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MAY 2017 - NEW MEMBERS

Posted: Tue May 02, 2017 10:10 pm
by Polar Bear
2nd May 2017

Welcome today to

steve7 - who is recently diagnosed with RLS. It is affecting his quality of life because of the insomnia brought on by it and steve7 is having trouble adjusting and figuring out how to deal with it.

canvas55 - who has just been diagnosed with RLS after having mild to moderate symptoms for 5 years and now severe symptoms (1-2 hrs sleep per night at best). Now started Requip. With little sleep quality of life is bad. canvas55 looks forward to learning about RLS.

Take a look at the this Just Joined Forum - at the top there is information How to Manage RLS/WED.
All of us have been in these horrible positions. Lack of sleep is a big factor. Feel free to post and tell us how you have been managing to deal with your symptoms.

Welcome to roast202

Posted: Mon May 08, 2017 1:05 pm
by Rustsmith
Monday, May 8

Welcome to

roast202, who wants to learn, read what others have to say and to get help.

Please take a look around and then post a note telling us about your RLS and asking any questions that you have.

Welcome - AllyTx

Posted: Tue May 09, 2017 9:15 pm
by Polar Bear
Tuesday 9 May

Welcome to

AllyTx - who has had Rls for years and is being treated with an iron supplement, which helps most of the time. Lately, it's been worse again.

Please make a post and tell us about your symptoms and treatment.

Welcome, Joylyn

Posted: Fri May 12, 2017 8:58 pm
by ViewsAskew
On Friday, we welcome JOYLYN, who experiences many of the negatives the rest of us do - loss of sleep, no movies, no books, etc.

Do tell us more in a new post, JOYLYN. We might be able to offer some suggestions if we know your history.

Welcome Skeeterlou

Posted: Mon May 15, 2017 1:20 am
by badnights
Welcome today to Skeeterlou, whose RLS/WED has worsened to happen in the daytime too. Skeeterlou, feel free to start a new Topic and tell us a bit about yourself, if you take any medications, etc. There is a lot of information here that you might find useful. The Topic in this (Just Joined) forum called "A good place to start" is - well, a good place to start!

Welcome to Schley

Posted: Mon May 15, 2017 12:00 pm
by Rustsmith
Monday, May 15

Welcome to

Schley, who started having symptoms in her early 30s and is now 55. She was having RLS issues every night and day and was up all the time. She has started on Sinemet and would like info on it.

Sinemet is the trade name for carbidopa-levodopa. It is a short acting dopamine agonist that is generally not used for long term treatment RLS because it causes augmentation very quickly. If you search through our forum on Prescription meds, you will find quite a bit about it. And please post a note telling us about your RLS and how you ended up on Sinemet.

Welcome to Willow1948

Posted: Wed May 17, 2017 7:49 am
by badnights
Welcome to Willow1948, whose WED/RLS is affecting every aspect of life.

Please start a Topic to tell us a bit about yourself, and how you are managing the symptoms. Or, just read through some of the topics (try looking at "A good place to start" in this forum). If you have troubles using the board, you can always email us for advice at rlsfmods@rlsgroups.org.

Welcome to BonnieC

Posted: Wed May 17, 2017 12:07 pm
by Rustsmith
Tuesday, May 17

Welcome to

BonnieC, whose RLS is overwhelming and getting worse.

Please take a look around and then post a note telling us a bit about yourself, what you are doing to manage your RLS and asking any questions that you have.

Welcome to Michgander

Posted: Thu May 18, 2017 12:06 pm
by Rustsmith
Thursday, May 18

Welcome to

Michigander, who has had RLS for almost 30 years and is on 4 meds that are not working. Michigander was on one med but augmented.

Please take a look around and then post a note telling us about your 4 meds and asking any questions that you have.

Welcome to susanqn

Posted: Fri May 19, 2017 3:59 pm
by Rustsmith
Friday, May 19

Welcome to

susanqn, who has RS and is looking for ideas to help her get better sleep and ideas to prevent RLS.

Please take a look around and then post a note telling us what you are currently doing to manage your RLS so that we can offer some specific suggestions to you.

Welcome to krblackwell00

Posted: Sun May 21, 2017 11:28 pm
by Rustsmith
Sunday, May 21

Welcome to

krblackwell00, whose RLS has made krblackwell00 absolutely miserable! It has taken so much time and rest away.

Please take a look around and also please post a note telling us what you are doing to manage your RLS so that we can make some suggestions.

Welcome to Sandmira

Posted: Sun May 21, 2017 11:33 pm
by Rustsmith
Sunday, May 21

Welcome to

Sandmira, who has severe nighttime RLS and drugs don't seem to help.

Please post a note telling us a bit about your medication history so that we can make some suggestions. Our experience has been that there is always something that will help, but finding a doctor willing to prescribe some of these meds can sometimes be a significant challenge.

Welcome to Sharona

Posted: Thu May 25, 2017 5:50 pm
by Rustsmith
Thursday, May 25

Welcome to

Sharona, who has been suffering with RLS for 20 + years and would love to hear from "real" people with the same problem. Hopefully to get relief from this nightly problem.

Welcome to the group. Please post a note telling us about your current treatments so that we can offer you some specific suggestions.

Welcome to Kiwinan

Posted: Fri May 26, 2017 10:18 am
by Rustsmith
Friday, May 26

Welcome to

Kiwinan, who has lived with RLS for approx: 10 years. The hardest time is during the night. She is interested in the way diet affects the condition.

Take a look around, especially in the forum on Non-Prescription meds and Diet. And please post a note telling us about how you are managing your RLS these days and asking any questions that you have.

Welcome to Petesmusic

Posted: Fri May 26, 2017 10:24 am
by Rustsmith
Friday, May 26

Welcome to

Petesmusic, he has had PD for 16 years and about 5 years with RLS. He tried all sorts of potions and lotions bars of soap, nothing worked bit until he stumbled on a method to calm the legs so he could sleep at night. He would like to get more people with to try his method and let him know how it works.