JUST JOINED NOVEMBER 2013

[Polar Bear]

3 November 2013

Welcome to:

Carina - who together with her mother suffers from WED. She wants to learn and to possibly find drug free help.
Coppernick - suffers severely as do other family members.
AlexiS - who has suffered for 10-15 years and is at the severe stage, taking multiple medications but with side effects.
Cajuunrn = who has suffered for 6 years and found a combo that works, would like to learn and share.

Welcome everyone, we are all sufferers and want to help others. Read lots, especially in the Just Joined Forum and Stickies, tell us a little about yourselves and how you have been coping with WED/RLS symptoms to date.

[ViewsAskew]

And, also on 3 November 2013, welcome to Dkmarkham, who's had WED/RLS all his or her life.

Look around, tell us your story, or just hang out and read. We're here to help.

[Polar Bear]

4 November 2013
Welcome
Nickyandvicky - who has had WED/RLS symptoms for as long as can be remembered and is now walking the floor. Just wants to be able to sit down in peace.

We so understand how you feel and what you are going through, we want to help. Tell us a little about your WED history.

[badnights]

On Nov 5
Welcome to dkee, who suffers severe WED/RLS and needs our support;
and welcome to church01cw, a long-time sufferer who needs to find out more about treatment and perhaps - my own guess here - the level of knowledge to be expected of doctors.

I wish no one else ever had to join this board!
But given that we don't have a cure yet, I'm glad you found us, because the people on this board are caring and supportive and knowledgeable. We are also not averse to venting a little frustration now and then - so no matter what you need to say, go ahead;
and no matter what you need to ask, ask away, you'll get responses; and sometimes an abundance of opinions! It will all be helpful in forming your own opinions.

[Polar Bear]

7 November
Welcome to
gnordby - who has been a sufferer for 40 years and now at age 70 is finding the symptoms unendurable. He/she would like to learn and share with others, and find support.

This is exactly what we try to provide here. Please tell us about yourself, read the Just Joined Stickies , ask questions, join a thread, or just read away and hover until you are ready. We look forward to your posts.

[badnights]

Welcome today to SElaineJ, who only found a name for a lifelong WED.RLS affliction 10 years ago. Numerous specialists have been unable to do anything but prescribe Mirapex. You've come to a good place to find information to take to your doctors, and to share and communicate with others. Welcome, we're glad to have you join us.

You can start a new topic in any Forum by clicking NewTopic (under the Forum name near the top left). If you're reading a Topic, you can add a comment by clicking Reply at the bottom of the page. Note that some Topics span multiple pages (at the top and bottom right are links to following pages).

[Polar Bear]

Saturday 9 November

Welcome to:
Csteigerwald - who needs help and solutions.
waterfront1971 - who is on medication and is seeking further information and help and to meet other sufferers.

We are sorry that you have need of us, but happy that you have found us and registered. We look forward to hearing how you cope with your symptoms and feel free to ask any questions. Just start a thread or join a thread.

[ViewsAskew]

Saturday and Sunday - November 9 and 10

Welcome to shopson, who's had WED for many years, and also has Crohn's and celiac. Sleeping very little and looking for some help; taking Effexor and clonazepam for anxiety and WED. Shopson, consider reading some more - those aren't necessarily good drugs for WED. Might be that a drug change could really help.


Also, welcome to Ash, who has had WED for years...currently not much is working, though.

Please feel free to start a new thread and tell us more. Read, respond to existing posts...and so on. We're here to help if we can and hope you find what you need here.

[ViewsAskew]

Monday and Tuesday:

Welcome to M&M510 who has WED and wants to participate,

and

Gregorypeck, who has WED and wants to hear from others with the disease.

Hang out, join existing conversations, start your own, read....do whatever helps.

[ViewsAskew]

Wednesday, please welcome:

29CoveRoad, who's had WED since a child and who now has acute symptoms; he or she is looking for support and fellowship.

Kgates, who had had WED most of his or her life and now is meeting with a hematologist to discuss intravenous iron therapy. Wants to find out if others have had success with this treatment.

Please interact however fits your needs. If you want to ask questions or share about something specific, please start a new topic in the appropriate section of the board. Or, responds to posts as you like. We hope you find help and support here.

To Kgates, several of our members have had IV iron over the past ten years. It's worked differently for them - from completely removing symptoms to no affect at all - this is consistent with the research - fortunately most people get some reduction. Some of these members don't post anymore, but you can use the search function to find older posts that may be relevant. There have been several recent discussions about this topic.

[ViewsAskew]

Thursday through Sunday - we welcome:
rockingronnie - symptoms are worse, needs advice (so sorry to hear this)

rickbork - husband has WED/RLS and wife is trying to help identify some coping skills (coping skills are very important)

Slp9 - has had WED for 50+ years - ropinerole is less effective and needs advice (see info on augmentation)

meridianeve - taking clonazepam for anxiety and OCD, a mild opioid for pain, and now also taking ropinerole - concerned about taking so many drugs (none of us like it, but many of us do it!)

lkhmini - had questions to ask

Traxlerst - has had WED for 14+ years, but has gotten a lot worse recently; needs new medication

hilsold - had intermittent WED for a few years, but now it's happening regularly

We wish none of you had to be here; we're very happy to provide our knowledge, empathy, and support. Please read through existing posts and links, start a new topic if you want, tell us your history, ask questions - whatever helps.

[Polar Bear]

Monday 18 Nov.

Welcome to:

Chockcarr - whose sister suffers symptoms nightly. Your sister is very lucky to have someone to look out for her and try to learn more about this disease. Please read all you can and ask questions. We want to help as much as possible.

[ViewsAskew]

Tuesday the 19th, welcome to:

kimmyd - who is taking gabapentin, ropinerole and an opioid and it's still not enough (please read about augmentation)

purrgirl - diagnosed recently and looking to be part of this community as this is something that will need to be managed the rest of his or her life.

There are many resources here - please look around, read posts, ask questions, jump into existing conversations. We hope you find what you need.

[Polar Bear]

Friday 22 November

Welcome to:

Sleeper - who has had WED/RLS for many years. We hope you can find useful information as you read through the posts and look forward to hearing how you have been coping with your symptoms and what has or has not worked for you.