Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Vidman64 - who dreads going to bed, stays up very late to hope to get 4 - 5 hours sleep. Now retired and feels would now be unable to work. Please read the Just Joined - A Good Place to Start - ---- If you then start a thread or join a relevant thread, we'd love to hear how you've been coping.
JigDancer - is looking for non pharmaceutical solutions for chronic RLS/WED. It depends how severe your symptoms are, look in the Physical Treatments section - and if you make a post we'd try to help. This can be a difficult one but there are possibilities.
Stainless - who was on clonazepam for twenty years and is now trying gabepentin, which worked at first, but isn't anymore. Do post about it and let us know what's happening. We'll do our best to help.
Twentyfourseven, who has had RLS for four years and is not on Tramadol 2X/day along with Percocet 5mg 2X/day and it's not enough. The impact is fear of job lose due to inability to concentrate and speech is becoming worse and even 24's marriage is affected.
Take a look around starting with "A good place to start" at the top of this forum. If you don't find the help you are looking for, please post a note with any questions or comments you feel relevant. Even rants of the unfairness of RLS are acceptable if it help you feel better.
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abrennanmagic, who has been struggling for years with this and takes Roprinerol and now it is getting earlier and occasionally is in the shoulders and arms.
Take a look through the information in the "Topic of the Year" forum on Augmentation. Your brief description sounds like you may be in the early stages. If so, it is something that you need to discuss with your doctor. And please feel free to post a note asking any questions. Augmentation is a common issue discussed on the board and can be a major problem.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
fountainwoman, who has severe chronic RLS and has been taking Mirapex and Sinemet and wants to find out more about Seratame.
Take a look through our Non-prescription Medicines forum. There have been several members discussion their experience with this product.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Hubert Courtais, who is now on dialysis 3 timed a week and has had HIV since 1999 and meds since 2012 and now wants any help to get better?
Hubert, please post a note telling us about your RLS/WED so that we can provide any info that might help.
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lav4, who has had RLS since she was a little girl. It wasn't a bother for many, however, she just suffered a lelg injury and is now experiencing severe leg spasms at night. So she wants to connect with anyone else who might be experiencing the same thing.
lav4, please post a note describing your problem so that one of our member might be able to respond.
Also welcome to: Smitty - who has severe RLS and is augmenting. Smitty has been a sufferer for 20+ years and her family doctor doesn't believe the literature from the Foundation.
Smitty, please make a post telling us a little of your RLS history.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
crazylegs0004, who has SEVERE RLS all day and all night and affects arms and legs. Narcotics provide relief while nothing else has.
Crazy, please feel free to post a new note introducing yourself and asking any questions that you have. Support is a big part of why we are here.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
kathryn - whose symptoms mean it is difficult to travel, difficult to take trips espectially as it is impossible to stay in bed at night.
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Mrickschf, who find RLS very uncomfortable and debilitating.
Also: Everymom - who has had RLS for a very long time, it is getting worse, and there are family members who also suffer.
River Rat - who is sometimes very depressed, very tired, and in a daze. Would love to be able to relax and sleep.
nite sewer - who has had RLS for 10 years and has been to many doctors and tried many medications. Lack of sleep has prevented employment and has fallen asleep during the day without realising it.
Oshkosk - whose RLS has made many nights into a nightmare of sleeplessness and hopes to find how others cope and what medications work for them.
megop - for whom RLS dominates life because it prevents relaxing at a meeting, performance. concert, film...anything that requires a lot of sitting.
wayne gilbert, who at 78 years has had RLS progress rapidly and it is showing early augmentation in my arms.
jdc55, who has had RLS for years but in the past year or so it has become unbearable. She is looking for more information and specifically wants to know if others legs are sore the following day after a bad night with many RLS incidents.
Walker, who has had RLS for a lifetime and finds it makes sitting and watching TV, reading, trying to sleep, and flying a challenge!
Take a look at the 'Just Joined - A Good Place to Start' which is very informative. If you tell us how you deal with your RLS symptoms and previous treatment we will try and help.
Gerhard, who has been suffering from RLS for 20 years.
Take a look at the 'Just Joined - A Good Place to Start' which is very informative. If you tell us how you deal with your RLS symptoms and previous treatment we will try and help.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Roe, who has had severe RLS since age 8 years old and is now 44. Roe's RLS starts in the arms and shoulders and then it escalates into severe pain with the tightening of my throat and then travels to the legs. Roe is taking Tramadol for the RLS, cannot make it a day with out it and wantw to figure out if there is anything else out there that will help.
Take a look at "A good place to start" at the top of this forum. You should also take a look through the Prescription Medications forum for discussions of alternatives to Tramadol. Tramadol is the one non-dopamine med that can result in augmentation, so you might also want to review the discussion in the Augmentation forum to see if any of that sounds familiar.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
ShunterAlhena, who is worried about having RLS but is not certain about having it.
Take a look at "A great place to start" at the top of this forum. It should provide you with the info that you are looking for. And feel free to post a note asking any remaining questions.
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Lindy_Lou_0603, whose RLS is interfering with getting a full nights sleep and is also causing problems by keeping her husband awake. This can then cause problems in our marriage.
Take a look at some of the info at the top of this forum. You might also be able to find something useful in the forum on Relationships. If you don't find what you need, please feel free to post a question so that we can try to help.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Bettye = RLS/WED rules her life, she has little sleep and no medication has been successful. She feels RLS has contributed to a failed surgery.
Please read our Just Joined Forum - A Good Place to Start. Please make a post or start a thread telling us a little about your history with RLS, everyone here is a sufferer and we do try to help.
spiderlegs, who suffers from pain but found relief and wants to share.
Please take a look at the forum rules and then post a note telling us your story. We can always hope to learn something new.
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kwardt, whose husband twitches and kicks all nite and she needs to help him get rest.
Sounds like he has Periodic Leg Movement during Sleep, or PLMS, which frequently occurs along with RLS and is often treated the same way. So take a look at "A Great Place to Start" at the top of this forum and the do a search on PLMS to see if there is anything that helps. And feel free to post a message if you don't find what you need.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Waterlilly, for whom RLS has placed a curse on her life. It causes such grief and uncontrollable chaos through the night when all she wants to do is relax and sleep soundly.
We can all appreciate your feelings. Take a look around, starting with "A great place to start" in this forum. If you have any questions, please feel free to post a note.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Jesshuba1102, who has just learned she has RLS and it is a nightmare.
Take a look through "A great place to start" at the top of this forum. Then, if you don't find the help you need, please feel free to post a note introducing yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Welcome to bbmrdh who has had difficulty finding medications that work well, so the RLS/WED is severely limiting life and work; to add to it, his or her neuro and PCP has prescribed meds that can worsen RLS/WED.
So sorry you're having so much trouble. If you want, start a new post about what you have tried or what they have prescribed.
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annharris98, who has had RLS for ten years it's got worse over the years . She has gotten to were she hates to go to bed at night because she knows she won't be able too sleep .
This is a common issue for us. If you don't find the sort of info you need to improve, please post a note telling us about yourself and what might help.
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athiest1a, whose had bad RLS for several years how. Recently it has begun to last for hours even when rising in the night or morning and stand up. It has forced athiest1a to relinquish commitments and to resign from a position as leader of a freethinkers group.
Please take a look around, starting with "A good place to start" at the top of this forum. If you don't find something that helps, please post a note with your question(s).
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
