March New Members

[Rustsmith]

Wednesday, March 2

Welcome today to

Stormynite, who is exhausted due to insomnia and whose RLS is ruining bot health and relationships.

and to

Jrfec, who has difficulty sleeping, flying on airplanes, going to movies or anything requiring still legs at night. She keeps her husband up and is worried about too many meds.

Take a look around and feel free to post a note telling us about yourself and/or asking any questions that you have.

[Rustsmith]

Thursday, March 3

Welcome today to

momobirthe, who has RLS and hopes to get good advice from and share experiences.

Please post a note telling us about yourself and asking any questions that you may have.

and to

Sharonlang, whose RLS is hereditary. Her father's undiagnosed RLS caused him to jump through the 2nd flr bedroom window. He broke several ribs, wrist and tore tendons in his leg's but did not wake up until her mother yelled his name. Her neurologist wants her to go to the RLS specialist in CA butfinancial resources prevent traveling and paying for this specialist.

Please post a note telling us about your RLS and if your current neurologist has you on any meds. Perhaps we can point you to resources that you can use to educate your current doctor for treatment until you can pool the resources to travel.

and to

simingtonp, who has had RLS all her life but it has been much worse since menopause. She takes pramipexole and is now at .750 and wants to try to cut back. She tried cold turkey but did not sleep at all and needs to know alternative methods that have worked.

Take a look through the augmentation forum as well as the "Getting off Pramipexole" discussion in Prescription medications. These should let you know about your alternatives. Then, if you have any questions, either join one of the discussions or post a new note asking your questions.

[Polar Bear]

Friday 4 March

Today we welcome:

elmer - who suffers badly from RLS and wants to explore possible treatments.

Take a look through the 'Just Joined' and please feel free to ask questions and tell us of your experience with RLS.

[Polar Bear]

Tuesday 8 March

Today we are joined by:

CarrieS - who has had RLS since 11 years old, very rare at first, 2-3 times per year, and got progressively worse since getting older, every day for the past four years now, including arms . CarrieS has found Mirapex to be incredibly effective, but because of side effects is interested in learning about other remedies.

If you take a look at the augmentation forum you may find much of this rings a bell. Please post and tell us how you've been coping,

[Rustsmith]

Friday, March 11

Welcome today to

martyestrong, who is looking for more information to help patients.

Take a look through "A good place to start" in this forum and then where else that seems appropriate. If you have any questions or would like clarifications, please post a note with any questions or comments.

and to

Jenni122701, who has severe RLS and was hoping to find a community to share experiences and advice with. She rarely sleeps well and hoped to find ideas that may help.

You have definitely found the right place since most of us also have severe RLS. Look around to see if you can find the information that you need and please feel free to post a note telling us about your experiences and asking any questions that you have.

[Rustsmith]

Saturday, March 12

Welcome today to

Luvs2Lindy2, who has been suffering with RLS for over 10 years, but was just recently diagnosed. The sensations have recently begun to start in the late afternoon. This prompted her to see a neurologist, who prescribed a low dose of Mirapex (generic).

and to

Mr Wiggles, who has been a RLS sufferer for about a dozen years and on medication for about 6. He is currently on his third different med trial within the last year.

Take a look around to see if you can find the answers to your questions. If you don't find everything, please feel free to post a note telling us about yourself and asking any questions that you have.

and to

MichaelH, who has had RLS for 25 years and just recently it has gotten worse. He would like to learn more about the condition and share with others.

Take a look at "A great place to start" and then look around to see what others are doing (or not). If you have any questions, please feel free to start a new discussion thread.

[Rustsmith]

Wednesday, March 16

Welcome to

Asmock, who has dealt with depression for many years and RLS for the last 13+ years. RLS greatly impacts the ability to control depression and anxiety. Asmock feels isolated and alone, dealing with a disease that steals sleep and that most people don't understand. Even doctors are causing anxiety bc they lack sufficient knowledge of RLS in order to be of any help.

You will find quite a bit of sympathy and understanding of your situation here as most of use have gone through the same issues. Look around to become better informed and post a note with any questions or comments that you may have.

[Rustsmith]

Friday, March 18

Welcome today to

ejames89, who has had RLS for 15+ years. The RLS is being treated successfully, but the side effects of Mirapex are the main issue.

Take a look around to see if you can find what you need. If not, please post a note telling us about yourself and asking whatever questions that you have.

and to

martino, who has had RLS since April 2015 and wants to learn from other people's experiences both with the condition itself and also medication

Take a look through our discussions to see if you can find the information that you need. And feel free to post a note telling us about yourself and asking any questions that remain.

[Rustsmith]

Saturday, March 19

Welcome to

Jeannie, who has been experiencing Restless Leg Syndrome since she started on Zoloft

Take a look around or files, you should concentrate on discussions about "SSRI"s and depression. SSRIs are known to triggers for those with RLS, even if yous was so mild before that you didn't notice the symptoms. Then, feel free to post a note asking any questions that you have.

[Rustsmith]

Sunday, March 20

Welcome today to

jeanettephnx, who since having PAD surgery has been dealing with RLS. She had a blocked artery in her leg and by pass surgery. Since all of that has been healed she has been suffering from RLS

Take a look around to see what might be helpful. You might want to look at the recent discussion at http://bb.rls.org/viewtopic.php?f=5&t=9552

[Rustsmith]

Monday, March 21

Welcome today to

Jchesbrough, who is getting no sleep, up all night stretching, walking the floors. Have had RLS for 10+ years. Have tried Requip, Clonazepam, acupuncture, massage, Gabapentin among other prescription and Otc drugs and medicinal marijuana. Iron tests are fine except a high saturation level. NOTHING HELPS. Her Dr has literally thrown up her hands and told me I'm stressed, try yoga.

Take a look around, you will find quite a few treatments discussed as well as research articles to explain what is known about the causes. If you have any questions, please feel free to post a note with them.

[Rustsmith]

Tuesday, March 22

Welcome to

abarker, who has had RLS for about 10 years now, and symptoms often disrupt her sleep terribly. She is looking for information and support to help cope with and alleviate symptoms.

Take a look around. The General WED and Physical Treatments forums should have a lot of the information that you are looking for. If you don't find what you need, please post a note telling us about yourself and asking any questions that you have.

and to

suric23, whose RLS has caused a lack of sleep for the last ten years.

Sleep is a problem for all of us. Take a look around and if you have any questions, please feel free to post a note asking any questions that you have.

[Rustsmith]

Wednesday, March 23

Welcome to

Peteran, who would like to be in contact with others with RLS and would like to know what they are doing about their RLS issues.

and to

schmauder, whose RLS has been increasing in severity over a number of years. She now wakes up 3 to 5 times a night and cannot go back to sleep without getting up and walking for at least 5 minutes. It takes 10 hours to get 7 or 8 hours of sleep.

Take a look around and you should get a good idea of what others are doing. If you have any questions, please feel free to post a note.

[Rustsmith]

Thursday, March 24

Welcome today to

clanross, whose RLS has put a strain on his marriage. He does not look forward to the theatre, cinema or going on a flight. Anywhere he feels confined is tough, so he ends up watching tv or reading, standing up.

That is something we are are familiar with. Take a look around and if you don't find what you need, please post a note with whatever questions you have.

and to

oldeenet79, who has been a Foundation member from about 1990, now has sleep apnea and might have a need to ask questions about a sleep study with the meds I need to sleep (Pramipexole and Gabapentin).

Please feel free to post any questions that you have.

[Rustsmith]

Friday, March 25

Welcome to

MyRLSlife, who has suffered from RLS since I was a child, and it has progressively worsened. Several medications have been tried with Requip for a few years.

Take a look around and if you have any questions, please feel free to post a note.