April New Members

[Rustsmith]

Friday, April 1

No April Fools here

Welcome today to

Arlene, who has RLS and it feels awful and disrupts her sleep. She also says that she doesn't know anyone that has it.

Well Arlene you have found a large number of us with RLS now. Take a look around to get an idea of what many of us do to try to keep our RLS under control. If you have any questions, please feel free to post a note to ask them.

and to

monida, whose RLS interferes with her sleep. She finds bad scratches on the back of her calves in the morning.

and to

wantok, who has PLMD and RLS and needs advice as it regularly disturbs sleep. wantok says benzos work wonders, but is concerned about the increase in risk they can cause for Alzheimer's.

[Rustsmith]

Saturday, April 2

Welcome to

tkhall674, whose RLS reappeared after spinal fusion surgery.

Take a look around. If you don't find what you need, please post a note with any questions that you have.

[Rustsmith]

Sunday, April 3

Welcome today to

Travis294, who is dialysis and has severe RLS at night and unbearable leg aches during the day. He is looking to meet people with similar problems so he might get some idea how to deal with them.

Take a look around to see what you can find. Most of us have primary RLS (meaning without another condition like dialysis). But you may find some kindred spirit information in the Special Populations forum.

[Polar Bear]

Monday 4 April

Welcome today to

ethan - who has sleep issues for as long as he can remember- 7 years ago he was diagnosed with PLMDs and find that the medicines work for a while and then stop working.

ethan - you say you have been diagnosed with PLMDS - have you also been diagnosed with RLS? Take a look on the Just Joined - Managing RLS, and please feel free to start a thread and ask any questions.

[Rustsmith]

Tuesday, April 5

Welcome to

rglesr, who has had RLS for 10 years, is getting worse now and the Dr. is reducing the dose of Requip

Take a look around paying particular attention to the forum on Augmentation since that is probably why your doctor is reducing your Requip. If you have any questions, please feel free to post a note asking for whatever we can do to help.

[Rustsmith]

Wednesday, April 6

Welcome to

cpking, who wants to know about RLS because some of the symptoms have started to appear.

Take a look around and feel free to post a note with any questions that you have.

[Rustsmith]

Saturday, April 9

Welcome today to

TuscsonGirl, who I has had RLS for 7 years. It is her primary health concern, because it is so disruptive to life.

Take a look around to see if you can find something that might help to control your RLS. If you don't find what you need, please feel free to post a note with your question(s).

[Rustsmith]

Sunday, April 10

Welcome today to

sandyb, who has severe RLS and has had it for 35 years. For the last couple weeks, none of sandyb's medicines have been working.

Take a look around and especially look through the forum on augmentation since it might be reason why your medicines have stopped working for you. If you have any questions, please feel free to post a note.

[Rustsmith]

Monday, April 11

Welcome today to

melanietucker, whose RLS makes it hard to drive due to a constatntly move her legs and it is hard to sleep. Also her RLS is worse during her period.

Have you had your ferritin levels checked and do you know the number? Low ferritin (a form of iron) can cause the sort of symptoms that you described. If you have any questions, please feel free to post a note introducing yourself and asking whatever you wish.

and to

Lindingk, who was recently diagnosed with RLS.

Take a look around to get an idea of what others do to manage their RLS. If you have any questions, please feel free to post a note with your questions and a bit of background about yourself.

[Rustsmith]

Wednesday, April 13

Welcome today to

lwdnr89, who needs information regarding long term use of Mirapex for RLS.

You should be able to find quite a bit about issues associated with long term use of Mirapex, especially in the Augmentation forum. If you don't find what you need, please post a note telling us about yourself, your current Mirapex dose and how you are doing so that we might be able to provide you with more specific suggestions.

[Polar Bear]

Thursday 14 April

Welcome to:

peanut - who is a Sufferer, need support - and is fearful that symptoms are worsening.

Please look at the Managing your RLS in the Just Joined Section - also if you are taking medication please look at the Augmentation Section.

Any questions at all, please feel free to post, tell us a little of you RLS history and how you have coped up to the present.

[Polar Bear]

Sunday 17 April

Welcome today to:

gerryhines - Who can't sleep, can''t function without sleep. Needs to change drugs from Neupro Patches to something else. Also the rare side effect of falling asleep for a second or two and is curious as to what meds other RLS patients take and their success.

Bindenver - who is troubled by lack of sleep. Depression and needs to walk around most of the night.

Please post and tell us a little of your RLS history, and what you have tried so far.
Also if you haven't already done so, take a look at the Augmentation Forum and the Just Joined - Managing your RLS.

[Polar Bear]

Monday 18 April 2016

Welcome to:

boomerbabybarb - who has had RLS most of 70 years. boomer is tired and frustrated and wants to talk to others who suffer with this horrible disease.

[Rustsmith]

Tuesday, April 19

Welcome today to

tskane, whose muscles "twitch" 24/7. Dr's have said nothing can be done. He gets very little sleep and it is affecting his work by inability to focus.

Take a look around to get some idea, but your doctors are quite probably wrong. There is almost always something else that can be tried. Please post a note telling us about yourself and what treatments you have tried so that we point you in the right direction. Also, you should probably take a look at the RLS Foundation's website and their list of Quality Care Centers. The centers are staffed with RLS specialists and researchers who really understand us, even the severe cases.

[Polar Bear]

Wednesday 20 April 2016

Welcome to:
Diesel9128 - who has suffered from RLS since childhood. Sleep and relaxation is difficult. Currently on mirapex and has had some augmentation occur. Would like to go off of the Mirapex and would like to connect with other women who are planning on or are pregnant and what they have found helps them without being on medication.

Please take a look in the Special Populations Forum - we have in the past had sufferers who made it through pregnancy.

and to

tommy108, who was officially diagnosed today. It's been so long since tommy has slept well, maybe ten years.

Please feel free to post a note telling us about what your doctor has suggested to improve your sleep. As you can see from the various discussions in the Prescription medicine forum, there are a number of options and frequently the medications that work for everyone else are completely ineffective for us. So maybe we can help steer you towards the options that have a better chance of working for you.