Welcome New Members - September 2015

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Welcome New Members - September 2015

Post by Rustsmith »

Monday, September 21

Welcome today to

corky3333, for whom after 20 years the pain has gotten unbearable. He lost eyesight in one eye because the doctor believed the normal procedures would take care of the R.L.S. In the middle of the operation he started to move and afterwards was kept in the hospital (in great pain) for over two hours because they could not get vitals. Is there some kind of letter or other ID to force the doctors to consider R.L.S when operating?

The RLS Foundation has literature on RLS considerations during surgery. There are several pamphlets in this area that include information to cover with the anesthesiologist. But you need to be a member to access these publications in the Members Only Publications. If you have any questions that we might be able to help with, please feel free to post a question.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8799
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: Welcome New Members - September 2015

Post by Polar Bear »

Tuesday 22 September

Welcome today to:

Judizann - who feels exhausted, is unable to work a regular job and cannot afford medication.

Rangerfan51 - who has inherited RLS/WED, is suffering side effects of medication involving limbs. Has suffered for all of his/her life.

We can all sympathise with you and understand how you feel. 'Please take a look at A Good Place to Start - Managing RLS/WED' at the top of this Just Joined section. We look forward to reading your posts/comments when you are ready.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Welcome New Members - September 2015

Post by Rustsmith »

Wednesday, September 23

Welcome today to

slimcool, who is 80 years old and has had RLS since the teen years. Until seeing it discussed on TV, she did not know it was a condition or that anyone else had it. It is now so bad that sometimes it affects her arms and torso. She has tried 4 prescriptions and have had adverse reactions to all and so wants to find alternatives.

and to

bmckeonjr, who wants to learn how other people are treating their RLS/WED and needs more help than the doctor is offering.

Take a look around, particularly to "A Good Place to Start" at the top of this forum. You may also want to check out the Non-Prescription and Prescription drug forums. If you don't find exactly what you need, please post a note telling us about yourself and asking for whatever that you need.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 16571
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Welcome New Members - September 2015

Post by ViewsAskew »

Thursday, 24th of September, we welcome:

MQuilt, who has the common symptoms of WED/RLS - difficulty sitting in the evenings. MQuilt also may have PLMs, as he or she wake during the night with involuntary movements in the legs.

Take a look around - the post in this section called 'A Good Place to Start" might provide some help. If you have questions, please ask. Or just post and vent.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Welcome New Members - September 2015

Post by Rustsmith »

Friday, September 25

Welcome today to

blueyed1976, who began having rls symptoms a year ago related to kidney issues. She is taking potassium twice daily and tried magnesium, but it isn't helping. So now she needs a non-prescription way to control her RLS.

Take a look through both the non-prescription drug forum and the physical treatments forum to get some ideas. You might also check the "Good Place to Start" note at the top of this forum. And please feel free to post a note asking any questions you wish.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Welcome New Members - September 2015

Post by Rustsmith »

Monday, September 28

Welcome today to

Lbrry, who has suffered from rls for over two 30 yrs, but cannot get Dr's to understand the severity of it. It occurs each nite and the medications have stopped working.

Take a look around to see if you can find any information that would be helpful, starting with the Augmentation forum. Take a look at the topic at the top and the one on the IRLSSG document may be helpful in discussions with your doctor. And feel free to ask any questions that may come up.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: Welcome New Members - September 2015

Post by Rustsmith »

Tuesday, September 29

Welcome today to

Sleepless in Ohio, who is a 12 year sufferer of RLS with the past few years becoming increasingly worse. Sleepless is not able to get much restful sleep anymore and is extremely fatigued on a daily basis which has affected productivity at work and at home.

and

cloverleaf, whose neurologist has diagnosed as having RLS but the symptoms aren't typical. cloverleaf wants to hear from others if they have similar experiences.

Take a look around, starting with "A Good Place to Start" at the top of this forum. Then please feel free to post any questions that you have.

and to brezzy, who has had rls for 10 years with it starting after heart surgery. In the last few years it is gotten much worse and has really affected life and now breezy has come to the board for ideas and help.

Take a look at "A Good Place to Start" at the top of this forum as well as the discussions in the other forums to get ideas. If you don't find something helpful, please feel free to post a note asking any questions you have.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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