Restless Legs Syndrome (RLS) Discussion Board

Saturday, February 18

Welcome to

Sparklymermaid, who is looking for help and advice and wants to hear about how other people cope

Please post a note telling us about what you do to control your RLS and asking any questions that you have.

Monday, February 20

Welcome to

alarm, whose RLS is keeping alarm awake at night and whose use of Rx meds is increasing with minimal effect.

If the medications that you are using are a dopamine agonist (pramipexole, ropinirole or rotigatine), then you might find some anwers in the Augmentation forum. And please post a note telling us about yourself and your RLS treatment to date.

Monday, February 20

Welcome to

Nan0317, who has experienced RLS after stopping prescription meds (opioids). She cannot believe the pain in her calves, which is constant.

Take a look at the topic "A good place to start" at the top of this forum. There is a series of questions that you should read through to determine whether your issue is RLS or something else associated with stopping the opioid meds. And please post a note giving us some more details so that we might be able to provide some more specific suggestions for your consideration.

Tuesday, February 21

Welcome to

Dutch Diva, who lives with chronic sleep deprivation and exhaustion. She is too tired to have a normal life. After doing her own research she found that the physician she has been seeing is not up to date on the available treatments. Hopefully, with the help of a new doctor, she can get her life back.

Congratulations on the decision to find a new doctor who knows how to treat RLS. Please feel free to post a note with any questions that you have so that we can possibly give you some specific suggestions, especially on what you can do to find a new doctor.


Also welcome to:
LisaBB -who has suffered from RLS since little. At over 50 now, it is worse. taking pramexipole and having to up the dosage. Would rather get relief from natural remedies.

Please tell us a little about your rls treatment and we will try to help.

Tuesday, February 21

Welcome to

LisaBB, who has suffered from RLS since she was little and now at 50+, it is worse. She has been taking pramexipole but has had to up the dosage. She would rather get relief from natural remedies.

Since you have had to increase your dosage of pramipexole, take a look at our forum on Augmentation. For natural remedies, look through the Non-Prescription Meds forum, especially the parts about iron. And then please post a note telling us a bit more about yourself, your RLS treatment and asking any questions that you have.

Tuesday, February 21

Welcome to

lindaseib, who has had RLS for about 60 years, diagnosed for the last 25 or so. After success with pramipexole at a high dose for several years, my insurance company is changing it to a much more expensive option and my symptoms are changing somewhat. At the same time, my PCP who has been handling my case is retiring.

Take a look around and then please post a note introducing yourself and asking any questions that you have so that we can make some suggestions, including how to find a new RLS friendly doctor.

Thursday 23 February 2017

Welcome today to:

annhaller - who has had significant problems with RLS for many years. Has reached augmentation with meds 2 years ago and has needed to find other ways to treat RLS.

Please read the Section about Augmentation and feel free to ask questions.

Friday, February 24

Welcome to

dcb, who has suffered from rls for 10 years (at least.). Night time routines are a pain, long car rides are a disaster, and planes are trouble too. dcb also hasn't sat in a desk chair like a normal person in forever.

Take a look around and then please post a note telling us a bit about yourself and what you are doing to manage your RLS

Saturday, February 25

Welcome to

Gale103, who has had RLS for over 20 yrs and it has gotten progressively worse. Gale103 tried many medications which work for awhile and then quit working. Gale now dreads when it is coming on because it means being up for the whole night to get through it.

Please post a note telling us what medications you have tried so that we can make some suggestions for your to consider. Experience has shown that there is always something else to try that will be effective.

Saturday, February 25

Welcome to

clcalkins, who has had restless leg for more than 30 years The symptoms have escalated with onset beginning as early as mid-morning and intensity of symptoms has significantly increased. clcalkins has resisted increasing the dose due to concern of ineffectiveness.

Take a look around, especially at the forum on Augmentation if you are currently taking a dopamine agonist. And feel free to post a note telling us about your current RLS treatment and asking any questions, so that we can provide some specific comments for you.

Sunday, February 26

Welcome to

Lerachvo, who was diagnosed with RLS in the Fall of 2014 after a sleep study and has questions about prescription and OTC remedies others have used.

Please post a note telling us about what you have tried and asking any questions that you have.

Welcome today to Wanderer2 who found out only by coincidence that opioids can relieve his RLS/WED and let him sleep through the night for the first time in years.

Wanderer2, we're pretty lucky ifthe first doctor we ever ask about our RLS/WED symptoms knows something about it and takes it seriously.

Take some time to post your story here in Just Joined (start a New Topic) , or reply to someone else's post. We hope you will feel part of the community here.

Monday, February 27

Welcome to

bethanwurz, who wants to share her positive treatment for RLS

Please feel free to post a note telling us about your treatment. We are always open to something new.