NEW MEMBERS APRIL 2014

[Polar Bear]

2 APRIL 2014

Welcome today to:

darcyp59 - who wants to find about treatments that will work.
Drand - who is anxious to learn what might be of help and to report on his/her own experiences.
Myfancypants - who has had 10 years of WED/RLS and also has PLMD. Treatment is quite good at present . MFP would like to read posts and participate where possible.
ptljbuda - who is looking for a doctor in the Corpus Christi Tx area.
gjh - who has suffered for 33 years, has tried all medications, sleep study, and is seeking a physician with WED/RLS knowledge.
Bethanie - who is struggling to cope, she needs advice and support from others who understand.
cartersmama83 - who wants to see what treatments other sufferers are using and what works.

Welcome everyone, there is a lot of information to be found and also please introduce yourselves in the Just Joined Section and ask questions. Everyone here is a sufferer and will know exactly how you are feeling. We all came here seeking help and support, and we hope to be able to help you also. Give us some background information about your symptoms and how you have coped so far. It still helps all of us here on the discussion board to hear from new members and how they have managed so far.

[ViewsAskew]

4 April 2014

Welcome today to

jiggy7 - who found Dr B through this board and wants to give us an update.

AnnaG - wants to know about the experiences of other people with WED/RLS and share his/her experience with this difficult problem. AnnaG's WED/RLS is unbearable in the last year.

We wish you didn't need the board, but we're glad we're here since you need it. Write new posts, respond to old ones, read through them - whatever helps.

[ViewsAskew]

5 April, 2014

Welcome to churchmouse56 who want to connect with others who have rls/WED and hopefully to learn about treatment options.

Please, look around and feel free to ask questions.

[Polar Bear]

7 April 2014

Welcome today to -

tdnance - who has severe WED/RLS and is interested in hearing about treatment and how others are coping.

We are glad to be here for you. Have you already been reading through the threads? Why don't you join a suitable thread, or start your own thread, tell us a little about yourself and how you are coping at present. Ask questions. We are here to help each other.

[Polar Bear]

8 April 2014

Welcome today to:

Coweaver - who is seeking mutual support and education
Susanbaggerly - who would like to find research supporting the use of Oxycontin for WED
Lab - who is interested in how others deal with the pain and issues that come with WED and PMLD.

That's what we are here for. Please read what you can, there is a lot of information. Tell us a little background information and ask as many questions as you feel like. We are glad that you found us - but of course, sorry that you are suffering.

[ViewsAskew]

11 April 2014

Welcome today to:

ptallman - who has had WED since a child and has had difficulty getting help from doctors and wants to stay away from prescription meds if possible.

wyldaeval - who wants to find more information on treatment options for WED - it's getting worse and interferes with his or her daily life.

Lynneat, who would like to get more information about sleep movement disorders.

Many of us have felt the same as both of you. ptallman, there really aren't that many truly non prescription options. One is kratom - it's not a prescription, but is essentially a drug. Another are amino acids, however they don't seem to help everyone. You can read through the existing posts to see what other people are using. wyldaeval, I hear you on the disruptions to daily life - it's 7:30 AM where I live and I haven't slept yet. This disease can be brutal at times, can't it?

Do poke around, ask questions, post in existing topics, start new ones - whatever helps.

[Polar Bear]

12 April 2014

Today we welcome -

electric - who is seeking a good doctor with WED/RLS specialisation in his home area.

peggy - who has suffered for many years and find that it is getting worse and is in arms and legs.

When you are ready please tell us a little about yourselves and your WED coping mechanisms and medication. Join a thread or start your own thread, ask questions ..... we are all sufferers and want to help.

[Polar Bear]

Monday 14 April 2014

Welcome today to,

Alexandra - who is looking for support and help with coping.

That's what we are here for. Tell us in a post a little about yourself and how you have been coping so far.

[Polar Bear]

15 April 2014

Welcome today to:

1jane - who has had WED/RLS for many years and is in extreme pain which is very debilitating.
snodove3 - who has had symptoms for 7 years but has just officially been diagnosed and would like to be able to talk to people without feeling like an outcast.
Ann Zimmerman - who would like to know if anyone has had lazer treatment for varicose veins and did it worsen WED/RLS symptoms.

We can relate to all of this, you are among fellow sufferers who understand what you are going through. Please ask questions, read all you can - knowledge about your condition is a great asset.

[Polar Bear]

16 April 2014
Welcome today to ---

joanmarett - who has had WED/RLS for 60 years and is always looking for treatments.
adamh - who seeks advice on WED/RLS and medication.
richviv - is looking for information and help to manage symptoms better.
sunsetnotary - who has found that medications have side effects and is seeking to learn of any other solutions.
sunny - who would like to learn from the community as well as share how they have been coping with the disease.
nickiwalker18 - who would like to connect with other people with WED and discuss medication and treatment.

Welcome to our discussion board. There is plenty of information here on the board, and please introduce yourselves, join a thread or start your own thread. We are all understanding of the horrible symptoms that accompany this disease.

[Polar Bear]

17 April 2014

Welcome today to --

frhinck - who has had WED/RLS and neuropathy for many years. The WED/RLS appeared to be under control with Gabapentin and Mirapex but this week hasn't been so good.

Sometimes our symptoms seem to go haywire and it's hard to find a reason for it. There's a great deal of information here on the discussion board and we look forward to your posts.

[ViewsAskew]

18 April 2014

doznutz has suffered with WED for approximately several years and needs to find new treatment as the explored options having been working.

[ViewsAskew]

20 April 2014

First, from Holland, we welcome Femke. Femke says that in Holland there is no organisation like this and the doctor doesn't have a clue what RLS/WED really is!

We hate to say it, but in the US, Canada, UK, and many other countries, the doctors do not know, either! We are very grateful for the WED Foundation in reaching out to doctors to help change that.

Also, we welcome lizziebeth13, who was diagnosed two years ago and reads and learns about WED as much as possible.

We are pleased to offer this discussion board to you - and all with WED - though we wish no one needed it. Let us know how we can help if you want, hang out, read, and hopefully you will find what you need here.

[Polar Bear]

22 April 2014

Welcome today to:

pquade - who has had WED/RLS for 20 years and is augmenting on current medication.
bat0705 - whose symptoms have gone into overdrive and has sought medical attention, and is seeking information and support.

Welcome to the discussion board, we are all sufferers and want to help. There is a lot of information here. Feel free to join a thread, or start your own thread. We look forward to reading your posts and doing what we can to help.

[badnights]

Welcome also to JudyC, who would like to 'meet' others and discuss coping with WED. This is a good place for that, so please make yourself at home. Browse around, post comments if you like, or start a new Topic devoted to a subject of your choice.