New Members, February 2014 - Welcome!

[ViewsAskew]

Our first members of this month have interesting stories.

First, we welcome ciopalu, who is from Italy and notes that WED/RLS is not well known there. Unfortuately, it's not all that well-known anywhere, but I think it's getting better. We hope the site is helpful - let us know if there is anything specific that you want to know about.

Also, we welcome pcbayougirl, who is a grandparent with WED and it appears the grandson has it, too, except the doctor said it is growing pains and that RLS (WED) cannot be painful. Hah. Too bad so many doctors are misinformed! By the way, there are publications you can download from the main rls.org website. http://www.rls.org/about-rls-wed/publications. There is one there for dealing with RLS/WED in children. That would be a good place to start in terms of giving information to your doctor.

Start a new topic if you want, or just read existing or old ones. The board is here to help provide accurate information, understanding, and warm companionship.

[ViewsAskew]

On Feb 2nd, we welcome LV3313, who wants to learn more about other people's experiences and to share his or her experiences.

Please start a new topic thread and tell us about your experiences. Read other posts or ask questions. We're here to help.

[Polar Bear]

Monday 3 February

Welcome today to
hassduane1928 - who has RLS/WED and would like to find out more about the disease and what others are doing and what results they are getting.

I think the best place to start is in the Stickies at the top of the Just Joined page. There's a lot of good information in those, and also have a look through the posts, join in if you'd like to, or start a thread of your own if you have a specific question you'd like to start with. We are not medical folks, we come from all walks of life, and the one thing we all have in common is our experience of dealing with the RLS/WED symptoms.

[Polar Bear]

Tuesday 4 February

Today we are welcoming
kitty56 - kitty has battled with RLS/WED for most of her lift and now it seems to be taking over. Kitty would like help from other sufferers.

That's what we try to do kitty, we are all sufferers who have been (and still are) on the big up and down RLS/WED roller coaster. Please tell us a little about your symptoms, how severe they are and how you have been coping so far. This will help us to try and help you.

[ViewsAskew]

Wednesday, we welcome Mellington73 who wants info and answers about WED (RLS). As noted to other newcomers, poke around, read the sticky posts, ask questions - we're here to help.

[ViewsAskew]

Thursday, welcome to jackson1, who's had WED for many years. We hope you find what you need here.

[ViewsAskew]

Welcome to mscarrie, who wants to know more about WED medications and people's experiences.

You're in a good place. There are many older posts, current discussions, and sticky posts to help. As with all members, please post new topics and ask questions or let us know your history.

[ViewsAskew]

Welcome, Sunday, to ednajoan, who has had WED his/her entire life and needs help and support.

Let use know what you need from us; poke around, read past posts, take links. We're here to help.

[ViewsAskew]

On Tuesday, welcome to?

lynnbg, who's had WED for 7 years and is interested in learning more about it and how other people cope with it.

knoxtnhorn, who has had issues with RLS for 5 years and pramipexole is not working well anymore.

Please take a look around, read, reply to, or start a new topic and let us know more about what's on your mind. knoxtnhorn, consider reading about augmentation - that's likely what's going on with you. There are many posts about it - you can find them using the search function.

[Polar Bear]

Thursday 13 February 2014

Welcome today to:

dazsa - who feels doctor is ignoring his WED/RLS . He also has non diabetic peripheral neuropothy. All of which is greatly interfering with life.

Indeed, many of us have felt like this at times, as though we have nowhere to turn for help. You have made a good start by joining us and will find lots of information especially in this Just Joined forum, you should look at the stickies at the top. Please tell us a little of your history and what you have tried so far.

[Polar Bear]

Today 14 February 2014 we welcome:

mitchy - who has had WED/RLS for years and has been told by a doctor that there is not much can be done to manage this condition = mitchy is currently taking homeopathic remedies.
There are lots of different medications to be tried. Mitchy has your dr prescribed medication that has not been effective, is this why dr says this.
Please tell us of your history with WED and what you have tried in order to try and find relief. Join a thread, or start your own, and let us do what we can to help.

[ViewsAskew]

On Sunday, Feb 16, we welcome:
oboyoboy - who has PLMW - periodic limb movements while waking - and is looking for help.

burnthehaystack - who is looking for advice about WED/RLS.

Per the PLMW, that's a tough one. I don't think most of us know a lot about it. Mine is only bad when I've augmented - when I've stopped the offending meds, it's gone mostly away. I honestly don't know protocol regarding it - hope others do.

For both of you, please start a new topic/thread and tell us about your situation; or read older posts. Whatever works. We're here to help.

[Polar Bear]

18 February 2014

Today we are welcoming:

Generation - whose Aunt suffers with WED/RLS and is searching for alternative treatment and advice - bearing in mind that Auntie has sensitive skin.

Please read around the site, especially the stickies in the Just Joined forum. When you feel ready let us know if your Aunt has tried any pharma treatments or how has she been trying to control symptoms. Your Aunt is very fortunate to have you to take an interest and give support. Thank you for that.

[badnights]

Feb 19 Welcome to Dr Farhy, who has helped various WED/RLS patients in his practice and (I am paraphrasing a bit, here) is interested in how people are being treated and how people experience the disease. Welcome, and please browse around, ask questions, and provide information (but please do not try to sell anything, that's against the rules).

[Polar Bear]

20 February 2014

Welcome today to:
ceilidh - whose WED/RLS is getting worse and is into the arms. Requip has been used for 10 years and ceilidh would like to touch base with other suffers.
Also BaileySue3 - who would like to discover better prescription medications than the one presently used, and to learn current WED/RLS information.

Please look around the site, in particular the Just Joined section. When you are ready just join a thread or start your own thread, tell us a little of your WED/RLS history and ask questions.