June 2016 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Fri Jun 17, 2016 4:14 pm

Friday, June 17

Welcome to

Karlcwater, for whom the debilitating effects of RLS have caused him to lose his job and he is no longer a member of the neighbourhood watch, of which he was local treasurer.

RLS can be very difficult condition to live with. Please feel free to look around and to post a note telling us about the treatments that you are using.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Sun Jun 19, 2016 9:27 am

Sunday, June 19

Welcome to

mariuscnm, who has RLS and has tried a lot of "cures".

Please take a look around to see if you can find something useful and feel free to post a note introducing yourself and asking any questions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Mon Jun 20, 2016 12:04 pm

Monday, June 20

Welcome to

JOL, whose RLS has been getting increasingly worse and wishs to learn alternatives to pharmaceuticals.

Take a look through our forums on Physical Treatments and Non-pharmaceuticals. And feel free to post a note with any questions that you have.

and to

Jhslaw, who dreads bedtime and often needs to nap during the day. Also, she finds it uncomfortable to sit in a chair, etc, with her legs down in front. She either needs to sit on them or to sit Indian style.

Look around to get an idea of other things that might help. And feel free to post a note telling us a bit more about yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 7224
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: June 2016 - New Members

Postby Polar Bear » Wed Jun 22, 2016 5:07 pm

Wednesday 22 June

Welcome today to

Jaylar - whose RLS started in the 20's and has progressively gotten worse. Jaylar is now in her 50's and she experiences RLS 6-7x per week now when trying to sleep.

When you are ready please tell us a little about yourself, how have you been coping with your symptoms over the years. Feel free to ask any questions that come to mind.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Sat Jun 25, 2016 11:17 am

Saturday, June 25

Welcome to

LuckyLindy, who has had RLS since age 18. LL will be 65 this year and has some dormant times throughout those years but the last 15 have been horrific.

Welcome to the group, take a look around and feel free to post a note introducing yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Sun Jun 26, 2016 8:53 pm

Sunday, June 26

Welcome today to

Notabrat56, who has severe, full body RLS. Notabrat is receiving iron infusions and vitamin d3 injections along with a litany of failed medications. Notabrat suffers day and night and is living from the bed sleep to the couch and is desperate.

Please take a look around to see if you can find something useful. And please feel free to post a note telling us about what medications have failed and what you are currently taking so that we can make some suggestions because there is always something else to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Tue Jun 28, 2016 9:19 pm

Tuesday, June 28

Welcome today to

susanjbrune, who wants to share what she has found with using an amino acid to treat RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Wed Jun 29, 2016 10:17 am

Tuesday, June 29

Welcome to

Mandi3569, who hates being so tired and ready to go bed to relax and then lies down ana can't sleep because of RLS.

Take a look around to see if you can find something that might help you. And then feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7224
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: June 2016 - New Members

Postby Polar Bear » Wed Jun 29, 2016 5:50 pm

Wednesday 29 June

Welcome today to:

Moonbeam1 - who has had this condition for more than 30 years...it has now increased to "severe", with occurrences every day from morning to late evening. The drugs are leaving Moonbeam1 sluggish and foggy and Moonbeam1 is currently trying the Relaxis pad to see if this might be an answer.

Please feel free to tell us what medications you have tried to date, for relief, and how you coped. We will be interested to hear your opinion on the Relaxis Pad.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Moonbeam1
Posts: 1
Joined: Wed Jun 29, 2016 4:58 pm

Re: June 2016 - New Members

Postby Moonbeam1 » Thu Jun 30, 2016 12:23 am

I have tried a myriad of neurological medications, most of which had no real effect. The only medication that has given some relief is Mirapex, originally paired with Clonazepam. That medication left me in a "brain fog" for most of the next day. The Mirapex worked well at a lower level, but it gradually increased over time and doesn't always provide relief from RLS 'attacks' that leave me unable to sit, stand or lie down within the jerking movements common with this affliction. When I heard about the Relaxis pad, I was excited about the prospect of leaving the meds behind and getting relief naturally and away from drugs.

I have only just begun this journey, on a trial basis, but am encouraged by being monitored and weekly meetings to discuss issues. I know that it is not an instant fix, and since I have had this condition for so long it will take time, but I look upon it positively, hoping for even a small amount of relief to encourage me to continue.

Rustsmith
Moderator
Posts: 3349
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: June 2016 - New Members

Postby Rustsmith » Fri Jul 01, 2016 4:39 am

Thursday, June 30

Welcome today to

csimpson, who after 10 years has augmented on Mirapex. Her doctor has put her on generic requip and she can't stay awake and is experiencing restless leg pain throughout the day as well as insomnia.

and

NatashaSimone, who has been suffering from RLS for one year. She recently experienced augmentation after finding success with Ropinrole. This disorder has caused distress and agony to family as well. It is almost as if we are all suffering from it.

Take a look through our files to see if you find anything useful, especially the forum on augmentation. If you don't find what you need, feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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