NEW MEMBERS JUNE 2014 - WELCOME

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Monday 2 June 2014

Welcome today to:
caramujo = who has suffered with this condition for some time and would like to connect with other sufferers.
gilley - who has suffered for many years and feels that medications no longer help in her daily struggle.

You will find a lot of information here. If you tell us a little about your symptoms and what you have tried for relief we will do our best to help. We are here even if you just want to have a rant about coping with this horrible condition.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Tuesday 3 June - welcome to
Frunobulax who has severeWED/RLS and wants to be with others who understand. I wish we didn't understand and that you didn't need others who did. Alas, we do understand and you do have it :-(.

And, Opalescence - who experiences WED as painful and needs to know how to make it stop hurting. Ask a question, start a new topic, respond to an existing one, read....let us know how we can help.

Welcome :-).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

4 June 2014

Welcome today to -

Joettehall - who has had WED/RLS for years and would love to have others to talk with.
BuckyBadger - who has a 4 year old son who is in the process of being diagnosed with RLS/WED/PLMD and is seeking advice.

We are here to do what we can to provide support and understand, join a thread or start your own.
Under the section Special Populations there are posts regarding children with WED.
Please feel free to ask questions.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

5 June

Welcome to papaswede whow has WED/RLS, wants to connect with others who have it, and is looking for hope.

Ah, hope. It ebbs and flows here - sometimes each of us has it, and other times each of us feels hopeless. At all times, we try to support each other - sometimes our members are the hope until the hope can again flow.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Friday 6 June 2014

Welcome today to:

Cmoore - who has been a sufferer for 7 years
ddanndeb - who has had WED/RLS since childhood and now thinks that narcolepsy may be developing, would like to talk with people who understand.
Kathyw - who is looking for personal experiences about how to deal with WED.
Arpit Nagbhidkar - who has WED, which is currently in remission (congratulations to you!).

Please look through the threads, there is so much good information and it does take some time to get through it. Start with the threads that appear most relevant to your own circumstances. We are here for support and please ask anything that is on your mind.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Saturday 7 June -

Welcome to kmb and Mocha123. Both want to be part of our community - to learn more, chat with others, find out what people are using, and so on.

You are both in the right place, I think. Let us know if you have something specific you want to know or talk about. Poke around, read new and old posts - hopefully you can find what you're looking for.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Sunday 8 June -

Welcome to mudslide, who augmented on pramipexole; an opioid isn't working as well as expected. mudslide, please do introduce yourself in the Just Joined or Pharmaceutical sections and tell us what you are taking, how long since you augmented, etc. We'll answer as best we can. Most of us eventually get it worked out - a few of us seem to have a harder time with it.

and to calliope, who wants to share ideas about treating WED. Welcome, calliope. We're looking forward to hearing more from you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Monday 9 June 2014

Welcome today to:

zlykken1 - who is tired of going crazy and of having everyone around thinking he/she is crazy.
ruth1026 - who would like to know what others do for relief when medications no longer work.
phillips2768 - has a lot of experience in dealing with WED/RLS and also would like to know how others deal with their symptoms.
calliope - would like to share ideas about coping with WED.

Welcome and we all want to help. All of us came here feeling desperate and needing support. Knowledge is a great friend. Please feel free to start your own thread or to join an ongoing thread.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Tuesday 10 June, welcome to:

Ali_Olivia - has a daughter with WED and PLMD and I has questions
mikeex99 - Learn and share information about WED
Mark Fan - who has identified what affects his/her WED and wants to share information

Share away! Ask questions! Everyone here is very helpful and understands what you are going through.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

On Wednesday, we welcome:

glfngrl146 - To share about how to treat and deal with WED

rpering - wants an alternative to pramipexole that allows rpering to fly an airplane according to current regulations

Hi - medication is working and I shouldn't type much or who knows what I might type! Please let us know if you have any questions.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Thursday 12 June 2014

Today we welcome -

sheilabug - who is suffering greatly from symptoms. It would be good if you made a post about your medication, perhaps start a thread. In particular, to clarify your dosage of medication. We are all here to help each other and everyone is a RLS/WED sufferer.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Welcome to Orrel, who likely has developed augmentation.

Orrel, from your description, it does sound like augmentation. Many of us here have gone through it - it's not fun, but we can provide our experiences and tell you what worked for us.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by ViewsAskew »

Today we welcome:

gracieland wants to learn more about medications that will not make WED worse and hear success stories.

PeaceAngel. who has had WED for 19 years and is fortunate to have a doctor who's helped create a helpful course of treatment.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Thursday 19 June 2012

Today we welcome newcomers:

greenbox - who has self diagnosed with mild RLS/WED and seeks information.
Claralutz - who wants to relieve RLS/WED which is continuing to get much worse.
creaselord - who wants to read and see what others do to ease their symptoms.

There is a great deal of information on all aspects of this disease. When you are ready please make a post or jump into an ongoing relevant thread, and tell us a little about yourselves, how you have managed to cope with your symptoms so far, and of course as as many questions as come to mind.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JUNE 2014 - WELCOME

Post by Polar Bear »

Friday 20 June 2014

Today we welcome -

26jackyQ - who has had WED/RLS since being 3 years old.
Please tell us your story, it would be of interest, especially to parents who believe their child may be suffering from this disease.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

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