love hearing his stories. I drum, but am not very good, lol. I occasionally get to see Paul Wertico since he lives here in Chicago - that's one of my favorite treats.
Welcome to the site and thanks for sharing your story. Sounds like you're in good hands with the methadone treatment and pain clinic. Hope that continues to work well for you.
Welcome to the site and thanks for sharing your story. Sounds like you're in good hands with the methadone treatment and pain clinic. Hope that continues to work well for you.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Polar Bear
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Hi Rob, welcome to our site. Sounds like your rls symptoms are under good control.
What an interesting way to earn a living
What an interesting way to earn a living
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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badnights
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Hi Rob. Funny, I don't get dopey on my pain meds. Hydromorph contin (extended release hydromorphone). I can tell it's kicked in when I notice that my legs and arms have gotten calm and gained boundaries. Once in a blue moon I'll get that "stoned" feeling but it's not very often and I usually hit the sack about then, anyway.
I hope your kidney hangs in there long enough for you to find a new one and you can avoid dialysis. A friend of mine had renal failure and was able to get a transplant. He actually got two kidneys, because they were so small the doctors weren't sure if they would work, but they're both still ok, so nowadays he only gets RLS every now and then.
I'm glad the methadone is working for you and you have a doctor who's happy to prescribe it.
I hope your kidney hangs in there long enough for you to find a new one and you can avoid dialysis. A friend of mine had renal failure and was able to get a transplant. He actually got two kidneys, because they were so small the doctors weren't sure if they would work, but they're both still ok, so nowadays he only gets RLS every now and then.
I'm glad the methadone is working for you and you have a doctor who's happy to prescribe it.