WELCOME NEW MEMBERS - AUGUST 2015

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Sunday, August 2

Welcome today to

cherylbrowna2, who has had RLS for 25 years. She has had periods where the medication has worked well and kept the symptoms under control. But is struggling right now, the medications have become less effective and getting a good night's sleep is often difficult.

I sounds like you may be experiencing augmentation with a dopamine agonist drug. Take a look through the section on Augmentation for more information. And feel free to post a new note with any questions or simply join in one of the discussions.

Also:
bfg1946 - who was diagnosed with RLS 2 years ago and although using medication it is not fully effective. bfg1946 is seeking the experience of others on how to manage RLS.
Please look in the Just Joined section and ask questions. We will try to help.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Tuesday, August 4

Welcome to

rebcrom, who has suffered from rls since childhood. Her father had it and so does her oldest brother. Her rls is every night and 5 nights out of the week it is severe. She gets about 1 to 3 hours sleep on those nights.

Take a look around and see if there is anything that helps. And please feel free to jump into any discussions or start a new one with a question, a comment or even a note to introduce yourself.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Polar Bear »

7 August 2015

Welcome today to:

Eddie - who is on dialysis and suffering from RLS 24/7. Greatly sleep deprived and needs help.

Go to the forum 'Special Populations' and do a search for kidney disease, also for dialysis. There are some posts but not a lot. Please make a post or start your own thread and tell us about your current RLS treatment and we will try to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Saturday, August 8

Welcome to

Bats&Hummer3, whose life sleep has contributed to emotional lability. It has also caused her to fall asleep at a new job and affected her ability to process during 2 job interviews.

Take a look around to see if there is any information on any of the threads that is helpful to you. If you don't immediately find what you need, post a note describing yourself and asking for whatever form of advice that you need.

and to

poolmans, who wants to learn and share after just having found relief after 17 yrs of RLS.

Take a look around, you should find plenty of useful information. And, we look forward to learning about your newfound status.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Monday, August 10

Welcome to

kawika, who may have RLS. kawika has presented similar symptoms since early adolescence and is interested in increasing the sleep quality.

Take a look through "A Great Place to Start" at the top of this forum to get an idea of whether you really believe you have RLS. Then look through the rest of the forums to find information that might help your sleep issues. And please feel free to post any questions that come up during your journey through our data.

and to

Mar95, who has had RLS for about 20 years, has been on several medications and has augmented on all of them. So now she wants to learn some new ways of coping.

Take a look through the Physical Treatments and Non-prescription medicine forums to get some ideas, and please do not hesitate to post a note with any questions or comments.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by ViewsAskew »

Welcome to

chamberstrek, whose husband has had RLS/WED since he was a child. The symptoms have just gotten worse over time, so he rarely gets any sleep.

Take a look around, maybe start with the A good place to start: Managing RLS/WED post in the Just Joined section. Please post if you have questions. Also, if your husband has or is taking a dopamine agonist, such as ropinerole or pramipexole, look into something called augmentation.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Thursday, August 13

Welcome to

heebiejeebie, who has struggled with RLS for years. It has gotten worse with age and almost drives heebiejeebie insane at times.

and

Dawnagal, who has had symptoms for many years and wants to have a connection to people who understand and can relate.

Indeed! Take a look around to see if you find something helpful and "A Great Place to Start" at the top of this forum is just that. If you don't find what you are looking for please post a note with your questions or comments.

and

OliveFox, who has been sleep deprived for years and has spasms in the body when trying to sleep.

Do take a look around and see what you find that helps. You might want to go to "A Great Place to Start" at the top of this forum to start. If you don't find what you are looking for please post a note with your questions or comments.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Friday, August 14

Welcome to

segthree, who has had RLS for nearly 40 years and it seem most of segthree's free time is getting treatments that might lessen the symptoms.

Take a look around and see if you can find something new that might help. If you do not, please post a note so that we can offer some suggestions.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Sunday, August 16

Welcome to

charwil, who has a recent diagnosis of PLMD, with sporadic RLS and is interested in finding out ways of managing the condition to maximise sleep and minimise disruption.

Take a look through the discussions to find what you need. If you are not on medication, then the Physical Treatments section would be of interest for ways to cope. If you don't find what you need, please post a note telling more about yourself and what we can help.

and to

samir, who suffers from moderate RLS, wants to learn about treatment, and wants to spread awareness in India about this disorder

Take a look at "A Great Place to Start" at the top of this forum to learn about treatments and coping strategies for moderate levels of RLS. If you do not find what you are looking for, please feel free to post a note with a question or comment.

and to

Frea, whose RLS limits day to day enjoyment and normal participation in life and lack of sleep and particularly augmentation have become a problem.

Take a look around to see if you can find any useful answers and then please feel free to post a note asking about whatever you did not find.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Monday, August 17

Welcome to

daesue, who has had RLS for almost 50 yrs. daesue is currently using klonipin , but would like to either get off, but have something else that works, maybe find a new doctor as well.

Take a look through to posting "A great place to start" at the top of this forum and also at the information in the prescription drug forum. If you don't find what you are looking for, please feel free to post a question.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Polar Bear »

Wednesday 19th August 2015

Welcome to:

Megan - who finds it difficult to fall asleep and to get a good night's sleep.

pbweave - who with rls, and withdrawal, is feeling depressed. Suffering from significant sleep deprivation and daytime sleepyness.

Mark37 - whose sleep is disturbed, somedays/nights are worse than others.

WR Nightwalker - who has become an anxious, nervous, wreck and who can't seem to find any relief.

Please take a look at the Just Joined Section to start with. We are happy to have you with us. Join a thread or start your own, telling us a little of your RLS history.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by ViewsAskew »

20th, August 2015, we welcome:

LalaCest, who has had symptoms a long time, and now a daughter has it, too. Just found out a year ago that medications could help.

Blueh2ofalls66, who was diagnosed with rls at age 12 and is now 48, has tried and failed many therapies and so would like to be able to connect with others in similar situations.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Rustsmith »

Saturday, August 22

Welcome to

momzono, who is currently going through RLS/WED diagnosis in a hospital.

Take a look at the topic "A good place to start" at the top of this forum. If you have any questions, please feel free to post a note and we will try to answer them.

and to

lynellen, whose RLS/WED has forced her to stop work and not to socialise as she can't sit down for long and can't stand for long. She now hates cinemas, restaurants, car drives, which she used to love.

and to

Tulab, who has had RLS/WED for many years and was misdiagnosed in the past. Has had some difficult circumstances because of it - as well as have family members.

and to

mhalusic. who has had RLS/WED for a couple of years and symptoms are now under control, but with considerable effort. Looking for other solutions and to share experiences.

Please read through as much content about treatments and coping strategies as you can. If you have any questions, please ask. Also feel free to post rants or requests for support. We understand and are here to help you in any way you need.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Polar Bear »

Sunday 23 August 2015

Today welcome to:

NJW - who has had RLS since being 15 years old. Has used medications but the condition is getting progressively worse and bringing great misery.

and

bird, who wants to share information and see what is working for others.

Please start with the Just Joined Section. NJW, please read up on Augmentation also. When either of you are ready please tell us a little of your life with RLS and how you have been coping.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: WELCOME NEW MEMBERS - AUGUST 2015

Post by Polar Bear »

Monday 24 August 2015

Welcome today to -

aturner0530 - who has been suffering for many years, has used DA medication and is now getting worse. Noone in the family understands.

Please read the Just Joined section. Also consider that you may be augmenting. If you start a thread, or join a suitable thread, please tell us a little and we will try to help. It is very difficult for a non sufferer to imagine what the symptoms of RLS/WED feel like. There have been posts in the past dealing with this.

and to

Zubaida Masood, whose 6year old daughter is suffering from RLS and is unable to get help for RLS in Pakistan.

Please take a look through the Special Populations forum to get an idea of what can be done for pediatric RLS. Also please understand that getting help for children is challenging even in the West where it occurs more frequently in the Caucasian population than in Asia. Finally, if you have any questions, please feel free to post a note to ask them. That is why we are here.

and to

JayEarley, whose RLS makes it difficult to get enough sleep. He is on Ropinirole, but is starting to need more or it, and so is looking for other treatments or ways of handing RLS.

Take a look through the forum on augmentation, it may be particularly useful. And please do not hesitate to ask any questions or join in on any discussions.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

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