Anonymous wrote: I went to a Dr Raso which is a pain mgt dr that I found on this site no less. After telling him of my suffering he put me on the Piramex which did not work. He upped the dose and told me to come back in 4 days. I did , he then wanted to put me on like 5 other meds at once all of which I have been on and made me sick or zombie like. He gave me the scrips and told me to come back in 4 more days. I told him I am suffering terribly and I cannot afford to pay him $200.00 per visit every 4 days. I asked for the meds I was on which ws the Methadone and one ambian. He told me in no uncertain terms that "well I guess you have to suffer some more cause I am a good dr and good dr's dont use painkillers."
PLEASE REMOVE THIS A-HOLE FROM YOUR PROVIDER LIST. He wants you to keep coming back everyother day then nail you for $200 each time. So Iam back to using pot to sleep which works very well for me but obvisioulsy has way to many drawbacks, illegal, I have kids w/ very good noses and I could lose my medical lic if caught. Like I mentioned before , the only dr that took the time to sit w/ me for 30 minutes when ever I needed him is now going to prison so short of running my car into a wall, I feel out of options, if it wasnt for my family I shudder to think what I would do.
What planet is this doc "Rasco" living on????? Has he somehow managed to live his life completely and utterly pain free.....if so....someone needs to slap him round the head a few times with a frozen trout (or something even more solid?!), tell him to wake up to himself, and if he said "ouch" while being slapped then it's "well, welcome to the world of pain!!!"
Asking for $200 PER visit (and every four days?!) is clearing pointing to someone who's in the profession for Money Only; and who does Not give a Toss about the people under their supposed care
Ahhhh, now that i've got that out of my system, Erik....welcome to the group
As Becat said, we're a team here, and try our best to help each other out be it with a sympathetic ear, or advice on medications, to personal experiences with different medication combinations. Our dear friend Jumpy, if you allow him, may be able to assist you with finding the right type of medication.
RLS is different for everyone, and we all become our own guinea pigs at one time or another, or even for months on end, until we find that "magic cocktail". Some have pain, some don't. Some have 24/7 symptoms, others don't. Some have found their "magic cocktails", other, like yourself, are still searching". The one common denominator in this group (besides RLS!) is that we're here for each other, day and night, and we stick together.
I have been through 10 months of Literal Hell (you can find more of me under the thread "Prescription Medication Side Effects) and it took a sidelong glance and a "second opinions don't always go astray; you make the phone call and i'll write the letter" from my GP for me to get my foot through the door for a second opinion from another Neurologist (yes Jumpy, I promise to update again ASAP!). I still have an appointment with a Third Neurologist lined up for September if things don't pan out positively between now and then.
DO NOT GIVE UP!!!! I can hear where you're coming from with the brickwall. I've been to rock bottom....I know what it's like....the number of times i've wished we owned a chainsaw are too many to count. However, if you give up and hit that brickwall, your kids, and the rest of your family are never going to forgive you
Likewise, if you chop off your legs, not only will you never be able to walk again, you will still get phantom RLS, which definitely can't be treated
Tell us what drugs you have tried and in what combinations; what worked, what didn't. The more you tell us, the more we can possibly help. Massage, CranioSacral Therapy, stretching exercises, long hot spa baths.....they're my top four non-drug therapies.
Below is my favourites list for RLS sites:
General RLS Information:
http://www.wemove.org/rls.html
http://www.jmjudson.com/rls.html
http://www.rlshelp.org
http://www.sleepnet.com/disorder.htm
http://www.rls.org
RLS Treatment Information:
http://www.jmjudson.com/medications.html
http://www.rlshelp.org/rlsrx.htm
Fighting RLS with everything else:
http://www.rlsrebel.com
I highly recommend the rlsrebel site. It has very practical information for non-drug "combat techniques"!
We're here for you Erik. Take it one step at a time, one day at a time. Vent as much as you like, and most importantly, stay positive!!!
Take care of you
Nadia