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Welcome to maremetts
Posted: Wed Apr 12, 2017 2:31 am
by Rustsmith
Tuesday, April 11
Welcome to
maremetts, who due to RLS now has insomnia and hasn't been able to really rest in months.
Welcome to the club since insomnia is part of RLS for almost all of us. Take a look around and then post a note with any questions that you have.
Welcome to JennyB
Posted: Thu Apr 13, 2017 2:22 am
by Rustsmith
Wednesday, April 12
Welcome to
JennyB, who is a little freaked out because today for the first time she felt it while was standing up and thinks it's moving to her arms.
Take a look around and if you are currently taking a dopamine agonist like Mirapex or Requip, look through the Augmentation forum. And then please post a note telling us a bit about what you are doing to manage your RLS and asking any questions that we might be able to help with.
Welcome to dmadis
Posted: Sat Apr 15, 2017 3:44 am
by Rustsmith
Friday, April 14
Welcome to
dmadis, who is the spouse of an RLS victim. She doesn't know how to deal with his moods and attitude. He frequently says " if he had a gun, he would kill himself".
We can certainly try to help you understand since many of us can sympathize with his statement. Please post a note telling us a bit more so that we can try to explain and suggest things that you can do to help.
Welcome d0wn0wn
Posted: Mon Apr 17, 2017 11:12 am
by Polar Bear
Monday 17 April
Welcome today to
d0wnt0wn -whose onset started at the age of 19, and has progressively been getting worse....has had a multitude of tests done. D0wnt0wn feels there are no words for the severity of the pain or how it effects life and would like to connect with others that suffer from the same ailment... could use some moral support.
Members here will fully understand how you are feeling. When you feel ready please post and let us know how you have been coping and treating your symptoms. We are here to support you.
Welcome to cfkid
Posted: Mon Apr 17, 2017 12:09 pm
by Rustsmith
Monday, April 17
Welcome to
cfkid, who has had RLS for quite a while and is struggling with control at this point. He'd like to be able to discuss the issues and symptoms with others that understand my condition.
This is certainly the place to discuss symptoms and issues with managing RLS. Please post a note with any comments or questions that you have.
Welcome to Janine
Posted: Mon Apr 17, 2017 5:52 pm
by Rustsmith
Monday, April 17
Welcome to
Janine, who experienced RLS onset at age 9 and is now middle aged. She has not had a night off of it in 22 1/2 years.
We all know the feeling. Take a look around and then jump into a discussion or start a new one to introduce yourself or ask any questions that you have.
Welcome to Gaely1
Posted: Tue Apr 18, 2017 12:47 am
by Rustsmith
Monday, April 17
Welcome to
Gaely1, who wants to keep current on strides made in RLS & hear what has worked for others since when uncontrolled, it is a nightmare. And the other nightmare is finding something that works is no longer available.
We all totally understand both of these nightmares. Please either jump into any of the current conversations or post a new note asking any questions that you have.
Welcome to judij
Posted: Tue Apr 18, 2017 12:09 pm
by Rustsmith
Tuesday, April 18
Welcome to
judij, who has had a lifelong problem with RLS that has not been solved with various pain medications. I have tried a number of different herbal supplements without success.
Take a look around to get an idea of what others use, and please post a note with any questions that you have.
Welcome to JenniferC
Posted: Tue Apr 18, 2017 12:15 pm
by Rustsmith
Tuesday. April 18
Welcome to
JenniferC, who is joining the group with the hope that she can learn more about RLS. She have been living with Multiple Sclerosis for 23 years. But the RLS has really made her anxious and fearful.
Take a look around to get an idea of what we do. You will find that you are not the only one with co-morbid MS since RLS is often associated with MS. And please post a note telling us what you are doing to try to manage your RLS symptoms so that we can offer some specific suggestions for you to consider.
Welcome to Jvondolen
Posted: Tue Apr 18, 2017 3:49 pm
by Rustsmith
Tuesday, April 18
Welcome to
Jvondolen, who has had RLS for 30 years and requires medication every night in order to sleep. Jvondolen also has daytime symptoms beginning in mid to late afternoon, which vary in intensity and is currently taking low dose hydrocodone and clonazepam
Take a look around to get an idea of how others manage their RLS and then please post a note with any questions or comments that you have.
Welcome to jlcusmar
Posted: Tue Apr 18, 2017 7:41 pm
by Rustsmith
Tuesday, April 18
Welcome to
jlcusmar, whose RLS started in her 20s while pregnant. Taking iron supplements and avoiding fish oil supplements was helpful for a bit but her condition worsens with age (in her 50s now). She tried prescription medication but augmented. She now takes iron, calcium, magnesium, Vitamin D, Vitamin E, B complex, and choline/inositol, but has yet to find the magic, long lasting bullet for her RLS and insomnia issues.
We all know your situation all too well. Take a look around and then feel free to jump into a discussion or to post a new note with any questions or comments that you have.
Welcome to brekorin
Posted: Thu Apr 20, 2017 9:59 am
by badnights
Hi and welcome to our discussion board!
We're looking forward to hearing your story. Please make yourself at home and post replies or start new topics, as you choose. I'm glad you're a fighter and I'd love to hear how you're fighting it!
Welcome to Kyle
Posted: Thu Apr 20, 2017 11:11 pm
by Rustsmith
Thursday, April 20
Welcome to
Kyle, who has had RLS sense he was a kid and the symptoms continue to worsen. And now he is looking for a better way to manage his symptoms.
You will find quite a number of ways to manage your conditions in our discussions, depending upon the severity. Look around and feel free to post a note telling us about yourself, your RLS and asking any questions that you have.
Welcome to timphillips
Posted: Fri Apr 21, 2017 7:58 pm
by Rustsmith
Friday, April 21
Welcome to
timphillips, who has had RLS since he was a teenager and is now 53. He has been taking pramipexole for approximately 12 years and has been 1.5 mg per day at least the past 5 years and now has augmentation. He is looking for help in the process of getting off the drug and finding a new solution.
Take a look through our forum on Augmentation and please post a note with some more specifics, such as how knowledgeable your doctor is with treating augmentation, whether he/she would be willing to accept guidance from you if not, whether he/she would be willing to consider prescribing an opioid to help you get off of the pramipexole and finally, whether there is an RLS Foundation Quality Care Clinic that is within a reasonable distance of you.
welcome Chrisblis
Posted: Sun Apr 23, 2017 6:41 am
by badnights
Hi Chrisblis and welcome to the board. Please post a little about yourself. You will find that medication for WED/RLS can be a double-edged sword - and that, sadly, most doctors don't know any more than the barest basics. You should have your ferritin level tested. Low ferritin is known to be a problem in WED/RLS and has been linked to bad outcomes (worsening of the condition) on dopamine agonist medication (pramipexole/Mirapex, ropinirole/Requip). To use those medications safely, your ferritin levels should be in the high range of what's considered normal for people without WED/RLS (i.e. over 100 ng/ml)