NEW MEMBERS - AUGUST 2016
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NEW MEMBERS - AUGUST 2016
Welcome today to
Nicolelyn - who has suffered from RLS for 2 years.
and to
thacka - who is a 52 year old male with a 15 year history of RLS and is looking to learn more about the disease and potential relief that might be available.
Have a look around the 'Managing your RLS' at the top of this page and feel free to start a thread telling us how you have been coping with your symptoms.
Nicolelyn - who has suffered from RLS for 2 years.
and to
thacka - who is a 52 year old male with a 15 year history of RLS and is looking to learn more about the disease and potential relief that might be available.
Have a look around the 'Managing your RLS' at the top of this page and feel free to start a thread telling us how you have been coping with your symptoms.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Tuesday, August 2
Welcome to
jasdeese, who has severe symptoms and recently have sustained serious injuries while walking late at night. Only by walking briskly is jasdeese able to relieve symptoms, but then can fall asleep while walking. jasdeese's current physician -- an RLS specialist -- does not understand the need to walk.
Take a look around and then please post a note telling us a bit more about yourself, how you manage your RLS other than walking and what questions that we can answer.
Welcome to
jasdeese, who has severe symptoms and recently have sustained serious injuries while walking late at night. Only by walking briskly is jasdeese able to relieve symptoms, but then can fall asleep while walking. jasdeese's current physician -- an RLS specialist -- does not understand the need to walk.
Take a look around and then please post a note telling us a bit more about yourself, how you manage your RLS other than walking and what questions that we can answer.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Wednesday, August 3
welcome today to
Heyyy_REDDOG, who has suffered with WED/RLS for as long as he can remember. But around 10 years or so ago, he became keenly aware of the fact that his fidgeting was encroaching on sleep. And as a video producer, he hoping to raise awareness of WED/RLS and perhaps play a small part in improving the lives of fellow sufferers.
Take a look around and then please post a note introducing yourself, describing your current treatment and asking any questions that you have.
welcome today to
Heyyy_REDDOG, who has suffered with WED/RLS for as long as he can remember. But around 10 years or so ago, he became keenly aware of the fact that his fidgeting was encroaching on sleep. And as a video producer, he hoping to raise awareness of WED/RLS and perhaps play a small part in improving the lives of fellow sufferers.
Take a look around and then please post a note introducing yourself, describing your current treatment and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Thursday, August 4
Welcome to
tryinginva, who is a 54 yr old female who has suffered from diagnosed RLS for years but has significantly worsened in last 6 months. Her neurologist just increased her dose to 4mg three times a day. She has gained 30 pounds in 2 months, has severe nausea, and just completed a series of IV iron infusions.
Please take a look around and then post a note introducing yourself and asking any questions that you have. Also, please check your email address because you appear to have a typo.
Welcome to
tryinginva, who is a 54 yr old female who has suffered from diagnosed RLS for years but has significantly worsened in last 6 months. Her neurologist just increased her dose to 4mg three times a day. She has gained 30 pounds in 2 months, has severe nausea, and just completed a series of IV iron infusions.
Please take a look around and then post a note introducing yourself and asking any questions that you have. Also, please check your email address because you appear to have a typo.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Sunday, August 7
Welcome today to
seira, who is tired much of the time and finds that RLS affects plans for the next day after a sleepless night.
and to
Mahearn, whose life revolves around taking the meds to try to control her RLS.
Take a look around and then feel free to post a note introducing yourself and asking any questions that you have.
as well as to
JMS1959, who hse severe RLS, among other sleep disorders, which is fairly well controlled with Mirapex. His 84 year old mother also has it (as did his grandmother) but she doesn't react well to Requip or Mirapex (hallucinations). Hoping to find others with her problem and see if there are alternatives that work.
Take a look through out Prescription Medications forum to get an idea of her options. These include the Neupro patch, the alpha-2-delta meds like gabapentin, Horizant and Lyrica and the opiates. And feel free to post a note introducing yourself (and your family) and asking any questions that remain.
Welcome today to
seira, who is tired much of the time and finds that RLS affects plans for the next day after a sleepless night.
and to
Mahearn, whose life revolves around taking the meds to try to control her RLS.
Take a look around and then feel free to post a note introducing yourself and asking any questions that you have.
as well as to
JMS1959, who hse severe RLS, among other sleep disorders, which is fairly well controlled with Mirapex. His 84 year old mother also has it (as did his grandmother) but she doesn't react well to Requip or Mirapex (hallucinations). Hoping to find others with her problem and see if there are alternatives that work.
Take a look through out Prescription Medications forum to get an idea of her options. These include the Neupro patch, the alpha-2-delta meds like gabapentin, Horizant and Lyrica and the opiates. And feel free to post a note introducing yourself (and your family) and asking any questions that remain.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Tuesday August 9
Welcome to
mikeh359, who has had rls for over 30 years. Before the internet he thought he was the only person with this issue. He tried to describe it to various doctors to no avail. Now there is help and it is a crisis for many people.
Yes, "You are not alone", either with your RLS or, sadly, your experience with your doctors. Please feel free to post a note introducing yourself and asking any questions that you have.
and to
kmwelcome, who has struggled for years with RLS, now getting much worse (at 71); has tried Mirapex (GERD), Lyrica (doesn't work at all), Clonazapam (worked for a while, but Dr would not go beyond 10 mg, and eventually needed more than that). kmwelcome exercises (swim/line dancing/Tai Chi) a lot, doesn't know if that is making it worse, but for health reasons, hates to give up exercise. At end of rope.
Take a look around to see what you can find that might help, and please feel free to post a note introducing yourself and asking any questions that you have.
and to
DaveG, who I has been struggling with RLS for more than 5 years, not sleeping, anxious about long distance flying and sometimes feeling that it somehow is his fault and isn't a disease like most others. He is looking for support, encouragement, information and medical treatment insights. The only thing he has found that works sometimes is a creme with THC rubbed on his legs before sleeping at night.
Take a look around to get an idea of information that we have. And then please post a note telling us about yourself, asking any questions and telling us a bit more about your THC cream.
Welcome to
mikeh359, who has had rls for over 30 years. Before the internet he thought he was the only person with this issue. He tried to describe it to various doctors to no avail. Now there is help and it is a crisis for many people.
Yes, "You are not alone", either with your RLS or, sadly, your experience with your doctors. Please feel free to post a note introducing yourself and asking any questions that you have.
and to
kmwelcome, who has struggled for years with RLS, now getting much worse (at 71); has tried Mirapex (GERD), Lyrica (doesn't work at all), Clonazapam (worked for a while, but Dr would not go beyond 10 mg, and eventually needed more than that). kmwelcome exercises (swim/line dancing/Tai Chi) a lot, doesn't know if that is making it worse, but for health reasons, hates to give up exercise. At end of rope.
Take a look around to see what you can find that might help, and please feel free to post a note introducing yourself and asking any questions that you have.
and to
DaveG, who I has been struggling with RLS for more than 5 years, not sleeping, anxious about long distance flying and sometimes feeling that it somehow is his fault and isn't a disease like most others. He is looking for support, encouragement, information and medical treatment insights. The only thing he has found that works sometimes is a creme with THC rubbed on his legs before sleeping at night.
Take a look around to get an idea of information that we have. And then please post a note telling us about yourself, asking any questions and telling us a bit more about your THC cream.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Wednesday, August 10
Welcome to
lgrant, who first experienced the symptoms of RLS when just five years old. It is both chronic and progressive. Like many, lgrant just wishs for a reasonable night's sleep.
Take a look around and then please post a note introducing yourself and asking any questions that you have.
Welcome to
lgrant, who first experienced the symptoms of RLS when just five years old. It is both chronic and progressive. Like many, lgrant just wishs for a reasonable night's sleep.
Take a look around and then please post a note introducing yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Thursday, August 11
Welcome to
Petra Hoffman, who needs authentic information on RLS and wants to ask some question from the community.
Please feel free to post a note introducing yourself and asking any questions that you have.
Welcome to
Petra Hoffman, who needs authentic information on RLS and wants to ask some question from the community.
Please feel free to post a note introducing yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Friday, August 12
Welcome to
gbucky, who has Parkinson's and RLS and so is apparently difficult to treat. Has started Horizant, but it is too soon to tell if this will really help.
Take a look around to get an idea of the variety of treatments available for RLS. And please post a note telling us a bit about yourself, your treatment and what we can do to help.
and to
Shortbets, who is a long time sufferer, dreads evenings, has tried different meds and is becoming discouraged since RLS is a progressive disease..
Take a look around to get an idea of the different approaches that our members use and you will get an idea of why we say that there is always something else to try. And please post a note telling us about yourself, your treatments and asking any questions that you have.
Welcome to
gbucky, who has Parkinson's and RLS and so is apparently difficult to treat. Has started Horizant, but it is too soon to tell if this will really help.
Take a look around to get an idea of the variety of treatments available for RLS. And please post a note telling us a bit about yourself, your treatment and what we can do to help.
and to
Shortbets, who is a long time sufferer, dreads evenings, has tried different meds and is becoming discouraged since RLS is a progressive disease..
Take a look around to get an idea of the different approaches that our members use and you will get an idea of why we say that there is always something else to try. And please post a note telling us about yourself, your treatments and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Saturday, August 13
Welcome to
auntcarrie4, who is waking up nightly after going to sleep for 20 minutes or so and then is so fidgety that she can't go back to sleep. She is losing sleep and it is becoming more stressful.
Take a look around and then feel free to post a note telling us about yourself and asking any questions that you have.
Welcome to
auntcarrie4, who is waking up nightly after going to sleep for 20 minutes or so and then is so fidgety that she can't go back to sleep. She is losing sleep and it is becoming more stressful.
Take a look around and then feel free to post a note telling us about yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Sunday, August 14
Welcome to
anns, who is suffering every night and cannot sleep due to leg sensations. RLS is affecting the quality of her life as she is tired all of the time and lacks patience due to lack of sleep.
These are all complaints that we all experience. Take a look through our files to get an idea of what you can do to help cope and feel free to post a note introducing yourself and asking any questions that you have.
Welcome to
anns, who is suffering every night and cannot sleep due to leg sensations. RLS is affecting the quality of her life as she is tired all of the time and lacks patience due to lack of sleep.
These are all complaints that we all experience. Take a look through our files to get an idea of what you can do to help cope and feel free to post a note introducing yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Monday August 15
Welcome to
dawest58, who has always had RLS as an adult. The only thing that has managed the RLS is Lyrica, but it causes gain weight. Therefore, dawest is hoping to find alternative treatments other than pharmaceuticals.
Take a look through our forums on Physical Treatments and Non-Prescription medications to get an idea of what has helped and what has not. An please post a note with any questions that your have.
and to
Alia Andrews, who has severe RLS 24/7. She becomes non-functional after 2 days without treatment and has been through about everything that can be found for treatment. Right now she is on ropinirole and methadone which does very well. The only problem is her neurologist has retired and she is now trying to find one who will continue to treat me. The clinic where he worked is currently honoring the pain contract but she doesn't know fir how long.
We all wish that your story was uncommon, but unfortunately it isn't. Please post a note telling us where you are located so that hopefully we can offer a few specific suggestions.
Welcome to
dawest58, who has always had RLS as an adult. The only thing that has managed the RLS is Lyrica, but it causes gain weight. Therefore, dawest is hoping to find alternative treatments other than pharmaceuticals.
Take a look through our forums on Physical Treatments and Non-Prescription medications to get an idea of what has helped and what has not. An please post a note with any questions that your have.
and to
Alia Andrews, who has severe RLS 24/7. She becomes non-functional after 2 days without treatment and has been through about everything that can be found for treatment. Right now she is on ropinirole and methadone which does very well. The only problem is her neurologist has retired and she is now trying to find one who will continue to treat me. The clinic where he worked is currently honoring the pain contract but she doesn't know fir how long.
We all wish that your story was uncommon, but unfortunately it isn't. Please post a note telling us where you are located so that hopefully we can offer a few specific suggestions.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Tuesday, August 16
Welcome to
lawnguy1, who thinks he is getting restless leg syndrome and therefore is seeking advice and information.
Take a look through the discussion in "A good place to start" at the top of this forum to get an idea of the issues associated with RLS and what can be done to treat it. Then, feel free to post a note asking any questions that you have.
and to
nonirestleas, who would like to share about what she has found to be helpful and would like to hear what others have to say. She would also like to learn more about RLS.
Take a look through our files on the various types of treatment and then please post a note introducing yourself and asking any questions that you have.
Welcome to
lawnguy1, who thinks he is getting restless leg syndrome and therefore is seeking advice and information.
Take a look through the discussion in "A good place to start" at the top of this forum to get an idea of the issues associated with RLS and what can be done to treat it. Then, feel free to post a note asking any questions that you have.
and to
nonirestleas, who would like to share about what she has found to be helpful and would like to hear what others have to say. She would also like to learn more about RLS.
Take a look through our files on the various types of treatment and then please post a note introducing yourself and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8823
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Re: NEW MEMBERS - AUGUST 2016
Wednesday 17th August
Welcome today to
SleeplessinSD - whose husband suffers from RLS and who thinks this site might help them.
You are very welcome, please read the 'A Good Place to Start - Managing your RLS' at the top of this Just Joined section and feel free to start a thread telling us how your husband has been coping. We do try to help.
Welcome today to
SleeplessinSD - whose husband suffers from RLS and who thinks this site might help them.
You are very welcome, please read the 'A Good Place to Start - Managing your RLS' at the top of this Just Joined section and feel free to start a thread telling us how your husband has been coping. We do try to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 6514
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Re: NEW MEMBERS - AUGUST 2016
Thursday, August 18
Welcome to
Mistyhazed, who is newly diagnosed and says she wishes she could cut both legs off. She was put on medication but had a reaction and was taken off of it. But she can't sleep and is considering taking it again.
Please take a look around and then feel free to post a note introducing yourself, telling us a bit more about your symptoms and treatment and asking any questions that you have.
Welcome to
Mistyhazed, who is newly diagnosed and says she wishes she could cut both legs off. She was put on medication but had a reaction and was taken off of it. But she can't sleep and is considering taking it again.
Please take a look around and then feel free to post a note introducing yourself, telling us a bit more about your symptoms and treatment and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.