NEW MEMBERS JULY 2015

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Posts: 8823
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

NEW MEMBERS JULY 2015

Post by Polar Bear »

1 July 2015

Welcome today to:

Lisa43 - who has severe RLS and is using pramipexole. Her quality of life is greatly affected and she would like to switch to another medication.

If you go to Just Joined - 'A Good Place to Start' you will find lots of good information. If you'd like to tell us how you are getting on and what you do to try and relieve symptoms we will try to help, feel free to start a thread.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Posts: 16583
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JULY 2015

Post by ViewsAskew »

Also on 1st of July, 2015:

drliston, who has sleep deprivation and has needed to change medications periodically because of augmentation, loss of effectiveness, and side effects.

and

hjanice@me.com, who has RLS/WED since elementary school and it makes everything so hard.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8823
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JULY 2015

Post by Polar Bear »

5 July 2015

Welcome to:

edelman2 - who had RLS begin last week and would like to find answers.

I'd suggest you start on this Just Joined form.... at the top there is great deal of information. Please also feel free to join a thread, or start your own thread to ask any questions.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8823
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JULY 2015

Post by Polar Bear »

Sunday 5 July 2015

Welcome today to:

needhamal - who is finding RLS debilitating, sleep is compromised, all contributing to depression. Augmentation has also been experienced and current medication is causing daytime sleepiness.

Please post and tell us of your RLS history. We are all sufferers and have experienced most of what there is to experience. We want to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

and to

sagani2, who was just diagnosed with rls last week and in interested in what others are going through and any advice or input they can share.

Take a look around for information, starting with "A Good Place to Start" in this forum. Also, we are a sharing group, so please post a note telling us about yourself and you can be certain that you will get a replay (or more).

and to

18jeffries, who has RLS/WED and so does her dad. Although hers is controlled with medication my dad is struggling to control his.

Take a look around to see if you can find anything to help your dad. If not, please post a note telling us about the two of you so that we can offer some suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Monday, July 6

Welcome today to

Clif1961, who cannot get a decent night sleep, whose whole body has to jump around so he stays frustrated all the time.

Those area common complaints from all of us. Take a look around to see if you can get some ideas and please feel free to post a note telling us about yourself and how we might be able to help.

and to

Tina P, whose has caused distress during times such as in an airplane, movie, theater or long car ride. Now, her major issue is that it interfere with sleep.

Tina take a look around, especially the thread "A good place to start" at the top of this forum. If you do not something you think would help, post your question and we will try to offer some suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16583
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: NEW MEMBERS JULY 2015

Post by ViewsAskew »

Also on Monday, 6 of July - welcome to

marilus48, whose sleep is disrupted and is kept up at night.

Yes, indeed, you are in good company, though I wish it weren't so. Take a look around and if you want, introduce yourself.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Tuesday, July 7

Welcome to

alleytremblay, who wants to share views on the disorder and life time experience.

We look forward to any posts with information that you care to share.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: NEW MEMBERS JULY 2015

Post by badnights »

Welcome to dianestar, who has to take medication every 3 hours and needs our help.

Please tell us your story, dianestar. There is a lot of knowledge here, and I am sure some of it will be helpful for you.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Thursday, July 9

Welcome to

Chiara_RLS, who is with the RLS Foundation and would like to participate in the discussion.

and to

Mert, who had had RLS for almost 10 years and is having problems sleeping.

and to

dnet, who has issues with insomnia that are causing depression and which is taking a toll on her marriage. She has chosen to take hydrocodone at night to for control and Vyvanse during the day for energy. No one understands but my doc and my husband of 32 years.

and to

inna, wants more information and support from others.

Mert, dnet, and inna, please feel free to take a look around to see if you can find any ideas that help. Feel free to post a note asking any questions or simply to vent frustrations. You have definitely found a group of people who fully understand your situation.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

and number six today

Please welcome

starlioness, who has been dealing with RLS for about 4 years now and life is a mess.. She is looking for support and other options with or without medicine to help with my symptoms

Take a look around, starting with "A Good Place to Start" in this forum. If you don't find the type of options you are looking for, feel free to post a question for us.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Friday, July 10

Welcome today to

MamaB55, who has trouble sleeping. Car and plane trips are practically unbearable. She also kicks her husband and pets while sleeping.

There are all things we can relate to. Take a look around. You will find some discussion of ways to cope during plane rides and discussions of PLMS (kicking your husband while asleep). If you have any questions, please feel free to ask.

and

Dougw, who was diagnosed with RLS in 2008, has been going though treatment for Hep C and needs information about drug interactions.

Dougw, take a look around and please post a question with the details of your situation so that our members can provide comments.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Saturday, July 11

Please welcome

Lhall4770, whose RLS is so severe that it is causing memory problems from the lack of sleep and this is impacting work.

Feel free to look around for ideas and please post a note telling us a bit about yourself and what you are doing to control your RLS/WED so that we might be able to offer some suggestions.

and to

prpl luv, who needs increasing amounts of medication to control the symptoms and now the meds are causing tiredness. So, prpl luv has to sleep time around the symptoms.

and to

lolercoaster, who has RLS/WED and it makes it hard to sleep.

and to

Cmm3mm7, whose life is miserable because of RLS/WED - can't sleep at night or sit in a chair.

Please look around and then post a note telling us a bit about yourself and, if you want, about your current treatment. We all understand how difficult RLS/WED can make like. We're happy to help in any way we can.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8823
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: NEW MEMBERS JULY 2015

Post by Polar Bear »

13 July 2015

Welcome today to:

gsurpur - whose life has been made terrible by RLS. gsurpur has found that iron tablets help symptoms.

Please check out the Just Joined section. When you are ready please feel free to start a thread and tell us a little about your life with RLS.

and

Annis DInnerman, who wishes to exchange experiences with other members
Please post a note telling us about yourself and about your RLS/WED interests.

and

Crazylegs16, who has RLS 24/7 and is tired all the time. Crazy wants to talk to others who know about going thru augmentation.
Please post a note telling us about your situation so that we can share.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6514
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: NEW MEMBERS JULY 2015

Post by Rustsmith »

Tuesday, July 14

Welcome to

MaryAnneW, who is miserable and needs support and information.

Take a look a the discussion at the top of this forum titled "A good place to start". Then look through the rest of the discussions here to see what you can fine. Also, please feel free to start a new topic by introducing yourself and asking whatever you wish.

and to

Joegoldston, who has had RLS for 40 years, has been through many of the treatments and has been anywhere from fine to suicidal in the psych ward.

Welcome to the group. Take a look around and feel free to jump into any of the discussions or even start something new by introducing yourself.

and to

Cheriann, who has suffered with RLS for 33 years! It has affected her sleeping and limits activities like family outings, going to the movies, watching TV

All common complaints, so we all know what you are going through. Please feel free to look around for ideas or to post a note asking questions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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