August 2014

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Posts: 8798
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

August 2014

Post by Polar Bear »

1st August 2014

Welcome to day to ---

Toobizy - who would like to find out about vitamins, supplements and lifestyle. Also would be interested in others who use prescription medication.

Please look at the Non-Prescription, supplements section, ask any questions, and we will be happy to do our best to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 4

Welcome to

Trudyg -has just been diagnosed with RLS and wants to find more information about treatment and coping
missmichelle1932 - who has had WED for 25 yrs and wants to connect with others.

Please feel free to look around and ask questions. We are here to do our best to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 6

Welcome to

clackmann - who has RLS and it is causing quality of life problems.
chuas2 - who has suffered from Willis-Ekbom Disease since childhood.
gugabyte - have been suffering from RLS for about 20 years and is currently taking Ropinirole, 1.5mg/day. It is really encouraging to become aware of the attention that has occurred in the last few years. My object is to join and learn much more about my condition.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 16570
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: August 2014

Post by ViewsAskew »

Welcome to hollypond, who has WED and, as do all of us, needs all the help possible!

Welcome. There are many places here to find help and information. We're always here to listen, too.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 11

Welcome to

Willshake, who has had WED for years. Requip worked at first but after a few years RLS kept getting worse due to augmentation and is now trying to stop taking.

You will find quite a bit of help about augmentation and comments about trying to get off of a DA here on the board. Also, feel free to add a post to get help and support. That is what we are here for.

Sfin1000 who wants to learn more about WED.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8798
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: August 2014

Post by Polar Bear »

14 August 2014

Welcome today to brteyes_12 - whose mother and other family members have WED/RLS.

Many people find that there is a genetic tendency with WED/RLS. Your family is fortunate to have you show a positive interest in their condition.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16570
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: August 2014

Post by ViewsAskew »

Welcome today to shadsma, who was recently diagnosed and is looking for a cause and treatment options.

You may have primary, secondary, or of unknown origin. That's a good place to start. There are several Foundation bulletins and publications to answer some of your questions. You might want to start here: http://rls.org/about-rls-wed/frequently-asked-questions?

Do ask questions if you are ready. There are hundreds of existing posts with excellent info. Hope you find what you need.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8798
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: August 2014

Post by Polar Bear »

17 August 2014

Welcome to:
dgn329 - who is seeking support and information on alternative treatment and newest information.
If you look at the section Non Prescription Medication you will find information on alternative treatments.
viewtopic.php?f=5&t=4749
This link should take you to General Topics - Published Research, which could be a starting point regarding newest information. Take note there are several pages so go to the last page, first.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8798
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: August 2014

Post by Polar Bear »

20 August 2014

Welcome to Ramunas - who would like to find out about procedures and results. Please read through the threads and when you are ready please post and feel free to ask questions.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8798
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: August 2014

Post by Polar Bear »

21 August 2014

Welcome today to

kathleenbutts - who needs more information and support, and knows noone with WED/RLS.

We have a great deal of information throughout the threads. Perhaps you may want to start reading here in the Just Joined section. We are all sufferers here so when you are ready please ask questions, we are here to try and help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16570
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: August 2014

Post by ViewsAskew »

On the 21st, we also welcome Gemtwist7, whose symptoms have worsened recently and is looking for solutions.

We also welcome bmakla54, who has restless leg and Parkinson's disease and would like info on restless leg and treatment.

Lot's of info here in the threads. The "sticky" posts in the Just Joined sections have excellent information for a newcomer to learning about WED/RLS, along with ideas on how to deal with it. You can always jump in and ask a question - we all have it, too, and may have some ideas for you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 22

We welcome Geriharm back to the board. Geriharm has had RLS since 25 yrs of age and is now 58. Geriharm was on the the board years ago, but symptoms have gotten worse and now is struggling.

Providing support is the reason why we are here. Surf through the past discussion threads and post any questions you have or feel free to post to vent your frustrations if that helps.

We also welcome momworries. Her husband has RLS and one of her children has suffered so much with it that he is now trying to self medicate for this and his anxiety.

This is the place to find out more about this disease. If you cannot find what you need in past discussion threads, please feel free to post a question. The group is here to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 23

Welcome today to:

cousinarlo - who is interested in hearing other's experiences with RLS after dealing with it for over 10 years. While cousinarlo thankfully has Mirapex, at times it seems as though the disease is progressing and becoming more intense and/or frequent even with the meds.

crazylegs2 - who wants to be able to bond with a group of people who truly understands what we go through and to help maintain sanity with this disease.

Barbienightmare - who has been suffering with rls for a few years, the last few months have become quite frequent and unbearable. Barbienightmare has just been prescribed ropinirole and found the board while trying to find out more about rls and would like to also get some support.

Welcome to each of you. Feel free to look through all the threads and to post any questions. We are all here to share our knowledge and experience and also to allow each other to vent occasionally.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 24

Please welcome:

BOOBOOSAZZY, who has been recently diagnosed and suffered severe reactions from Requip. BOOBOOSAZZY wants to learn what others are doing to manage their symptoms, to learn as much about this disease possible and is interested in clinical trials.

janarlene, who has had RLS/WEDs for years and wants to know more about medications.

Welcome to the board. Please take a look at any past discussions that may seem interesting and feel free to post any questions you would like. As for Clinical trials, take a look at the Foundation's website where there is a webpage on Clinical Trials under the About WED/RLS pulldown.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: August 2014

Post by Rustsmith »

August 25

Welcome to

docbdvm, who has progressively suffered with RLS for 30 years and is looking for new ideas.

jimpeters wants to share information on treatment for RLS and to get the benefit of others' experience with different medications.

Please take a look through any existing threads that may seem helpful and feel free to post any questions. Hopefully you will be able to find a quite a few new ideas here.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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