JANUARY 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Location: N. Ireland

JANUARY 2017 - NEW MEMBERS

Postby Polar Bear » Sun Jan 01, 2017 1:55 pm

1 January 2017

Today we welcome our first member of 2017:

CynthiaR - who has suffered from (undiagnosed) RLS on and off for most of her life. It is likely that there is a familial connection. Cynthia has decided now to be proactive in lifestyle changes and is keeping a journal.

Keeping a journal is a great idea, keep a note of all OTC Medications and look out for and negative responses. Please post a thread when you are ready and feel free to ask questions.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
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Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ihve2MoveItMoveIt

Postby Rustsmith » Mon Jan 02, 2017 6:31 pm

Monday, January 2

Welcome to

Ihve2MoveItMoveIt, who has gone onto disability, is 37 and losing friends. RLS is causing constant pain, fatigue and some days it is hard to walk on just sleep 8 hours a week.

We understand what you are going through. Please post a note telling us about what you are doing to treat your RLS so that we can offer some suggestions that can improve your quality of life.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to TJ60

Postby Rustsmith » Tue Jan 03, 2017 2:35 pm

Tuesday, January 3

Welcome to

TJ60, who has been dealing with RLS for well over 25 years

Please take a look around and then feel free to post a note with any questions or comments that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to psfarr

Postby Rustsmith » Wed Jan 04, 2017 3:37 am

Tuesday, January 3

Welcome to

psfarr, whose RLS diminishes my brain processing capacity and negatively affects overall mood and outlook. And all due to being deficient in REM sleep.

Take a look around to get some ideas and then please post a note with any questions that you have so that we can offer some suggestions of things to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to marie459

Postby Rustsmith » Thu Jan 05, 2017 1:08 am

Wednesday, January 4

Welcome to

marie459, who was diagnosed with RLS at 37 and has been on various medications over the last 25 years. She has now been on 1.5 mg clonazepam and 2mg of Mirapex for the last 10 years. The pain in her legs is rare these days, but she has various levels of insomnia caused by the years of sleep deprivation.

Take a look around and then please post a note telling us about yourself. If you have any questions or comments, please let us know.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6810
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Popeye

Postby Polar Bear » Thu Jan 05, 2017 9:28 am

Thursday 5 January

Welcome today to:

Popeye - who has had badly affected sleep quality or lack there of. Found a dr at this website and has symptoms relatively under control for the last 5 years. Popeye says this organization was a God send.

We are delighted you've already found our site to be of benefit and would love to hear your story when you are ready to post.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to philaslin

Postby Rustsmith » Fri Jan 06, 2017 1:51 am

Thursday, January 5

Welcome to

philaslin, whose RLS has affected his ability to sleep, travel and causes fatigue and depression. It is affecting his personal and professional relationships.

Take a look around to get an idea of things that can help and please feel free to post a note with any questions or comments that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to TJB

Postby Rustsmith » Fri Jan 06, 2017 9:02 pm

Friday, January 6

Welcome to

TJB, who has a daily battle to deal with RLS. TJB takes medication 3 to 4 times a day and still has problems. TJB also suffers from hemochromatosis feritin levels have to be kept relatively low, which can also be a problem.

Take a look around and then please post a note telling us about your RLS, your current treatment and ferritin levels so that we can offer you some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to margosherer

Postby Rustsmith » Fri Jan 06, 2017 9:33 pm

Friday, January 6

Welcome to

margosherer, who hase had RLS for 20 years and the symptoms have been increasing.

Increasing severity of RLS with time is not unusual. Please take a look around and then post a note telling us about what you are doing to treat your RLS and asking any questions that we might be able to help you with.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LD1978

Postby Rustsmith » Sat Jan 07, 2017 12:39 am

Friday, January 6

Welcome to

LD1978, who was just diagnosed with RLS by her family doctor and needs to see a specialist for better treatment.

I am really sorry that you had to find us. Please take a look around and then please post a note telling us about what sort of information that we can provide you to assist with locating a qualified specialist.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to nosleepinsomers

Postby Rustsmith » Sun Jan 08, 2017 4:15 am

Saturday, January 7

Welcome to

nosleepinsomers, whose RLS has been getting worse for 50 years. She has already been hospitalized for exhaustion in a state where anti-opiate laws have even made it impossible to be treated even there. If it were not for Kratom...

Take a look around and feel free to post a question or simply jump into one of the discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: JANUARY 2017 - NEW MEMBERS

Postby Rustsmith » Sun Jan 08, 2017 6:01 am

Saturday, January 7

Welcome to

SonriaCat, who has probably always had RLS; SonriaCat's parents thought it was funny and for a long time, so did SonriaCat. But reading the boards here sounds like coming home, and SonriaCat is seriously thinking about talking to a doctor but doctors always notice that SonriaCat's weight and just slap an "obesity related" label on it instead of taking it seriously...

Take a look at the discussion at the top of this thread titled "A good place to start" to get an idea of whether you think you have RLS. And then feel free to post a note asking any questions you have and also so that we can offer suggestions about approaching the proper doctor in order to be taken seriously.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Brendap

Postby Rustsmith » Sun Jan 08, 2017 1:28 pm

Sunday, January 8

Welcome to

Brendap, who says that RLS feels like being the Living Dead and that it is a rude awakening to realize that Hell has a basement, and she is a regular there.

Please take a look around and then post a note telling us about your RLS, what you are doing to treat it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Vbraner

Postby Rustsmith » Sun Jan 08, 2017 7:22 pm

Sunday, January 8

Welcome to

Vbraner, who I has both primary and secondary RLS, due to dialysis. Vbraner is not sleeping more than an hour at a time now and also has issues that require the use of a scooter instead of being able to walk down the street at night.

You will find that although most of us have primary RLS, a number of us have symptoms that are as severe as yours. Please post a note telling us what your doctors are doing to help you and where you are located so that we can offer some suggestions about both treatment and possibly finding a specialist in your area who can help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2556
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Brad

Postby Rustsmith » Mon Jan 09, 2017 12:08 pm

Monday, January 9

Welcome to

Brad, who has had RLS for many years and has been taking medicine daily. He would like to find an alternative.

Take a look through our forums on Non-Prescription Medications and Physical Treatments to see if you can find something to try. And feel free to post a note asking any questions or for other information that we might be able to provide.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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