MAY 2016 - NEW MEMBERS

[Polar Bear]

Sunday 1 May 2016

Today, on Mayday, we welcome -

Vision - who developed RLS 15 years ago and was using Mirapexin with success until developing side effects. It is now a struggle to find an alternative and the evenings are becoming dreaded.

Take a look at the Augmentation Forum and see if this sounds familiar. If you make a post and tell us a little about yourself we will try to help.

[Rustsmith]

Monday, May 2

Welcome today to

anijo, whose husband suffers from restless legs. He basically "jumps" several times at night. Unfortunately, after having had a knee surgery last week, this condition has not just become annoying but very painful.

Take a look around to get an idea of the different approaches that can be taken to address RLS issues. He probably needs to discuss this with his doctor or surgeon so that the RLS can be resolved and not do further damage to his new knee.

and to

thepack, who has been afflicted with RLS for several years and is now on the third medical treatment and is questioning its affect.

Take a look at the forum on augmentation and see if that might be an issue with your treatment. And please feel free to post a note with any questions that you have.

[Rustsmith]

Wednesday, May 4

Welcome today to

Lanny, who has had RLS all his life and has recently discovered that a hot shower for about 10 minutes will cause the symptoms to abate enough to get to sleep and stay asleep.

and

Robyn58, who has severe RLS, and would like to correspond with other RLS people, to see what they do or recommend.

Take a look around to see what info you can find that helps. And please feel free to post a note introducing yourself and asking any questions that you have.

[Rustsmith]

Thursday, May 5

Welcome to

Szoltysik, who has struggled with RLS for about 15 years and needs to find some relief.

Take a look around to see if you can find some suggestions that may help. And please feel free to post a note introducing yourself and asking any questions that you have.

[Rustsmith]

Friday, May 6

Welcome today to

beb, who has had RLS for 20 yrs or more and never knew what it was until about 10 yrs ago.

and

cbs, whose husband and my daughter suffer from RLS.

Look around to see what info you can find that is of use to you. And feel free to post a note with any questions or comments that you have.

and

Prim's Walks, whose RLS has affected nearly every piece of her life, from insomnia, meds and their side effects, to sleeping on the couch because her husband gets nauseous from her legs swishing all night. RLS has also affected her career in teaching and nursing.

You will find plenty of us here on the discussion board who know exactly what you mean. Feel free to post a note introducing yourself and asking any questions that you have.

[Rustsmith]

Saturday, May 7

Welcome today to

Hockeymanvt, who believes the may have RLS following rotator cuff surgery. His MD recommended melatonin and a sleeping pill along with oxcontin and Tylenol. I have cut this regimine to melatonin 10 mg and the sleeping pill and still have serious nightly sleeplessness.

Take a look at the questions in the note posted by ViewsAskew on May 25, 2013 in the Just Joined forum, "A good place to start" topic. It is about 2/3 of the way through the topic. If you can answer yes to most of the questions, then you may have RLS. Also, feel free to post a note telling us about yourself and asking any questions that you have.

and

rikku9 - who wants to be able to participate in discussions about RLS.
You will find good information in the Just Joined forum, "A good place to start" topic. Please join and threads that interest you.

and

CHGOBOCA, who developed severe RLS symptoms and was diagnosed by the Movement Disorder Clinic at Rush University in Chicago.
Generic Requip was prescribed at 6mgXR which worked well. CHGOBOCA moved to Florida and the new doctors are not as well versed in RLS and have pushed CHGOBOCA to Mirapex, which is creating issues.

Changing doctors when you move can be a major problem if you cannot find someone knowledgeable in RLS. If you cannot find what you need in our files, please feel free to post a note with any questions.

[Rustsmith]

Sunday, May 8

Welcome today to

DesperateforSleep, who has been suffering for over a decade with daily fatigue and has only recently found out that it is a sleep disorder.... PLMD/RLS.

Unfortunately, your story is not unusual. Take a look around to see if you can find something useful and feel free to post a not with any questions.

and to

helenheart, who I has terrible RLS and augmentation and is now reducing Miripax and adding gabapentin.

Take a look around to get an idea of your alternatives if the gabapentin does not handle your RLS. Also look for information about getting off of Mirapex, which can be very difficult. If you need more info, please feel free to post a note with any questions or requests.

[Rustsmith]

Monday, May 9

Welcome to

lisawiman, who find it is very difficult to rest or do regular activities. She is tired after taking her meds and is depressed.

There are all common issues with RLS. Take a look around for information that might be helpful. And feel free to post a note with any questions that you have.

and to

Clemore, whose 83 yr old mother has had RLS symptoms for most of her life. Her mother, her son, and her grandson also have this disease. Her symptoms have become so severe that they are sometimes all throughout the day. So Clemore is looking for help other than pharmaceutical.

If she has been taking meds, take a look through the augmentation section, especially if she needs to get off of her existing meds. Otherwise, take a look through the Physical Treatments and the Non-Prescription Medicines forums to see if you can find something that interests you.

and to

loisjones, who has suffered from RLS on and off as an adult.

Please take a look around and then feel free to post a note introducing yourself and asking any questions that you have.

[Rustsmith]

Tuesday, May 10

Welcome today to

dytowns, who is dealing with the misery of RLS every day/night and has sought help from doctors, naturopaths, medication, herbs, ect.--all with little or no success.

You should be able to find something here that will be helpful. If you don't find something that interests you, feel free to post a note asking whatever questions that you have.

[badnights]

Please welcome drjk!
drjk can't sit still in the evenings, except sometimes by sitting at attention, has to walk around, and cannot engage with plays or movies because of restlessness.

@drjk: welcome. We're so sorry you needed to seek us out, but glad you found us! Sure sounds like you have RLS/WED. There's a lot of information here, and lots of people who can answer your questions. Try the topic called A Good Place to Start in the Just Joined forum.

[Rustsmith]

Thursday, May 12

Welcome today to

Jeannie3369, who has severe RLS and is unable to find meds that work.

Take a look through the discussion in the Non-Prescription and Prescription meds forums to see what others have or are using. There is always something else to try when you are searching for something that works and had acceptable side effects.

[Polar Bear]

Friday 13 May

Today we welcome....

Susie930 - who needs advice, asking are there any new meds as nothing is helping and Susie930 is so exhausted...

We all know exactly how you feel and are here to try and help. Look through the Just Joined forum, also the Prescription forum and Non Prescription forum. Tell us what you have tried when seeking symptom relief, as well as medications there are then combinations of medications.

and

Agamble, who has gotten progressively worse over the last few months, is having trouble sleeping, legs crawl and jerk and is desperate to find a solution.

Take a look around to see how others manage their RLS and feel free to post a note telling us about yourself and asking any questions that you have.

[Rustsmith]

Sunday, May 15

Welcome today to

maparr, who has had horrible crawling skin and involuntary jerks for six moths. The symptoms last all day and are worst at night and are only relieved by movement.

Take a look around to see if you can find something that would be useful. And feel free to post a note asking any questions that you have.

and to

Valgirl, whose mother has Parkinsons and RLS. She is not able to navigate the computer, so they are looking for what others with RLS and Parkinsons have found helpful.

Take a look around to see what others are doing for treatment. I don't know that you will find that many here with Parkinsons, but a search on that topic could turn something up. Treatments for RLS and Parkinsons are often similar except that RLS patients take much lower doses. If you don't find anything useful, please feel free to post a note asking any questions that you have.

[Rustsmith]

Monday, May 16

Welcome to

emmie, whose RLS until recently was mostly controlled. But recently after having major surgery, my condition has gone completely haywire. She has a life-threatening illness, which is obviously worrisome, but RLS can be torture. It's such an odd disease - really - that deserves a little respect!

We all agree that RLS needs more respect that it gets. You should find quite a bit about RLS and surgery, hopefully something that helps. If not please feel free to post a note with any questions that you have.

and

rubylove, who says she has been organizing my life around my symptoms for decades and that her travel and social life is all structured around RLS

Hopefully you can find something useful in our files. If you don't find what you are looking for, please post a note asking your questions.

[Rustsmith]

Tuesday, May 17

Welcome to

cblewis, who is looking for treatments and medications to deal with RLS.

Take a look around and feel free to post a note telling us about yourself and asking any questions that you have.

and to

jeanbward, whose RLS has completely consumed her life she has become more isolated and dreads trying to go to sleep. She has tried Mirapex, which she stopped due to the side effects. She was seen at Stanford and is looking for a neurologist closer to home.

Take a look around and please feel free to post a note asking any questions that you have.