Welcome New Members - March, 2013

[ViewsAskew]

It's March and we're starting it off with several new members.

Generally speaking, these are great things to do!

1. start a new thread (one is best) telling us about your situation. We'll do all we can to help.
2. read old posts, respond if you like, too.
3. find and read the "sticky" posts (the ones at the very top of each forum). These are loaded with great info.
4. go tothe links in the moderators signatures - each of our signatures has a link to something really helpful.

We're very sorry you had to find us but very glad to be here for you. Let us know how we can help you.

[ViewsAskew]

So far, three members today - PolarBear registered the first two; I copied her post into mine.

Welcome to MikesRestlessLegs, susanrbrown, and Seagertree
MikesRestlessLegs has been a sufferer for 20 years and is also coping with other conditions.
susanrbrown is looking for more ways to help ease her symptoms.
Seagertree has had it for years and now his/her toddler is showing signs of it - what a difficult place to be

Whenever you are ready, please introduce yourselves and tell us a little of your WED journey. Seagertree, look in the Special populations area. We've not had a lot of parents in here, but some.

[ViewsAskew]

Welcome to cherylmakuson. Hope you find what you're looking for.

[badnights]

A sad and happy welcome to Sparkw8. Happy to have you here, where there are others who share the dreadful problems you're having,
but sad to recognize yet more suffering.

You're desperate, don't respond well to many of the meds, and have had many neurologists give up on you. Please start a thread to tell us about yourself - what medications you've tried and what their effects have been. The members here will have advice for you, and share their experiences, hopefully can point you at something you haven't tried yet, and at the very least we'll give you a virtual shoulder to cry on, because we get what's happening to you!

[ViewsAskew]

Monday, the 4th - welcome:
jimbo and debag. Both of you have severe WED and are looking for support. Hope you find what you need here.

[ViewsAskew]

Tuesday the 5th - welcome to cheriums. You're looked to learn more, particularly about people who use drugs and how effective we find them and about people whose symptoms started after chemo.

[Polar Bear]

Wednesday 6th March - welcome to barry. barry you have had WED symptoms for 10 years and are tired of it all. We know exactly how you feel.... it all gets so wearisome.
Also welcome to alice and scooterspal. alice wants to find and share info on how to deal with doctors and surgeons who don't understand WED - and mentioned just how hard it is to get people who understand what this disease can do to a person. Fortunately, everyone here totally "gets" it!. scooterspal wants to share how he/she has resolved WED.

Please read the threads and stickies, start a thread and tell us a little about yourself and your symptoms and treatment, or join an existing thread, Just whatever you are comfortable doing. We are all here to help as much as we can.

[ViewsAskew]

March 7th - mayday joins us. Great username for this forum! Lots of information abounds here, along with some of the nicest and most helpful people on the planet.

[Polar Bear]

8 March - Maxfield.penny, LindaM., jennsylvania, pburnette19, jtassoc and Roger411 have joined us today.
Maxfield.penny is sleeping very little and mirapex doesn't seem to be working any more.
LindaM. wonders if sleep apnea is related in any way to RLS/WED.
jennsylvania is looking for new information and resources.
Roger411 is wondering if his/her symptoms are from WED/RLS.
pburnette19 has severe symptoms and is also dealing with other serious issues, she needs a solution.
Jtassoc has had WED since 2008 when it began following a fifth surgery.

There is a lot of information throughout our threads, you can also use the search engine. Sometimes the quickest way, while you are reading and searching, is to start a thread to tell us a little about yourself and your treatment and ask a few questions.

[ViewsAskew]

March 9 - welcome to Butterfly33, who is frustrated and wants some help.

Boy, I know how that feels! So sorry you had to find us, but this is a good place to be to get help. Read posts, ask questions, read the "sticky" posts. There is a LOT of information here.

[Polar Bear]

11th March - UpAllNightKatie has joined us - what a great User Name.
Katie feels she is getting nowhere with her neurologist and need information on medication and sleep. There is certainly a lot of information here. And if there is a specific question please go ahead and ask.... we are all here to help.

Marshall joins us today, also. Marshall is a healthcare professional and interested in patient insights. You are so in the right place! The forum tends to be skewed a bit to those who have trouble getting the care and/or treatment they need. We can, however, remember what it was like when it wasn't so bad (for most of us) and would LOVE to help you. You may notice a thread where we're talking about how to educate healthcare professionals so we can get the treatment we need.

[ViewsAskew]

Joining us today, March 12, we have:

bwilliamson has had severe WED for a long time and only recently learned it could be treated. Treatment is going OK; bwilliamson is hoping to learn more.
sambosgal has had it for 21 years and all five children have it. As with many of us, sambosgal writes that it just keeps getting worse.

Start a new thread to introduce yourself, read old threads, join conversations! We wish you didn't have to be here; since you do, we want to help in any way we can.

[Polar Bear]

Today 13th March we are joined by Anomalous and QyX - welcome.
Anomalous is having difficulty getting medical insurance because of a medication she was given to treat WED symptoms.
QyX has been a sufferer for some time and wants to connect with others.
legman, after six years of searching, finally has a medication that works for him. That's GREAT news!

You will find loads of information throughout the threads and stickies. We look forward to your posts and telling us a little about yourselves and your dealings with WED symptoms and how you have been coping.

[Polar Bear]

16 March, jlipford has joined us and wants to talk to others in the same position.
Also Kester who wants to share and find best ways to reduce symptoms.

Read the threads and get the feel of the Board, introduce yourselves and ask any question - we want to help.

[ViewsAskew]

Saturday March 16, we welcome:

rlinda72 - with WED since an above-the-knee amputation in 2007. Looking for help and advice.
stevewithsevererls - who's found help with pramipexole and eliminating phenolphthalein.

Look around, read posts, and if you want, start a new thread and tell us about yourself.