Do you suffer from severe Restless Legs Syndrome?

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Icnflms
Posts: 15
Joined: Thu Jan 14, 2016 3:09 pm

Do you suffer from severe Restless Legs Syndrome?

Postby Icnflms » Mon Jan 18, 2016 3:02 pm

Volunteers Required to appear in TV documentary.

We are looking for people with extreme RLS symptoms, USA or Europe based, to share their story in a new documentary aimed at lifting the lid on the so-called 'invisible illness'.

If you feel your struggle can help illustrate the frustration and the misery that RLS brings to so many people, please get in touch.

Please contact rls@iconfilms.co.uk as soon as possible if you would like to help.

ViewsAskew
Moderator
Posts: 15913
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Do you suffer from severe Restless Legs Syndrome?

Postby ViewsAskew » Mon Jan 18, 2016 6:39 pm

Thank you! Wonderful that you are doing this. Canadians OK, too? I do hope that some of our members contact you.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7726
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Polar Bear » Mon Jan 18, 2016 7:33 pm

Can you tell, what would be expected of a participant.
Would they need to travel and what time would be involved.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Yankiwi
Posts: 399
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Yankiwi » Tue Jan 19, 2016 12:30 am

I hope this goes ahead, I'd love to see it.

Icnflms
Posts: 15
Joined: Thu Jan 14, 2016 3:09 pm

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Icnflms » Tue Jan 19, 2016 9:10 pm

ViewsAskew wrote:Thank you! Wonderful that you are doing this. Canadians OK, too? I do hope that some of our members contact you.


Hi ViewsAskew! Yes Canadians are very welcome as well - we want to get the message out about RLS to the UK and so for the right RLS sufferer we would be willing to go to them. We are looking for people at the severe end of the scale as this will really illustrate to people who don't understand the condition how debilitating it can really be.

Icnflms
Posts: 15
Joined: Thu Jan 14, 2016 3:09 pm

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Icnflms » Tue Jan 19, 2016 10:05 pm

Polar Bear wrote:Can you tell, what would be expected of a participant.
Would they need to travel and what time would be involved.


Hi Polar Bear, Thanks for enquiring. We would travel to the volunteer and we would talk to them about how RLS affects their life/symptoms. We want to illustrate how hard it is to live with RLS day to day and so would it would involve some filming with them on a normal day. If somebody does want to share their story with us and wants to hear more about what this would entail please fell free to contact us via rls@iconfilms.co.uk.

Icnflms
Posts: 15
Joined: Thu Jan 14, 2016 3:09 pm

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Icnflms » Wed Jan 20, 2016 4:52 pm

Hi Polar Bear,

Since I've been looking on the forum I have come across and read a number of your posts and am really sorry to read of how you've suffered with RLS.

As you have your own personal experiences and also a wealth of knowledge from reading and responding to others' posts on the forum, I would really like to be able to set up a phone call between you and our Researcher, Laura so you can talk about your experiences as an RLS sufferer, and coping mechanisms you have. We would really value the opportunity to talk with you so if this is something you'd be willing to consider please drop us a line at the email below.

Thanks for your time.
Best wishes,

Ariane
Icon Films
rls@iconfilms.co.uk

Polar Bear
Moderator
Posts: 7726
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Polar Bear » Wed Jan 20, 2016 7:17 pm

Polar Bear wrote:Can you tell, what would be expected of a participant.
Would they need to travel and what time would be involved.


I asked the above question so as to provide a little further information for anyone who might be interested and thank you for your response.

Ariane - I will reply to your post via PM.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
Posts: 2093
Joined: Mon May 21, 2012 3:27 pm

Re: Do you suffer from severe Restless Legs Syndrome?

Postby debbluebird » Thu Jan 21, 2016 3:11 am

I have a phone call set up for this Friday. It will be interesting to see what happens. I don't know if I am severe enough. I know my doctor calls me severe. I will let you all know what happens.

Polar Bear
Moderator
Posts: 7726
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Polar Bear » Thu Jan 21, 2016 10:39 am

Please do keep us updated.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Icnflms
Posts: 15
Joined: Thu Jan 14, 2016 3:09 pm

Re: Do you suffer from severe Restless Legs Syndrome?

Postby Icnflms » Mon Jan 25, 2016 3:42 pm

ARE YOU PREGNANT WITH RLS?

You might have already seen our post above about the documentary on RLS we are making, and we are very grateful to those who have already been in touch. In addition, we are reaching out to pregnant women who have had an onset of RLS during pregnancy, but not necessarily experienced the symptoms of RLS before this. If you are pregnant and suffering with RLS, please get in touch, we would love to speak to you. Please do still get in touch if you are currently experiencing severe RLS symptoms as we are keen to speak to as many people we can so we can illustrate to the general public just how debilitating RLS can be, and in doing so raise awareness about the condition.

You can reach us at rls@iconfilms.co.uk. Please have a look at our website - we have an advert about the documentary there and you can see the kinds of factual content we have made in the past.

Thank you,

Icon Films


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 2 guests