NEW MEMBERS MARCH 2014

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Locked
Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

NEW MEMBERS MARCH 2014

Post by Polar Bear »

3 March 2014

Welcome today to

Delpha Hirth - who has been a sufferer for 15 years and has difficulties with Doctors.
Kosor - who wants to learn about new medications for WED/RLS
jannazoo - who has been a sufferer for over 20 years and has been on carbo levodopa for 20 years.
Bellevue11 - who has symptoms similar to WED/RLS and would like feedback in case it is something different altogether.
aguay - who has had WED/RLS for 30 years, been taking medication for 10 years, and symptoms are still not under control.

Everyone is most welcome. Read through some information, especially the 'stickies' at the top of the Just Joined Forum. We all want to help. Start a thread or join a thread, ask questions and let us know a little about how you have been coping with your symptoms.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

5 March 2014

welcome today to:
mzemelis - who would like to find out about new treatment options.

We are glad that you found us, have a read through the posts, ask questions, tell us a little about your WED/RLS history.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

6 March 2014

Welcome today to:

DRronoms - who fbelieves he?she has WED/RLS that is getting worse.
You will find the Just Joined stickies very useful. Peruse the posts and tell us about your symptoms and how you have been dealing with your symptoms. Are you on medication.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

9 March 2014

Welcome today to =

boac123 - who has had WED/RLS for over 30 years and is having difficulties with doctor and getting medications that will work.
MonaF - who has WED/RLS and medications are no longer working.

You will find a great deal of information to hand, you could start with Just Joined forum, also take a look at the stickies at the top of the forum. When you are ready just join a thread, or start your own thread. We look forward to hearing from you, tell us about how you have managed your symptoms to date and what has and has not worked for you. We'd like to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

11 March 2014

Welcome today to:
Julez74 - who would like to talk with others about treatment and what works. Tell us a little about your symptoms and how you have been managing. Join an existing thread or if you feel like it, start your own thread.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

12 March 2014

Welcome today to:
steelertimp - who suffers from WED/RLS. You will find a lot of information throughout the posts. To have information is such a help with working with our doctors. When you are ready please tell us a little about your experiences with WED/RLS and how you have been managing so far.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS MARCH 2014

Post by ViewsAskew »

Welcome today, March 15, to happy2010, who has had WED since a child.

Take a look around, let us know if you have any questions; we hope that you have a good experience here.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS MARCH 2014

Post by ViewsAskew »

Tuesday, March 18 we welcome WildOne86, who has WED and is a pharmacist. Welcome to the board - while we would gladly accept any input from you from a medical perspective, we want you to know that we do not expect to be the members' medical adviser! Please let us know at any time if any questions are being intrusive.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS MARCH 2014

Post by ViewsAskew »

Friday, we welcome Wsa13000, who's having trouble with WED and is wondering what others are doing.

Please, let us know what you've tried and what's happening. You may find that reading posts is helpful, too.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

Sunday 23 March 2014

Welcome today to:

scarlet5 - who has been a sufferer for 40 years. Prescription meds are no longer working and scarlet5 is looking for alternative solutions. There is a page for non prescription that you may find informative. We look forward to reading how you have coped so far.

shysyster - who suffers from WED/RLS and is also a leader of a support group. There is a lot of information on the board here and we hope you find it of benefit. We will be interested to hear and learn from you also. Any knowledge can only be good.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

25 March 2014

Today we welcome:

Jigmay - who is having a dreadful time with WED/RLS symptoms. What had previously been intermittent has now become incessant. Please read the Just Joined threads and stickies for information. When you are ready, please post in the Just Joined forum and tell us a little about how you have coped with WED, are you on any medication, what have you tried for relief. We will try to help, everyone here is a sufferer and wants to help you.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS MARCH 2014

Post by ViewsAskew »

March 27, welcome to:

babsw - who doesn't know anyone with WED and feels very isolated and want to be able to talk to others who understand.

Keith22 - who's been on the gamut of meds, starting with the DAs, and finally on opioids, but doesn't feel that this is the answer, either.

finbib - who has suffered for 10 years and is seeking information from other sufferers.

Pinkandwild - who has suffered for 40 years and also has fibromyalgia.

Please - look around, read the sticky posts, start a new topic and share - whatever works for you. We understand and many of us are very knowledgeable about options.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16581
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS MARCH 2014

Post by ViewsAskew »

March 28th, please welcome caseysmom, who doesn't know anyone with WED and thinks it might be helpful to talk to others who do. You're right, caseysmom, it can/does help. Talk away!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: NEW MEMBERS MARCH 2014

Post by badnights »

March 30th
welcome to fraz5407, who has severe WED/RLS. So sorry to know you suffer like that! Make yourself at home here, start a new Topic to tell us about yourself and ask questions.

Welcome also to Lslanina, who survived Hodgkin's lymphoma but developed WED/RLS from the chemo. After trying the two DAs, which lost effectiveness, and gabapentin which was ineffective, Neupro 3mg patch seems to be keeping things under control. Lslanina, your story is interesting. I haven't heard much about chemo drugs and WED/RLS, I'm sure a lot of us would like to know more.

I just did a quick search for similar problems, and it seems to be very common for people taking chemo, even without Benadryl, to get peripheral neuropathies and WED/RLS.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Polar Bear
Moderator
Posts: 8822
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS MARCH 2014

Post by Polar Bear »

31 March 2014

Welcome to:

irishgirl1423 - who has MS and recently has been having WED/RLS symptoms as well.

dant - who is suffering with WED/RLS symptoms and ... bottom line is, he is seeking help.

We are glad that you have found us. You might already have done some reading through the forums and threads. Please tell us a little about yourselves, how you have coped so far. Everyone here arrived looking for help, and we all want to help as much as we can. Start your own thread or join a relevant existing thread. Whatever you are most comfortable with.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Locked