June 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

June 2017 - New Members

Postby Rustsmith » Sat Jun 03, 2017 2:24 am

Friday, June 2

Welcome to

larkburg, whose RLS has made any normal schedule unlikely. It steals sleep and energy and creates long nights of misery (both with the constant need to move and, increasingly, with more intense pain).

Take a look around and then please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ChrisL

Postby Rustsmith » Sat Jun 03, 2017 12:00 pm

Saturday, June 3

Welcome to

ChrisL, who has suffered from RLS for over 50 years and in the last 10 years it has become chronic. Treatments have caused narcolepsy, often falling asleep in front of the computer. It starts almost every evening at about 9pm and can last up to 2 hours and often occurs between 4-5am too.

Take a look around and then post a note telling us what you are doing to manage it now and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Wecome to Longhill

Postby Rustsmith » Sat Jun 03, 2017 8:12 pm

Saturday, June 3

Welcome to

Longhill, who has mild to moderate rls and believes it was triggered from using Paxil for many years. She has been off Paxil since October and is taking Requip at night.

Take a look around and then please post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LadySue76

Postby Rustsmith » Sun Jun 04, 2017 12:06 pm

Sunday, June 4

Welcome to

LadySue76, who is 41 and has had RLS since age 6! Since 2014 when she was diagnosed with cancer (and beaten) it's just gotten worse.

Please take a look around and then post a note telling us about how you are currently managing your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kleinkjk36

Postby Rustsmith » Tue Jun 06, 2017 10:17 pm

Tuesday, June 6

Welcome to

Kleinkjk36, who lives every day with the fear that plans for the day will evaporate due to lack of sleep. She often spends 10 hours in bed to get 2-3 hours of real sleep and the few occasions when she does sleep are a very precious gift.

This is a situation that we can all relate to. Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to rlssufferer546

Postby Rustsmith » Wed Jun 07, 2017 2:54 pm

Wednesday, June 7

Welcome to

rlssufferer546, who has had RLS since around 1991 and it has become steadily worse since then, intertwining with MS, which was diagnosed in 2001.

Please take a look around and then post a note telling us what you are currently doing to manage your RLS. And please ask any questions that you have so that we might be able to provide you with some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Lawrence

Postby Rustsmith » Fri Jun 09, 2017 12:05 pm

Friday, June 9

Welcome to

Lawrence, who also has sleep apnea and experiences severe pain in his legs night and day.

Please take a look around and then post a note telling us a bit about your RLS diagnosis and what you are doing to manage it so that we can offer you some specific suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dantebobo

Postby Rustsmith » Sat Jun 10, 2017 12:36 am

Friday, June 9

Welcome to

dantebobo, who lately is very exhausted from being up every night with the creepy crawlies. And so looks forward to learning from you all and maybe sharing something useful, too.

Please take a look around and then post a note telling us about what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6623
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to sueanncroft1

Postby Polar Bear » Sat Jun 10, 2017 5:14 pm

10 June 2017

Welcome today to:

sueanncroft1 - who has suffered from RLS since late teens. She says she is one of the lucky ones as she only has her RLS at night.

You will find lots of information in the Just Joined Forum, knowledge is power when it comes to treating RLS symptoms. Please feel free to make a post and tell us how you deal with your symptoms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jwp5506

Postby Rustsmith » Sat Jun 10, 2017 11:11 pm

Saturday, June 10

Welcome to

jwp5506, whose RLS has gotten really bad in the last year. jwp5506 is not sleeping and it is really taking a toll.

Please take a look around, especially the first part of the Just Joined forum. And then please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Chelsanna

Postby Rustsmith » Sun Jun 11, 2017 6:54 pm

Sunday, June 11

Welcome to

Chelsanna, whose RLS just seems to be getting worse and so any advice is appreciated.

Please post a note telling us a bit about your RLS, what you are currently doing to manage it and asking any questions you have so that we can provide the advice that you seek.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Beckyh

Postby Rustsmith » Mon Jun 12, 2017 12:45 pm

Monday, June 12

Welcome to

Beckyh, who had occasional, mild past RLS worsened rapidly after surgery. 900mg Gabapentin is working to stop the irritating midnight sensations in her hips and upper legs. She wonders if she has nerve damage from stopping Tramadol too quickly (cold turkey) 2 months after the surgery??

Please post a note with some of the details of how you stopped the Tramadol so that we can offer some specific comments for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Rb76

Postby Rustsmith » Tue Jun 13, 2017 10:50 pm

Tuesday, June 13

Welcome to

Rb76, whose RLS driving her nuts and needs to see if others are experiencing the same. She feels all that is happening is that she is being offered more drugs !!

Please post a note telling us about your symptoms, what you are currently doing to manage your RLS and what you are being offered. Feel free to ask any other questions about RLS that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Grateful to God

Postby Rustsmith » Wed Jun 14, 2017 12:25 pm

Wednesday, June 14

Welcome to

Grateful to God, who has had RLS for at least 10 years and her medication no longer works, She has extreme sleep deprivation due to RLS and leg cramps. She had a total knee replacement surgery done over 8 months ago and it has not healed due to nightly severe leg cramps damaging muscles as well as the RLS blocking her sleep.

Take a look around, especially the forum on Augmentation. And then please post a note with specifics of what you are currently doing to manage your RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2337
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to troopie3200

Postby Rustsmith » Thu Jun 15, 2017 1:03 pm

Thursday, June 15

Welcome to

troopie3200, who needs a place to get info from others about RLS due to not sleeping at night.

You have come to the right place for info. Please post a note telling us about your symptoms, what you are currently doing to manage them and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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