Hi!! New to the site

cmistaya · Post by **cmistaya** » Tue Feb 22, 2011 10:14 pm

Hi.My name is Cindy. I have had RLS since a teen and now in my 50's. I am looking for help and just others with the same problem because my RLS has now become worse. I had always controled it with exercise but now that doesn't even work. I now have it 24 hours a day almost all the time and it has gone into my arms and shoulders. Meds don't seem to help most of the time now. Just want to have a group of people that I can go to when I think I am loosing it which seems al lot lately.

Post by **ViewsAskew** » Wed Feb 23, 2011 12:31 am

Hi CIndy,

You're in the right place. I've definitely had periods of losing it!

I'm on my way out the door, but will write more later.

Post by **Polar Bear** » Wed Feb 23, 2011 1:16 am

Hi Cindy
you will find some good reading on this board and it was this site where I educated myself with regard to rls and in turn printed out the Mayo Clinic Angorithm and took it to my doc.
You can access this via the link in my signature.
The Algorithm is for those of us who have reached the point of needing medication.

We come here when we are happy and have something good to tell, and when we are at our wits end and need a good rant about it all.

I am also a 24/7 suffer with symptoms also in the arms, and with resultant sleep issues, hence I am at the computer when it is 1.15 am

Post by **badnights** » Wed Feb 23, 2011 1:31 am

Hi Cindy. I'm 24 hr/d arms and legs when not on meds. I've had a difficult time finding meds that work but now I'm on extended-release hydromorphone which has given me back some semblance of a life. What meds have you tried?

SquirmingSusan · Post by **SquirmingSusan** » Wed Feb 23, 2011 2:04 am

Hi Cindy. Welcome to the forum. Feel free to rant and vent whenever you need to do that. We all understand the beast that is RLS. You'll find a lot of good information here, too.

sleepdancer · Post by **sleepdancer** » Wed Feb 23, 2011 4:20 am

Sure hope you find some info here that may be useful to you. Seems to be a variety of what works. The way you and some others describe your RLS, it must be more severe than mine was, and I thought I had it bad. I think my PLMD disturbing my sleep is more problematic than my RLS, though at my last sleep study the doctor felt the RLS was a greater problem for me. A TENS Unit has helped my PLMD greatly, can't say if it would be of any help for RLS.