A little about me
Posted: Mon Dec 14, 2015 5:40 pm
I am still finding my way around this discussion board and am thankful to be here. I live in Canada and was diagnosed with rls about 30 years ago and have tried many of the drugs available, i.e Gabapentin, Lyrica, Mirapex, Requip, and Sinemet. I am adopted and have absolutely no family history. I have been on several drug combinations, however, always augment after a while. During the evening is always the worst when wanting to sit and watch TV...I always have to stand. No more going out to the movies. I remember the days riding the subway home from work and I had to stand because sitting was a nightmare. I have now seen a neurologist for the second time and as I posted last night, I am now on Neupro 2mg. This drug was not available in Canada previously. The worst side effect I am experiencing is nausea. This is now day 5 - hope the stomach settles down soon. I am over the moon right now though as I am not experiencing any rls.
There is not nearly sufficient research going on in Canada for rls and my family physician knows little about it, although I am doing my best to educate him. When I tried a drug holiday that lasted only 4 days, I couldn't stand the sleep deprivation. I told the doctor, as a figure of speech, that it is so bad at times it can make you want to jump over the balcony. Well, he took me seriously and said he could have me sanctioned if I really felt that way. Oh boy, I stormed out of his office, in tears, and he came running after me. To make a long story short, he started taking me more seriously and sent me back to the neurologist. In Canada, you cannot just go to a specialist doctor on your own, you need to be referred by your family physician.
Have a wonderful day folks.
There is not nearly sufficient research going on in Canada for rls and my family physician knows little about it, although I am doing my best to educate him. When I tried a drug holiday that lasted only 4 days, I couldn't stand the sleep deprivation. I told the doctor, as a figure of speech, that it is so bad at times it can make you want to jump over the balcony. Well, he took me seriously and said he could have me sanctioned if I really felt that way. Oh boy, I stormed out of his office, in tears, and he came running after me. To make a long story short, he started taking me more seriously and sent me back to the neurologist. In Canada, you cannot just go to a specialist doctor on your own, you need to be referred by your family physician.
Have a wonderful day folks.