APRIL 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Location: N. Ireland

APRIL 2017 - NEW MEMBERS

Postby Polar Bear » Sat Apr 01, 2017 9:17 am

Saturday 1st April 2017

Welcome today to

LordofWellow - who is a 50 year sufferer of this "crippling, insidious" condition.

We are very glad that you have found us. Please tell us how you have coped for all these years. We want to help, and we learn from each other.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
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Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Joycey

Postby Rustsmith » Sat Apr 01, 2017 4:44 pm

Saturday, April 1

Welcome to

Joycey, who suffers from severe RLS when she stops smoking marijuana. I am trying to quit smoking and am looking for ways to relieve the pain caused by RLS.

After you have a chance to look around, feel free to post a note telling us about what you are considering so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Cindi

Postby Rustsmith » Sun Apr 02, 2017 12:23 pm

Sunday, April 2

Welcome to

Cindi, who started getting occasional RLS a few years back. Then all of a sudden as if overnight its occurring every night. Her Dr put her on some drugs which stopped the spasms but the side effects were awful. Then another drug. Even scarier. She can't sleep or work and now dreads nighttime.

Take a look around to get an idea of how others manage and then please post a note telling us what you are doing now and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
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Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to NellyD

Postby Rustsmith » Mon Apr 03, 2017 1:59 pm

Monday, April 3

Welcome to

NellyD, who has suffered with rls a few times but thankfully has not suffered with it on a more permanent long term basis.

Take a look around and then please feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to SUNNYSIDEUP814

Postby Rustsmith » Tue Apr 04, 2017 12:41 am

Monday, April 3

Welcome to

SUNNYSIDEUP814, who has suffered with RLS for 10 years and is now changing medications due to augmentation under the care of a PC and a sleep specialist. She is also on antidepressants.

Take a look around to get an idea of what we have and then please post a note telling us about your new treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to boots

Postby Rustsmith » Tue Apr 04, 2017 12:57 am

Monday, April 3

Welcome to

boots, who has suffered from RLS for 25+ years and recently have found that a diet change has just about eliminated symptoms. boots would like to share this information.

Take a look around, especially at some of the discussions of various types of diets that have been found to be effective. And then please post a note with your comments and any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to connecticutgal

Postby Rustsmith » Tue Apr 04, 2017 7:39 pm

Tuesday, April 4

Welcome to

connecticutgal, who is frustrated with her RLS. She has failed several medications and is currently come off the neupro patch because of side effects. She is back to a larger dose of horizant but nothing seem to work. She has an excellent doctor but doesn't think she fully understands RLS either.

Take a look around to get an idea of some of your treatment options. And then please post a note telling us about your RLS history so that we can offer you some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to amandajo

Postby Rustsmith » Wed Apr 05, 2017 1:19 am

Tuesday, April 4

Welcome to

amanadajo, who has been suffering for most her life and is looking for support from people who understand.

We definitely understand your situation. Please post a note with any comments or questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Videomaster

Postby Rustsmith » Wed Apr 05, 2017 10:17 pm

Wednesday, April 5

Welcome to

Videomaster, who was diagnosed last year.

Take a look around and then please post a note telling us about what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to judeSonoma

Postby Rustsmith » Fri Apr 07, 2017 8:22 pm

Friday, April 7

Welcome to

judeSonoma, who has suffered with RLS for over 20 years and is taking major doses of opiates to control his symptoms, with the result that he is also tired all the time. He hopes to be able to learn from other people if there are alternative ways of managing our RLS.

As you look through our discussions, you will see where many of us now use combinations rather than single meds for our RLS. Please post a note telling us about what you are currently using and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to AmyLeah

Postby Rustsmith » Sat Apr 08, 2017 12:43 pm

Saturday, April 7

Welcome to

AmyLeah, who I hasn't been diagnosed with RLS but all descriptions of symptoms apply.

Please take a look around and then post a note to introduce yourself and ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
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Posts: 14650
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Welcome to Jerry

Postby ViewsAskew » Mon Apr 10, 2017 12:16 am

Hi Jerry - welcome. Since you are having a lot of trouble with gabapentin, my guess is that you are augmenting. Lots of info here about it. Take a look around, read about augmentation, ask questions - we are here to help.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to KristyWages

Postby Rustsmith » Tue Apr 11, 2017 1:52 am

Monday, April 10

Welcome to

KristyWages, who finds her RSL to be a major controlling factor in her life. So much so that she has almost forgotten what a normal life is like.

Hopefully you can find some suggestions here that will be helpful. And please feel free to post a note with any questions or comments that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to NWiz1

Postby Rustsmith » Tue Apr 11, 2017 1:23 pm

Tuesday, April 11

Welcome to

NWiz1, whose RLS began in the late 20s and very slowly worsened. NWiz1recently retired (early) because it came to a point where it was not possible to sit still by 3 p.m.

Look around to see if you can get any new ideas for managing your RLS and then please post a note telling us about what you are currently doing to manage your symptoms.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2463
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jmknee

Postby Rustsmith » Tue Apr 11, 2017 10:49 pm

Tuesday, April 11

Welcome to

Jmknee, whose RLS has affected life by not allowing sleep, rest or do anything sedentary. Jmknee has had lifelong RLS but it worsened about 15 years ago. Jmknee's sleep doctor did prescribe medication but now the RLS has gotten really bad.

Take a look around for info. You might find the forum on Augmentation useful. And please post a note telling us about your current treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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