December 2016 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Precise

Postby Rustsmith » Sun Dec 11, 2016 3:32 am

Saturday, December 10

Welcome to

Precise, who has been diagnosed with RLS, but his symptoms are pain which starts a few minutes after he fall asleep. Experts are not sure if this is RLS or perhaps a combination of these factors.

Take a look through the information in this forum under "A good place to start". Since there are no tests for RLS, the information there should give you an idea of whether you think you have RLS or if it could be something else.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to My1hope2

Postby Rustsmith » Sun Dec 11, 2016 6:20 pm

Sunday, December 11

Welcome to

My1hope2, who has inherited DNA markers from both parents believed to be indicative of RLS and also have celiac's disease.

Take a look around to get an idea of what many of us do to treat our RLS and then please post a note telling us a bit about what you do and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome yo fourturn

Postby Rustsmith » Tue Dec 13, 2016 11:50 am

Tuesday, December 13

Welcome to

fourturn, who has taken 3 mirapex 2 hours before inactivity for over 20 years now and it HAS worked. But for some reason it hasn't been working lately. Starting tonite fourturn's dr. has switched to gabapentin 300 mg. Went to bed, now fourturn's up.

Take a look thru some of the posts in our Augmentation forum. Maybe you will get some ideas about your doctor's reasoning and what to expect for the next few weeks as you come off of the mirapex. PLEASE post a note telling us a bit more and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to genxr2012

Postby Rustsmith » Tue Dec 13, 2016 2:47 pm

Tuesday, December 13

Welcome to

genxr2012, who has suffered with RLS for years. In recent years it has worsened. genxr2012 recently found more information about RLS on social media and found a doctor who prescribed Mirapex. Although it has helped some, genxr2012 is anxious to find a more natural treatment.

Take a look through our forum on Non-prescription medicines to get an idea of your options for natural treatments. But please understand that if you have a severe form of the disease, these may not be highly effective. And please post a note with any questions that you have so that we can offer more specific suggestions of things to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 30yrRLSer

Postby Rustsmith » Wed Dec 14, 2016 1:55 am

Tuesday, December 13

Welcome to

30yrRLSer, who has had RLS for over 30 years and is seeking anything to relieve the symptoms and or to help someone else with this disorder.

Please take a look around and then post a note telling us about your 30 yr journey and asking any questions that we might be able to answer to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to joemls

Postby Rustsmith » Wed Dec 14, 2016 2:40 pm

Wednesday, December 14

Welcome to

joemls, who has trouble sleeping and sitting for long times

Those are certainly issues we are all familiar with. Please post a note telling us a bit about your RLS, what you are doing to treat it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jewish8686

Postby Rustsmith » Wed Dec 14, 2016 3:31 pm

Wednesday, December 14

Welcome to

jewish8686, who was diagnosed with RLS a few weeks ago in Boston. After havin had pain at night for years. jewish8686 always thought that it was due to side affects of medications. and is now waiting to see a neurologist.

There are some good specialists in the Boston area, hope you get one of them. Please post a note asking any questions that you have and please keep us updated on how things work out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to khiteco

Postby Rustsmith » Thu Dec 15, 2016 3:20 pm

Thursday, December 15

Welcome to

khiteco, who has been diagnosed with RLS and would like to learn more about it from the community

Take a look through our various discussion forums and the please post a note telling us about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Zinnia

Postby Rustsmith » Fri Dec 16, 2016 11:30 pm

Friday, December 16

Welcome to

Zinnia, who has lived with restless legs for 20 years and is interested to see what others are doing to alleviate the symptoms.

Take a look around and you will see all sorts of treatment plans, prescription drugs, non-prescription supplements and even some physical devices. Feel free to post a note telling us about your treatment plan and asking any questions that we might be able to answer.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Suzielol47

Postby Rustsmith » Sat Dec 17, 2016 1:13 am

Friday, December 16

Welcome to

Suzielol46, who has suffered for years and doesn't know what else to do and her doctor doesn't know what else to try.

There is always something else to try to get your RLS under control. Take a look around for some ideas and please post a note telling us about your treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to M12

Postby Rustsmith » Sat Dec 17, 2016 4:07 pm

Saturday, December 17

Welcome to

M12, whose husband is suffering from RLS and is unable to sleep. He is on lots of meds and nothing is working, but is experiencing side effects.

Take a look around and then please post a note telling us about his treatment so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to PatriciaS

Postby Rustsmith » Sun Dec 18, 2016 11:41 am

Sunday, December 18

Welcome to

PatriciaS, who has had RLS for 5-10 years and has augmentation with Requip, baclofen, and xanax. She started Lyrica about 3 months ago and has had great results. She is 69 now and has MS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Vllorbe

Postby Rustsmith » Mon Dec 19, 2016 2:59 am

Sunday, December 18

Welcome to

Vllorbe, who experiences RLS most of the time while sitting or laying down. She often must get out of bed in the middle of the night to do leg lifts.

Take a look around and you will see that your issues are very common to this group. Please post a note telling us about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcomt to Grammie

Postby Rustsmith » Tue Dec 20, 2016 10:23 am

Tuesday, December 20

Welcome to

Grammie, who paces the floors at all hours of the nite because she can't lay in bed to go to sleep

Please take a look around and post a note telling us about what you do for your RLS other than pace. Also feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to HKJB

Postby Rustsmith » Tue Dec 20, 2016 11:41 am

Tuesday, December 20

Welcome to

HKJB, who has MS and RLS. She can't sleep which is impacting both work and home.

As you probably know, RLS is a frequent complication of MS. Take a look around and feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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