February 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

February 2017 - New Members

Postby Rustsmith » Wed Feb 01, 2017 9:07 pm

Wednesday, February 1

Welcome to

Andy1980, who has had RLS since 1980. It did not get bad until around when he made a career change in 1993. The condition has caused tremendous stress such that he often was forced to leave business meetings or at least stand and rock.

Take a look around to see if you can get some ideas and please post a note telling us about what you are doing to treat your RLS so that maybe we can offer some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lukeflick2 and to enno

Postby Rustsmith » Fri Feb 03, 2017 12:18 pm

Friday, February 2

Welcome to

lukeflick2, who suffers from RLS along with most of his family.

Take a look around and then please post a note telling us about what you and your family do to handle your RLS and asking any questions that you have.


Also Welcome to enno whose sister suffers from RLS.
Please ask any questions that come to mind, your sister is fortunate that you care and want to help her.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Carnation4000

Postby Rustsmith » Sat Feb 04, 2017 12:09 pm

Saturday, February 3

Welcome to

Carnation4000, who has been dealing with RLS for about 15 years and is really tired of it affecting the ability to sleep.

Sleep issues are almost a common to RLS as the need to move. Look around to get an idea of what others do to treat their RLS and then please post a note telling us about what you do. And feel free to ask any questions you have or comment on any of our ongoing conversations.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mmondry04

Postby Rustsmith » Sat Feb 04, 2017 9:48 pm

Saturday, February 3

Welcome to

mmondry04, who has been suffering with RLS for over 30 years and is finding that it is Getting worse with age.

Unfortunately, many of us have also find that our RLS has progressed with time. Please post a note telling us what you are currently doing to treat your RLS so that we can offer some specific suggestions for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to GaryS

Postby Rustsmith » Sat Feb 04, 2017 9:50 pm

Saturday, February 3

Welcome to

GaryS, who started having the RLS creepy crawly feelings a few years ago when trying to fall asleep. It's been mild compared to what he has read about here but he wants to keep up with what's going on with research and hear about what others are doing.

Please feel free to post a note telling us a bit more about yourself and asking any questions that you have. We try to post the latest about RLS research, but also often have some clues about what is currently in the works, so if you are looking for something specific, let us know.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kluck

Postby Rustsmith » Tue Feb 07, 2017 1:43 am

Monday, February 6

Welcome to

Kluck, who was diagnosed with RLS 4 years ago. She was recently learned she is pregnant and has been asked to stop medication. She is very worried about going back to 2-3 hours of sleep a night.

Take a look around, especially in our Special Populations forum, where you will find advice about RLS and pregnancy. And please post a note telling us about what your treatment has been so that we can possibly make some specific suggestions to you so that you can get the rest you are going to need.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to sandy8356

Postby Rustsmith » Wed Feb 08, 2017 1:34 am

Tuesday, February 7

Welcome to

sandy9356, who has had RLS since being a teenager and is now 65. Sandy's neurologist stated today that she would rate Sandy's symptoms in the top 1% of the most severe cases. Sandy has been on almost every medication with some success but eventually augmentation occurred, and so Sandy is investigating the Relaxis Pad.

If you use the search function in the upper right, you should find a few members who are trying the pad. If you post a note with your question you may get a few responses from them to any specific questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6885
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to pobe0501

Postby Polar Bear » Thu Feb 09, 2017 10:01 am

Thursday 9 February 2017

Welcome today to:

pobe0501 - who was being treated for RLS with requip which was very effective. She am currently pregnant and struggling due to the inability to take medication. Looking for help.

Take a look in the Special Populations Forum. It is very difficult whilst pregnant so please ask questions.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tbascokat

Postby Rustsmith » Thu Feb 09, 2017 4:29 pm

Thursday, February 9

Welcome to

Tbascokat, who says RLS is one of the most frustrating issues for the last 20 yrs. Tbascokat also has some experience with things that have greatly helped.

Please post a note in the appropriate forums telling us about what has helped you and feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to SLEEPY ANGEL

Postby Rustsmith » Fri Feb 10, 2017 4:39 pm

Friday, February 10

Welcome to

SLEEPY ANGEL, who lost sleep and didn't know what was going on, for at least 12 years before mentioning it to her Doctor; but he was not informed. Thought she'd lose her mind until recently seing a Neurologist and got Rx help.

That is an all to common experience. Hope the meds are working well. Please post a note telling us about your treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mom

Postby Rustsmith » Sat Feb 11, 2017 2:30 am

Friday, February 10

Welcome to

Mom, who has a loved one with severe RLS and who has not received much help from traditional medicine.

Many of us have had issues with doctors until we found ones who understood RLS and could provide the help we needed. Please take a look at our files to get an idea of what works and doesn't. And then please post a note telling us about the issues that your loved one has experienced so that we can offer some specific suggestions on how to proceed from here.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2659
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Shonda

Postby Rustsmith » Sun Feb 12, 2017 2:54 am

Saturday, February 11

Welcome to

Shonda, who has had restless leg syndrome since she was a kid. It went away for a bit but is back. She has tried magnesium and it has stopped helping.

Take a look around to see if you see anything that might help, and please feel free to post a note telling us about what else you have tried so that we can possibly make some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6885
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Dancingallnight

Postby Polar Bear » Tue Feb 14, 2017 5:42 pm

Tuesday 14 February 2017

Welcome today to

Dancingallnight - who has had rls for as long as can be remembered but surgery has really
fired it up. Also difficult to nap during the day.

Please tell us how you have coped with your symptoms up to the present and how big a change the surgery has made to your symptoms. We'd like to try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 4569
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Kathoderayblue

Postby badnights » Wed Feb 15, 2017 8:57 am

Welcome tonight to Kathoderayblue, who has had RLS/WED since childhood. Kathoderayblue, many of us have gone through a similar progression as you have, the symptoms getting worse over the years until eventually they awaken us at night and prevent a good night's sleep.

Most of us have found ways of dealing with it, which I hope you will learn about as you read posts, ask questions here, and tell us your story. We may use medications, or have adjusted our sleep schedules, or avoid certain foods or situations that seem to trigger the symptoms, or we take iron, or we use tricks to make our bodies forget the symptoms - hot baths, ice baths, deep squats, Chi machines, compression bandages. I for one am much happier with my life for having found this discussion board, and I have learned more about the disease directly or indirectly from this board than from anywhere else. I hope you, too, can find relief from your symptoms and can regain some of the quality of life that you've lost lately. Welcome.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Polar Bear
Moderator
Posts: 6885
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome: Kdoddrn

Postby Polar Bear » Fri Feb 17, 2017 12:31 pm

17 February 2017

Welcome today to:

Kdoddrn - RLS is causing loss of sleep, dreading bedtime & evenings. Kdoddrn says it causs e her to be grumpy, tired, unproductive & inefficient in my daily activities & her job.

All of this is very familiar us. Tell us how you have been managing your sympsoms so far and we will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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