September 2016 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

September 2016 - New Members

Postby Rustsmith » Fri Sep 02, 2016 3:48 am

Thursday, September 1

Welcome to

Mattw, who has had RLS for years, wants to learn and wants to help others

Take a look around and then please post a note introducing yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 6888
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2016 - New Members

Postby Polar Bear » Fri Sep 02, 2016 10:59 pm

Friday 2 September 2016

Welcome today to:

Jose - has had rls for over five years now and the pain gets worse each day. Jose is taking simetin and it helps, but each pill does not last longer than 3 hours. Jose would like to see how others are coping with this problem

Take a look at the Managing your RLS, it's at the top of the Just Joined Section. There are many different medications and combinations of medications. If you start a thread giving a little information on your history with RLS we will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Sat Sep 03, 2016 11:36 am

Saturday, September 3

Welcome to

Lynn16, who suffers from anxiety and insomnia because of RLS. She has tried several medications with no luck.

Please take a look at "A good place to start" at the top of this forum and then please post a note telling us about what you have tried and asking any questions that you have. We have found that there is always something else that you can try to manage your RLS.

and to

Midnightmarathon, whose RLS is so severe that she is under the care of a therapist for having suicidal thoughtsdue to so sleep deprivation. She saw a movement disorder specialist 8/3 and was told she I was augmenting on Neupo and changed meds. The doctor assured her that she would be available by phone to make adjustments to the new meds and then left the country for several weeks. Her practice just referred her back to her PCP.

Please post a note telling us about yourself and your treatment so that we can help answer any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Sun Sep 04, 2016 12:51 pm

Sunday, September 4

welcome to

jerilyn, who has suffered from RLS for over 20 years. She noticed it in her late 30s and it has gotten worse. She was on requip for years but now it doesn't work and has tried gabapentin, which did nothing. She is just tired of feeling like a lab rat and been told what is best for me, by professionals who don't suffer from this.

Take a look around to get an idea of the other treatment options available. Unfortunately, your experience is quite common, but many of us eventually find a doctor who cares and knows what to do. So, please post a note with any questions that you have.

and to

lunabella, who wants more information about RLS and how it affects daily life.

Take a look around, starting with the "A good place to start" discussion thread at the top of this forum. And please feel free to post a note asking any questions that you have.

and

Krm, who has been struggling with years of RLS and augmentation from ropinirole. Krm is trying to address the symptoms with lifestyle while waiting for an appointment at John's Hopkin's.

Take a look around, starting with "A good place to start" and then please post a note introducing yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14894
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: September 2016 - New Members

Postby ViewsAskew » Mon Sep 05, 2016 8:43 am

Monday, 5th of September, please welcome

Jaywhoisit, who has symptoms in the bicep and hamstring only and had found relief recently.

Glad you have found relief and hope it continues to stay that way!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4569
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: September 2016 - New Members

Postby badnights » Wed Sep 07, 2016 7:56 am

On Tueday (actually it's Wednesday morning!) we welcome Sc1966, who is looking for support and information.

Sc1966, there is a lot of information here and hundreds of members who will understand what you're going through. You can start by checking the posts in the Topic called A Good Place to Start (at the top of this Just Joined forum). And at any point, you can start a new Topic to introduce yourself to us, to ask questions, or to rant; or you can reply to other people's posts.

We hope you find the kind of information you need to help you deal with this disease.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Wed Sep 07, 2016 11:25 am

Wednesday, September 7

Welcome to

jbaker10701$$ who is 68 yrs. old & cannot remember not having to deal with RLS. At least 10 other family members also deal with it. Currently, trying to come off of Requip as have been using 4x per day. jbacker is also a 3x cancer survivor and the RLS is worst to deal with.

Take a look around and then please post a note introducing yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6888
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2016 - New Members

Postby Polar Bear » Sat Sep 10, 2016 5:02 pm

Saturday 10 September.

Welcome to:

shirleysguy - who has successfully lived with RLS for many years taking Mirapex. Recently the Mirapex stopped working as well as it had. spoke to doctor about switching to Ropinirole and that has not gone well. shirleysguy is interested to see if others have had similar experiences.

It sounds like you could be experiencing Augmentation. Take a look at - A Good Place to Start, Managing RLS, which is in this Just Joined Section, you will find some information on Augmentation. Also 'badnights' has great links in her signature which would prove useful. Please ask any questions, we are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Mon Sep 12, 2016 3:13 pm

Monday, September 12

Welcome to

kawj, who has gone from very few symptoms for 20 years to about 2 hours of sleep per night in the last year. kawj feels like insanity is approaching, as none of the usual home remedies work anymore! kawj was on Mirapex, but is now off because of side effects. Now just waiting to see what happens!

Please take a look around and then post a note telling us a bit more about your RLS and where you are hoping to go with its management.


paulandeer - who has sleep deprivation syndrome related to being up almost every night with restless legs
When you are ready please post and tell us a little of your RLS history to date.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Tue Sep 13, 2016 9:50 am

Tuesday, September 13

Welcome to

Ginal1813, who suffers from severe rls. Ginal1813 saw a neurologist who prescribed Requip but it didn't help and a GP who prescribed Ambien but it did not work either. Ginal1813 barely sleeps at night, which causes missed work and is afraid of being fired. The RLS is causing Ginal1813 to become very depressed and is ruining her life.

Please post a note as soon as you can telling us more about your RLS treatment and what we can do to help. Most of us have been where you are and there are always steps that can be taken to bring your RLS under better control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Wed Sep 14, 2016 8:45 pm

Wednesday, September 14

Welcome to

Loringlady, who was at the Dr about leg pain at night. She diagnosed it as RLS. Loringlady was relieved it was not something like cancer and believes she can do what she needs to lessen the symptoms with lifestyle and diet changes. She wants to learn what other that have RLS are experiencing.

Take a look at the forum on Non-prescription meds, supplements and diet to get some ideas. Also, please do not be discouraged by what you read that others are experiencing as the members of this discussion board tend to be among the most severe RLS patients. What most of us try will be useful to you, but there is probably no reason why you need to take some of the meds that many of us required. After you have had a chance to look around, feel free to post a note telling us about yourself and asking any questions that remain.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Thu Sep 15, 2016 12:41 pm

Thursday, September 15

Welcome to

Jwalker, who has the symptoms of RLS but has not been diagnosed. She is hoping to find helpful information and direction on how to live with this.

Take a look around and then feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Fri Sep 16, 2016 10:49 pm

Friday, September 16

Welcome to

crps2, who recently weaned off opiates and RLS came back with vengeance. Now looking to cope with RLS, CRPS and FBSS as well as possible.

Take a look around to see if you can find anything that helps and then feel free to post a note telling us about yourself and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Sun Sep 18, 2016 2:07 am

Saturday, September 17

Welcome to

Paul, who has been keeping his wife up for years with Periodic Limb Movement

Take a look around and then feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2660
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2016 - New Members

Postby Rustsmith » Mon Sep 19, 2016 5:14 pm

Monday, September 19

Welcome today to

IH8FMS, whose RLS is driving IH8FMS nuts. The only med that that helps (besides Vicodin, which of course if you ask for it you are automatically classified as a druggie) is pramapexole, which costs $80+ for a one-month supply of the generic. This is dreadful for a person with NO insurance! IH8FMS weaned off of it, and now the RLS is back with a vengeance.

Please take a look around and then post a note introducing yourself and asking whatever you think might help.

Also -

dvbphd - who has had RLS symptoms since age 10 and since late 50's symptoms have become more severe, interrupting the ability to sit or lie down at night and interfering with sleep.

Do tell us how you have been coping and we will try to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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