March 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

March 2017 - New Members

Postby Rustsmith » Thu Mar 02, 2017 5:40 pm

Thursday, March 2

Welcome today to

Libby2, who needs support and news of new treatments. She has RLS in her legs, arms and chest.

Take a look around to get an idea of existing treatments as well as some of the new things being tried. And feel free to post a note with any questions or comments so that we can offer whatever support possible.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6621
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Welcome to Brady

Postby Polar Bear » Fri Mar 03, 2017 4:14 pm

Friday 3 March 2017

Today, welcome to

Brady - whose son has pretty severe RLS and the medications all have affected him negatively.

Your son is very fortunate to have someone to look out for him and to care about how this disease and the medications can be such a trial. Please post and tell us some background information and we will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Thomasr799

Postby Rustsmith » Sat Mar 04, 2017 2:54 pm

Saturday, March 4

Welcome to

Thomasr799, whose wife has RLS and he is trying to help her.

Feel free to look around and then post a note telling us about her current RLS treatment and asking any questions that you have. We would love to be of help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6621
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to mrsbillie

Postby Polar Bear » Sun Mar 05, 2017 9:45 pm

Sunday 5 March 2017

Welcome today to:

mrsbillie - who has had RLS for 20+ years it is getting worse instead of better.

You will find useful information in the Just Joined Forum and when you are ready please post and tell us a little of how you have been managing your symptoms. We are all sufferers and try to help as best we can.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 6621
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Alanm

Postby Polar Bear » Mon Mar 06, 2017 3:36 pm

Monday 6 March 2017

Welcome today to Alanm - who has difficulty in sleeping. Has tried stretching, and some prescription meds. Alanm is interested in finding what has worked for others.

Tell us a little about what medications you have used, including OTC, and any other methods you have tried for relief from RLS Symptoms. We all want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 6621
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to kickinkathy

Postby Polar Bear » Tue Mar 07, 2017 8:31 am

7 March 2017

Welcome today to:

kickinkathy - who likely has had RLS all her life.... She has been taking Requip for 10 years. Her adult son also suffers and she has no doubt there is a genetic component to RLS. kickinkathy also likes to read of others and would like to share her own life long experiences with RLS.

We are glad you have found us. Our Just Joined Forum has a great deal of useful information and we look forward to hearing how you have dealt with your symptoms over the years.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 4296
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Dolphinjean

Postby badnights » Thu Mar 09, 2017 7:33 am

Welcome to Dolphinjean who has been symptom free for 3 months after suffering for 20 years.

Dolphinjean, feel free to browse around and to start a Topic in one of the Forums to tell us about yourself, and the solution that has worked for you! You'll find a lot of friendly and informative people here.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to noni 811

Postby Rustsmith » Fri Mar 10, 2017 1:17 pm

Friday, March 10

Welcome to

noni 811, whose RLS rules her life......She is planning a very long trip by airplane and need advice on how to deal with RLS on the plane so that she doesn't have to walk the aisles or stand in the back of the plane for hours.

Take a look around and them please post a note with some details of your current RLS treatment and your planned travel so that we can offer some specific suggestions to you
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cireng44y

Postby Rustsmith » Fri Mar 10, 2017 5:47 pm

Friday, March 10

Welcome to

cireng44y, who has been a Foundation member since before Nightwalkers. But now has odd new symptoms when drowsy and is hoping for some answers.

Please look around and then post a note telling us a bit more about your sensations as well as something about your current RLS treatment.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ann64

Postby Rustsmith » Sat Mar 11, 2017 2:34 am

Friday, March 10

Welcome to

Ann64, whose RLS is extremely annoying. She cannot rest comfortably to even read a book.

Take a look around to get some ideas of what you can try to help manage your RLS. And please post a note telling us a bit more about yourself and what you are doing to treat your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to annski

Postby Rustsmith » Mon Mar 13, 2017 10:33 am

Monday, March 13

Welcome to

annski, whose RLS has effected life in every way possible, from health to family and job.

Please take a look around and then post a note with any comments or questions. And tell us a bit about your RLS and what you are doing to manage it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ranchgirl

Postby Rustsmith » Mon Mar 13, 2017 4:44 pm

Monday, March 13

Welcome to

ranchgirl, who had minor issues with RLS since early 20s and is now 65. It has become troublesome over the past 5-6 years. Requip helped for a couple of months, then she had to move to oxycodone. Now, even that isn't helping. She lives and works on a ranch. Riding is her life and riding seriously exacerbates the RLS.

Take a look around to see if you can find any ideas that might be worth trying. And feel free to post a note with any question so that we can try to make some suggestions for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2329
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to berriesandjuice

Postby Rustsmith » Tue Mar 14, 2017 11:09 pm

Tuesday, March 14

Welcome to

berriesandjuice, who was just diagnosed and was told she kicks her legs 84 times per hour.

Please look around and then post a note telling us a bit more. From your description, it sounds like you were diagnosed with PLMS. Did they also tell you that you have RLS?
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6621
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Redhawk16

Postby Polar Bear » Wed Mar 15, 2017 5:51 pm

Wednesday 15 March 2017

Welcome today to:

Redhawk16 - who has lost sleep, and has terrible anxiety thinking that this will never go away and will be uncontrollable through medication. Also worries about augmentation.

Please read through the Just Joined Forum and the Augmentation Forum. Both have very useful information. When you feel ready please post and tell us how you have been coping with your symptoms. We are all sufferers and want to help you.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 4296
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Margie

Postby badnights » Thu Mar 16, 2017 6:10 am

Welcome today to Margie, who has had RLS/WED for many years and finds it is getting worse. We're sorry you have to be here, but happy to "meet" you. Please start a Topic to tell us about your RLS/WED woes, or feel free to reply to other posts. If you haven't browsed around much on the board, visit A Good Place to Start in this (Just Joined) forum.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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