February 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sparklymermaid

Postby Rustsmith » Sat Feb 18, 2017 6:33 pm

Saturday, February 18

Welcome to

Sparklymermaid, who is looking for help and advice and wants to hear about how other people cope

Please post a note telling us about what you do to control your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to alarm

Postby Rustsmith » Mon Feb 20, 2017 5:52 pm

Monday, February 20

Welcome to

alarm, whose RLS is keeping alarm awake at night and whose use of Rx meds is increasing with minimal effect.

If the medications that you are using are a dopamine agonist (pramipexole, ropinirole or rotigatine), then you might find some anwers in the Augmentation forum. And please post a note telling us about yourself and your RLS treatment to date.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Nan0317

Postby Rustsmith » Tue Feb 21, 2017 1:58 am

Monday, February 20

Welcome to

Nan0317, who has experienced RLS after stopping prescription meds (opioids). She cannot believe the pain in her calves, which is constant.

Take a look at the topic "A good place to start" at the top of this forum. There is a series of questions that you should read through to determine whether your issue is RLS or something else associated with stopping the opioid meds. And please post a note giving us some more details so that we might be able to provide some more specific suggestions for your consideration.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Dutch Diva

Postby Rustsmith » Tue Feb 21, 2017 12:45 pm

Tuesday, February 21

Welcome to

Dutch Diva, who lives with chronic sleep deprivation and exhaustion. She is too tired to have a normal life. After doing her own research she found that the physician she has been seeing is not up to date on the available treatments. Hopefully, with the help of a new doctor, she can get her life back.

Congratulations on the decision to find a new doctor who knows how to treat RLS. Please feel free to post a note with any questions that you have so that we can possibly give you some specific suggestions, especially on what you can do to find a new doctor.


Also welcome to:
LisaBB -who has suffered from RLS since little. At over 50 now, it is worse. taking pramexipole and having to up the dosage. Would rather get relief from natural remedies.

Please tell us a little about your rls treatment and we will try to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LisaBB

Postby Rustsmith » Tue Feb 21, 2017 7:23 pm

Tuesday, February 21

Welcome to

LisaBB, who has suffered from RLS since she was little and now at 50+, it is worse. She has been taking pramexipole but has had to up the dosage. She would rather get relief from natural remedies.

Since you have had to increase your dosage of pramipexole, take a look at our forum on Augmentation. For natural remedies, look through the Non-Prescription Meds forum, especially the parts about iron. And then please post a note telling us a bit more about yourself, your RLS treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lindaseib

Postby Rustsmith » Tue Feb 21, 2017 11:18 pm

Tuesday, February 21

Welcome to

lindaseib, who has had RLS for about 60 years, diagnosed for the last 25 or so. After success with pramipexole at a high dose for several years, my insurance company is changing it to a much more expensive option and my symptoms are changing somewhat. At the same time, my PCP who has been handling my case is retiring.

Take a look around and then please post a note introducing yourself and asking any questions that you have so that we can make some suggestions, including how to find a new RLS friendly doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6702
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to annhaller

Postby Polar Bear » Thu Feb 23, 2017 11:08 pm

Thursday 23 February 2017

Welcome today to:

annhaller - who has had significant problems with RLS for many years. Has reached augmentation with meds 2 years ago and has needed to find other ways to treat RLS.

Please read the Section about Augmentation and feel free to ask questions.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dcb

Postby Rustsmith » Fri Feb 24, 2017 6:09 pm

Friday, February 24

Welcome to

dcb, who has suffered from rls for 10 years (at least.). Night time routines are a pain, long car rides are a disaster, and planes are trouble too. dcb also hasn't sat in a desk chair like a normal person in forever.

Take a look around and then please post a note telling us a bit about yourself and what you are doing to manage your RLS
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gale103

Postby Rustsmith » Sat Feb 25, 2017 2:42 pm

Saturday, February 25

Welcome to

Gale103, who has had RLS for over 20 yrs and it has gotten progressively worse. Gale103 tried many medications which work for awhile and then quit working. Gale now dreads when it is coming on because it means being up for the whole night to get through it.

Please post a note telling us what medications you have tried so that we can make some suggestions for your to consider. Experience has shown that there is always something else to try that will be effective.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to clcalkins

Postby Rustsmith » Sat Feb 25, 2017 11:05 pm

Saturday, February 25

Welcome to

clcalkins, who has had restless leg for more than 30 years The symptoms have escalated with onset beginning as early as mid-morning and intensity of symptoms has significantly increased. clcalkins has resisted increasing the dose due to concern of ineffectiveness.

Take a look around, especially at the forum on Augmentation if you are currently taking a dopamine agonist. And feel free to post a note telling us about your current RLS treatment and asking any questions, so that we can provide some specific comments for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Lerachvo

Postby Rustsmith » Sun Feb 26, 2017 4:28 pm

Sunday, February 26

Welcome to

Lerachvo, who was diagnosed with RLS in the Fall of 2014 after a sleep study and has questions about prescription and OTC remedies others have used.

Please post a note telling us about what you have tried and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4370
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Wanderer2`

Postby badnights » Mon Feb 27, 2017 10:20 am

Welcome today to Wanderer2 who found out only by coincidence that opioids can relieve his RLS/WED and let him sleep through the night for the first time in years.

Wanderer2, we're pretty lucky ifthe first doctor we ever ask about our RLS/WED symptoms knows something about it and takes it seriously.

Take some time to post your story here in Just Joined (start a New Topic) , or reply to someone else's post. We hope you will feel part of the community here.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 2458
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bethanwurz

Postby Rustsmith » Mon Feb 27, 2017 3:32 pm

Monday, February 27

Welcome to

bethanwurz, who wants to share her positive treatment for RLS

Please feel free to post a note telling us about your treatment. We are always open to something new.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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