JANUARY 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to suscurran199

Postby Rustsmith » Mon Jan 09, 2017 12:12 pm

Monday, January 9

Welcome to

suscurran199, who has had RLS for about 15 years and believes it is the cause of losing at least a dozen jobs. It is so extreme that sometimes she is up for days.

Take a look around and then please post a note telling us what you are doing to treat your RLS so that we can provide some specific suggestions of things to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jmedtran

Postby Rustsmith » Mon Jan 09, 2017 11:32 pm

Monday, January 9

Welcome to

jmedtran, who is 68 years old, has severe RLS and has been on oxycodone for many years. jmedtran has started experiencing symptoms much earlier in the day (morning), is desperate for help and so will try acupuncture next.

Take a look through our files, especially the forum on Physical Treatments, where you may find some reports about acupuncture. And then please post a note with any questions that you have so that we can offer some specific comments and suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to astralbee

Postby Rustsmith » Tue Jan 10, 2017 6:25 pm

Tuesday, January 10

Welcome to

astralbee, who has been experiencing RLS for years now and it has gotten worse over the past year. She feels like she is taking every supplement possible, gave up coffee and have switched up diet and still gets it.

After taking a look around, please post a note telling us if you are taking any medication for your RLS and feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ajlombard

Postby Rustsmith » Thu Jan 12, 2017 12:29 am

Wednesday, January 11

Welcome to

ajlombard, who finds that it is difficult to sleep and uncomfortable to sit in the evening with my RLS.

Those are complaints that we can all relate to. Please post a note telling us a bit about what you do to treat your RLS and feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to itsamekatrina

Postby Rustsmith » Thu Jan 12, 2017 8:49 pm

Thursday, January 12

Welcome to

itsamekatrina, whose RLS is disrupted her sleep. She needs help sleeping but cannot find an over counter med that does not intensify the RLS.

Unfortunately, all of the over-the-counter and many of the prescription sleep aids either aggravate RLS or simply do not work for us. Take a look through our files on the use of gabapentin and Lyrica for sleep and also look at medical marijuana if you live in an area where it is legally available. Finally, please post a note telling us more about your RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6657
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to sfrost

Postby Polar Bear » Fri Jan 13, 2017 11:13 am

Friday 13 January

Welcome today to:

sfrost - who has suffered with RLS since the age of 10. It has been a debilitation disorder and sfrost would like to join the conversation on line, including a discussion as to the root causes.

Look around the Just Joined Forum, there is a lot of information. Please feel free to make a post telling us about how you have been coping with RLS. We are here for support and to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Pedma

Postby Rustsmith » Fri Jan 13, 2017 6:28 pm

Friday, January 13

Welcome to

Pedma, whose life revolves around RLS. Pedma needs other sufferers that understand, can give advice and hopes to be able to share.

You have definitely come to the right place to talk with others who understand what you are going through. Please post a note telling us about your RLS, asking any questions that you have and offering any comments you wish to make.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: JANUARY 2017 - NEW MEMBERS

Postby Rustsmith » Sat Jan 14, 2017 3:55 pm

Saturday, January 14

Welcome to

GBoomer, who was diagnosed with RLS a few years ago and, in retrospect, realize that the symptoms were there from Boomer's teenage years on. At 55, RLS is much more disruptive. Boomer also is interested in how to train as an athlete with RLS, since sleep is such an important element of the "recovery" stage of training.

Please take a look around and then post a note telling us about your RLS and your athletic training. I can personally offer some comments since I am also a competitive athlete.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Scottb

Postby Rustsmith » Mon Jan 16, 2017 2:35 am

Sunday, January 15

Welcome to

Scottb, who is tired and not sleeping. Leg movement and twitching are causing life and family issues. He is looking for usable information to help make decisions.

You have come to the right place for info on living with RLS. Take a look around and please post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to maewings

Postby Rustsmith » Mon Jan 16, 2017 9:40 pm

Monday, January 16

Welcome to

maewings, who found us when looking at WEBMD about two scripts that could be harmful if taken together and lead to the Foundation website. BUT, the meds prevent her migraines - so she is currently working on different ways to relieve them.

Take a look around and then please post a note asking for RLS friendly ways to manage your migraines. Several of us have both (including me) and it is possible to manage both.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gmomof7

Postby Rustsmith » Tue Jan 24, 2017 12:27 pm

Tuesday, January 24

Welcome to

Gmomof7, who RLS is severe and so painful that she needs help!!

Take a look around and please post a note telling us what you are doing for your RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to PLMDGirl

Postby Rustsmith » Tue Jan 24, 2017 7:19 pm

Tuesday, January 24

Welcome to

PLMDGirl, who has PLMD and does not want to take Mirapax and Gabapentin. She is interested in any supplements or any alternative treatments that people have had success with.

Take a look through our forums on Physical Treatments and Non-prescription Medications to get an idea of what works, and just importantly, what doesn't work. And feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to restlessinindpls

Postby Rustsmith » Wed Jan 25, 2017 1:27 am

Tuesday, January 24

Welcome to

restlessinindpls, whose husband is suffering severe episodes. She says it's very disturbing and frustrating to be unable to provide much help.

Take a look around for some ideas and please post a note telling us about what he is doing to treat his RLS. Most of us have the severe from of the disease and can offer specific suggestions if we know more.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Holly369

Postby Rustsmith » Fri Jan 27, 2017 12:01 pm

Friday, January 27

Welcome to

Holly369, who is not able to get a good night's sleep because of RLS and is researching possible ways to treat it.

Take a look around and you will find a number of ways to treat your RLS with medications and without. If you will post a note telling us a bit more about yourself and your RLS, we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2404
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ninjalady

Postby Rustsmith » Fri Jan 27, 2017 3:03 pm

Friday, January 27

Welcome to

ninjalady, who has had sleep problems since a young child. She started taking ropinirole about 5 years ago and switched to Mirapex 2 years ago. The medication is making her compulsive and so she is one hundred pounds overweight and 65. The meds are starting make the disorder worse and she really wants off them.

Take a look around, especially in the Augmentation forum. Then please post a note so that we can offer you some specific suggestions. Getting off of Mirapex at this point will be VERY difficult without the help of a doctor familiar with treating augmentation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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