WELCOME NEW MEMBERS MARCH 2015

[Polar Bear]

2 March 2015

Welcome our first new member of the month.

Annethewarrior - who is tired, not sleeping, work and personal life are affected and it is wearying that people say 'there is nothing wrong'.

Make a start with a good read through the Just Joined Forum and feel free to ask questions - we want to help.
Tell us of your journey with WED/RLS and what you have done to treat symptoms.

[ViewsAskew]

Welcome to dholmes60614, who has WED/RLS and has found something that works.

So happy something is working for you. We hope it continues for a long time. Please post about it in the appropriate section and let us know what is working for you.

[Rustsmith]

Thursday, March 5

Welcome to

mrlton, who has had RLS from boyhood and sleep problems for his entire life. Study and office work are hampered. Doctors have prescribed psychological medications.

Please take a look around and find out what you need to know about WED/RLS. Also please feel free to tell us a bit more about yourself and the medications that you have been prescribed so that we can offer more specific suggestions about where you can look.

[Rustsmith]

Saturday, March 7

Welcome to

kbrn63, for whom sleeping has been a challenge and sometimes problems occur in the movies or after sitting for a while.

Everyone here can certainly relate to all of those problems. Take a look around for whatever information might be useful to you. If you don't find it, please post a question or comment.

and to

swanbayer, whose WED occurs all day long. swanbayer was also diagnosed with Guillain Barre Syndrome 3 years ago and life has become a constant battle of trying to find comfort.

There are many of us whose WED symptoms can occur at any time of the day. Are you taking any medication for your WED? Please post a note and let us know a but more about yourself so that we can point you in the right direction for information and/or help.

and to

carmensandiego, who was diagnosed over 5 yrs ago, wants to learn from other's experience and share her own. Issues include staying at home in the evenings & a truncated social life. Sleep is also a challenge.

There area all common themes you will find here. If you do not find everything you are looking for, please feel free to post a question or comment.

[Rustsmith]

Monday, March 9

Welcome to

Mattituck, who Ihas had WED for more than a year. Mattituck's condition is fairly severe, generally preventing me from getting adequate sleep. Accordingly, his quality of life and relationships with my wife and children are affected. He is taking gabapentin, Mirapex and Klonapin, which help somewhat, but the "creepy-Crawly" symptoms persist. His family doctor has suggested finding a specialist.

Please take a look around the various forums to see if you can find answers to many of your suggestions. If you cannot find something, please post a question or comment so that we can help.
Since one of your issues is finding a specialist, I think that you will find quiet a few discussion threads on that topic, which may or may not be useful to you.

[Rustsmith]

Tuesday, March 10

Welcome to

Tonofit, who has a suspected diagnosis of RLS, needs to put together a plan and make some lifestyle and living changes to deal with family.

You should be able to find a great deal of information to help you with those changes here. If you don't find exactly what you need, please post a question or questions so that we can help you with those changes.

[Rustsmith]

Wednesday, March 11

Welcome today to

attyweiss, whose WED has caused discomfort and anxiety. It has interfered with attyweiss's sleep.

Take a look around to see what information that we offer could be of help. You will find a number of discussions about anxiety and sleep issues. If you do not find what you are looking for, please feel free to post a question.

and

Marthasue, who needs the support and would like to know current treatments for RLS.

Also today we welcome@ -
dhanna318 - who has severe WED/RLS and is intrested in support and in the experiences of others.

This is the place to get support and information on treatments. Please feel free to add a post of any questions that you cannot answer from the existing information.

[Rustsmith]

Wednesday, March 11 - Continued

jillkyvig, who was diagnosed with RLS in 2001, after suffering with symptoms for many many years. She has been on Mirapex for most of that time and is experiencing a lot of problems with augmentation with a potential change to Horizant.

You should find a lot of information here about both augmentation as well as the use of gabapentin and Horizant. If you have any questions, please feel free to post them.

maryellenreed, who suffers with RLS and jerking and has not gotten much help from doctors, even those who claim to be specialists.

As you will see from reading of other member's experiences, you are not alone in your problems with doctors who do not understand WED/RLS. If you do not find the information you are looking for, or simply want to rant about your doctors, please start a new post.

[Rustsmith]

Saturday, March 14

Welcome to

kjrestless, who rarely gets more than 3 hours sleep in a row, and 5-6 hours per night. She is transitioning to a different drug in hopes of better relief, but so far is in excrutiating discomfort every night.

Take a look around to see if you can find the information you need. If you do not find it, please post a note telling us about yourself and the treatments that you are transitioning from and to.

[Rustsmith]

Sunday, March 15

Welcome to

tlradcliffe, whose WED leaves here tired and exhausted. tlradcliffeI recently participated in the Hopkins glutamate research study and has a follow up appointment with Dr. Early in April.

FIrst, thank you for participating in the study at Johns Hopkins. Many of us wanted to participate but were not able to be included in a study that could change the way that WED is viewed and treated.
So, take a look around to see if there is any information that would help you. If you do not find anything, then please post a note with your question.
Finally, please post a note and tell us about your experiences with participation in the study.

[Polar Bear]

Sunday - 15 March 2015

Welcome:

legsarebuggy - who needs medications when seated for any length of time and whose sleep is also interrupted.

We all understand exactly what you are describing. take a look around and in particular at the Just Joined Forum. Any questions, just ask.

[Polar Bear]

Monday 16 Marach 2015

Welcome today to:
mmchris - who is suffering from WED symptoms and nothing is working.

If you tell us a little about how you have been coping so far, what you have been doing to help symptoms, we will try and help.

[ViewsAskew]

welcome, Tuesday 17th of March:

Ak4482 - who has WED/RLS and is drowsy during the day. Also can get symptoms during the day when standing too much.

Please introduce yourself and tell us a bit about what you've tried. We can help point you to alternate options.

[Polar Bear]

Wednesday 18 March 2015

Welcome to:

faith78746 - who is a WED/RLS Foundation employee. Welcome to the Discussion Board - we hope you find it informative.

[Rustsmith]

Friday, March 20

Welcome to

Mary Catherine II, who just realized why she has not been able to sleep in ages.

Take a look around to find out more about WED/RLS. Pay special attention to the threads that have suggestions about finding and talking to a physician. If you have any questions, please feel free to post them so that we can help.