Welcome New Members - February 2015

[Rustsmith]

Tuesday, February 3

Welcome today to

Liza, who had RLS it as child. It went away for years but now it is back and is getting worse with pain day and night. This results in far of getting in a car or plane.

Liza, many of us understand you situation. Take a look around to see if there is any information here that would help. Also, please post a message to let us know if you are receiving any form of treatment.

And to maryelizabethhopkins, who works at Willis-Ekbom.org and will be working with support group leaders.

[ViewsAskew]

Also on Tuesday, 3rd of Feb, welcome to

serena777, whose WED/RLS is affecting sleep and ability to enjoy/participate in activities in the afternoon and evening. serena777 wants to learn more about how others cope and what treatments are available.

and

SheilahG, whose WED became much worse after shingles and sleep is being affected, as well as not being able to sleep with spouse.

To both of you, please use the board however you like - read, poke around, participate in discussions, start a new discussion - whatever helps. That's why we're all here - to help and get help.

[Rustsmith]

Tuesday, February 3

Welcome to
SFernalld, who despite taking medication approved for RLS, I has not slept well for decades and therefore wishs to be informed and to share reliable information with my physician.

trevena-hindson, who has lost sleep to the point where she passed out and broke her pelvis. She cannot sit and read or do a crossword puzzle because her legs want to dance.

merwood, who is managing well thanks to a supportive husband, informed doctors and a strict diet.

and

Tac, who was head of the Support Group for Milwaukee and SE Wis for many years, and temporary chairman of the initial RLS Foundation committee to support support groups.

Take a look around to see if you find anything interesting. And please do not hesitate to post a note telling us about yourself, to ask a question or simply to vent.

[ViewsAskew]

Clearly, a lot of people saw the WED Foundation's Newsletter and info about the discussion board. This is a busy day!

Also, welcome to:
DeeDee67 who has WED.

trevena-hindson - who's WED/RLS is maddening at times and who loses a lot of sleep and had even fallen and broken the pelvic bone.

Claireduke - has WED and has taken meds for the last 4 years and wants to connect with others.

Ktsmeou - who is 91 and having a lot of trouble - WED has taken over and sleeping pills do not work.

missjo10 - who has had WED for 40 years; taking magnesium but it doesn't completely control it.

tng2 - WED has caused many problems because of sleep deprivation.

tom137 - has not had a good night's sleep in 20 years and do not like medication side effects.

crjones - finds meetings and plane trips intolerable.

whollyothers - WED/RLS has gotten worse recently - now taking Levodopa (time-release), which has lessened the symptoms, but continue to have a sleep pattern that is lousy.

Hlwest50 - who needs advice and med recommendations.


Please - look around, ask questions if you want, tell us about yourself - however you can best use this discussion board.

[Polar Bear]

And many more new members today - still Wednesday 4 February 2015

kathyyp - who is suffering fatigue and insomnia and feels very frustrated.

Wall climber - whose symptoms have got worse with age and is concerned about medications.

jnadrig - who would like to share a positive experience.

irishid - who has difficulties with medications, is miserable, and friends don't understand what it is like.

lorben1 - who has been taking medications for 15 years and sleep is a major difficulty.

xristina - who is 70 and has had WED all of her life and now has symptoms under control and is almost off all medications.

Usher - whose evenings are consumed by WED.

linneamontana - who feels there may be some augmentation. Sleep is difficult and would be intrested in alternative treatments.

Welcome everyone, please read as much as possible, ask questions, join a thread if you prefer.
Even if you just want to vent... we've all done it.
Just tell us how we can help.

[Rustsmith]

Wednesday, February 4

Welcome to

Harry, who is once again having problems again - perhaps with augmentation. He hopes to hear of other peoples experiences with the disease and treatments that have worked with them.

Take a look around. You will find quite a few people describing their experiences with augmentation. Also take a look at the documents in the links in badnight's and my signatures.

and

Itchabod, who has nearly constant signs and symptoms and other health problems, leave me feeling depressed. After many, many hours of no sleep he will fall asleep in public places, causing a wellness check to be done by someone, an embarrassment for me.

Take a look around to see if you can get any ideas on treating WED. If you do not find what you are looking for, please post a note so that we can help.

[Rustsmith]

Thursday, February 5

Welcome to

IThinkImInTorture, great name. Torture is taking 450mg of Lyrica and it doesn't help with getting up immediately after falling asleep. Torture is also going to start seeing a chiropitist to see if this is a pinched nerve that gets pinched when I relax upon falling asleep.

Rose, who wants to learn more about RLS, the medication side effects and which medications are best

Gloriavee, who has not seen much improvement in 15 yrs, even with prescription medication and doctor's help and is curious how others find improvement.

SuzanneYoung, who finally realized she was experiencing same fidgety-ness as her father and started using frequent hot tub baths for comfort. She is now on medication for RLS and has more and more questions for the long term.

Take a look around to see if there is anything useful to you. And please post a note introducing yourself and asking specific questions about where that we can help.

[ViewsAskew]

Also on Thursday, welcome to:

kimmiej62 - who has had WED for many years and many family members also have it. (Same with my family!)

[Rustsmith]

Friday, February 6

Welcome to

Sandra Lee, who is weaning off pramipexole and starting on gabapentin 100 mg, which doesn't seem to be working just yet.

Take a look around. You will find plenty of discussions about switching from pramipexole to gabapentin. The 100 mg seems quite low, so maybe you just need more for it to become effective.

and

Vital Tones, who have developed a mobile app as a treatment for Restless Leg Syndrome (RLS) and need more testers to evaluate their product.

[ViewsAskew]

Saturday - 7 of February, welcome to:

Daniel and MrsMJ. Both have WED and Daniel specifically wants to learn from others on the forum.

Take a look around, post if you want, read old posts - whatever is helpful to you.

[ViewsAskew]

Sunday - 8 of February, welcome to:

rayray, who has WED/RLS wants to be around folks who understand and who might have some helpful ideas on how to cope.

rayray, lots of people here who understand and oodles of hints. Start with the post in my signature and then either read other posts or ask some questions.

[Rustsmith]

Monday, February 9

Welcome today to

Smh221250, who has had to switch drugs many times in the last 18 months either because of augmentation or severe side effects and is now desperate to find a medication that works for more than a few weeks.

Many of us understand your situation. Take a look at the prescription drug section for more information. Also, please feel free to post a note with more details of what has not worked so that some of our members can be specific with their suggestions.

and to

Kmsanjabi, who finds that RLS keeps her from movies, the opera, overseas and long air vacations. She has had RLS since 2005, and also fibromyalgia since 1991, and small fiber neuropathy since 2005.

Take a look around and hopefully you will find something that will help. And please feel free to post a question or comment.

[Rustsmith]

Tuesday, February 10

Welcome to

justwantsleep, who has always dealt with insomnia, & the WED has added to it is torture. Most mornings justwantsleep wakes up exhausted after only being able to grab a few hours sleep.

Take a look around to see if any of our information is helpful and please feel free to post a note describing yourself and whether or not you are currently being treated for WED.

and to

plefev, who must always have medication because without it, plefev cannot not sleep and without sleep the quality of life is awful.

Yep, that pretty much describes WED for all of us. Take a look around to see if there is anything helpful and post a note letting us know more about you.

and to

Leena, who is a board member of the Swedish association of WED (former RLS), wishes to share some thoughts and issues we discuss in Sweden and copes with WED rather well with Sifrol.

Welcome Leena, we look forward to hearing about issues from the Swedish association and hopefully you will find some things here that you can take back to them.

and to

chipbutty, who complains of poor sleep, daytime fatigue and lack of energy.

These are symptoms that are familiar to us all. Please post a note introducing yourself and let us know how we can help.

[ViewsAskew]

Also on Tuesday, welcome to:

sulgin, who has daily symptoms

and

Gordon, who has severe symptoms.

Please, poke around, share if you like - we're here to offer support and credible information that hopefully can help.

[ViewsAskew]

On Wednesday, 11 of January,

Welcome to:

Alcyon - who loses sleep every night due to WED/RLS. After surgery, it's gotten much worse.
Yes, for some reason surgery causes it to worsen for many of us. Post about it or search on the word surgery. You'll find many people who've posted about it.

DSK99 - who has had WED for a long time, but it's recently much worse.
DSK - tell us more. Maybe we can help you figure out whey.

WBruce - who has severe WED and who is having difficulty with medication - needing more, but feeling side effects.
Please start and new topic and tell us more. We might be able to help you figure out what is going on.