And, Our First Members of the New Year! January 2016

[Rustsmith]

Wednesday, January 20

Welcome to

mikef73, who has been struggling with RLS for years. He has been on requip for a long time, but now the requip is no longer working. He gets very bad RLS at night, cannot sleep and doesn't know how to explain it to his doctor.

Take look around, starting with "A good place to start" in this forum. But you should also take a look at the Augmentation forum. You sound like that could be your issue.

and to

Sleeplessinbb, who inherited RLS from her father, who suffered til he was 90 years old. Sleepless has been dealing with it for 20 years, and seems to be or was getting worse.

Take a look through "A good place to start" and then look around. If you don't find everything you need, please post a note telling us about yourself and asking whatever questions that you have.

and to

Busman, who just had a total knee replacement and finds sleep is interrupted by RLS. At the moment he can only sleep for about an hour or so before being awakened with the jumps

If you use our search function to look for knee replacements, you will find a number of different entries. If this does not provide the insight that you need, please post a note asking your question(s) so that our members can respond.

and to

jakester, who has a very severe case of RLS. Sometimes while out to dinner with friends jakester has had to leave the table and walk around because my legs bothered so much and TV watching at night is done standing up. jakester is taking mirapex and gabapentin

Take a look around, starting with "A good place to start". If you don't find what you need, post a note asking your question(s).

[Rustsmith]

Friday, January 22

Welcome today to

Mister_Ed, who has been fighting a losing battle with RLS since 1999. Within the last 5-7 years his RLS has increased in severity and worst of all -resulted in his removed from a $100k+ job. He is now on 40mg of methadone and 8mg of neupro daily but it's not working.

Take a look around to see if you can find anything useful. If you don't find everything you need, please post a note telling us about your issues and asking any questions that you have.

and to

Muroz01, who believes his wife has RLS and he wants to help her.

Take a look around to see if there is anything that you can use, either to confirm you belief that she has RLS or to assist with finding something to treat her symptoms. If you don't find what you think you need, please feel free to post a message asking for help.

[badnights]

Welcome today to Zorak, who has been through the wringer with this disease. Zorak, you're doing better now; please tell us your tale. You'll find lots of sympathy here, people who've been told it's all in their heads, people continuing to fight through it all. There's lots of knowledge here too, so feel free to ask questions and someone will be able to help you. Welcome, we hope you like the place.

[Rustsmith]

Tuesday, January 26

Welcome today to

Mpapapicco, whose teenage daughter has RLS and so she0 needs to understand more so she can help before It gets worse. She I also thinks her 8 year old is starting to show symptoms.

Take a look around, especially in the Special Populations forum for pediatric RLS. Unfortunately, there can be a genetic component to RLS and even infants can show symptoms. If you don't find what you need, please post a note telling us about their problems and asking any questions.

and to

Misch, who suffers from severe sleep deprivation, which is gradually getting worse.

Take a look around to see if you can find something that is helpful. And please feel free to post a message introducing yourself and asking any remaining questions that you have.

[Polar Bear]

Thursday 28 January

Today we welcome ---

Karen - who had rls for twenty years. She can't sleep. It affects work and home life.

larryber - who is miserable when Rx is not worrking. Complicated by sleep apnea.

Please take a look at the Just Joined, especially at the top regarding Managing RLS/WED.
Everyone is welcome to join a relevant thread or to start their own thread. We want to help.

[ViewsAskew]

On the 29th, we welcome:

cevro, who's had RLS for a few years and now ropinerole isn't working well.

and

ddobbins - who has had symptoms for many years - they've worsened now and side effects from the medications are terrible.

and
Act - who uses controlled released levo-carb with some success by stopping and then restarting it.

Cevro, please read about augmentation and ask any questions - it's very important to deal with this! ddobbins - we might be able to help if you tell us what's happening. Act, interesting that this continues to work for you - I'd love to hear what you do to reset things and start again.

[Polar Bear]

Saturday 30th January - today we welcome:

mtorres2312 - who is not 100% sure if he/she has RLS although many of the symptons are experienced. There are restless nights and it also affects the entire body not just the legs. He/she wants to learn more about this condition.

Please look at the top of this forum - A Good Place to Start: Managing RLS. There is a link there to the criteria for RLS - the biggie is the urge to move to get relief. Please feel free to post and ask questions, we want to help.

[Polar Bear]

Sunday 31st January - we welcome

footstomper - whose life has gone from miserable to sheer hell over the past 40 years.
RLS has attacked the entire body. Most drs including specialists have not believed the severity of it. Some even mocking and saying get a mood ring. There is depression lack of sleep, and social isolation. One sleep specialist has had the compassion to research and find meds which have helped.

Shannynmaree - Lack of sleep is making life extremely challenging.

foxmileroba - because in the family there could be two other sufferers and foxmileroba is interested to find out more.

Please look at the top of this forum - Just Joined - Managing RLS, there are many useful links.
footstomper - please look at augmentation, also please post and tell us of how you are coping.
Shannynmaree - Insomnia is a great difficulty for most of us, feel free to join a thread, or start a thread.
foxmileroba - there is sometimes a genetic factor with RLS/WED, Please feel free to ask any questions.