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Welcome to unassuming

Posted: Thu Jun 15, 2017 1:07 pm
by Rustsmith
Thursday, June 15

Welcome to

unassuming, who has had RLS for many years. It is not debilitating, but was a nightly occurrence years ago. unassuming still has attacks although more random now. unassuming hasn't researched the condition in years and would like to know of any advances in its treatment.

Take a look around to get an idea of what has been done. There is a discussion at the top of General Topics that might be helpful. And then please post a note with any further questions that you have.

Welcome to Robyn

Posted: Sat Jun 17, 2017 12:40 am
by Rustsmith
Friday, June 16

Welcome to

Robyn, who has had RLS 30+ years.

Please take a look around and then post a note with any questions that you have.

Welcome to hjwiest

Posted: Sat Jun 17, 2017 11:55 am
by Rustsmith
Saturday, June 17

Welcome to

hjweist, who has lived with the miséry and unpredictability of RLS for 40 years.

Please take a look around and then post a note telling us about what you are currently doing to manage your RLS and asking any questions that remain.

Welcome to Gary CRT

Posted: Sat Jun 17, 2017 10:49 pm
by Rustsmith
Saturday, June 17

Welcome to

Gary CRT, who is on the Steering Committee of a support group. He has very minimal symptoms and requires no medical treatment

Welcome to the discussion board, the virtual RLS support group. Take a look around and let us know what we can do to help.

Welcome to Lucy J

Posted: Sun Jun 18, 2017 12:10 am
by Rustsmith
Saturday, June 17

Welcome to

Lucy J, whose RLS had made life a living hell. Scheduling activities is near impossible as she never knows how she will feel.

After you have had a chance to look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.

Welcome to Jdodsont

Posted: Mon Jun 19, 2017 2:03 am
by Rustsmith
Sunday, June 18

Welcome to

Jdodsont, who can't rest read books, watch movies or concentrate due to the pain. Jdodsont has been taking mirapex for 25 years and tried to cut down only to be wakened by a vibration in Jdodsont's feet like an electrical malfunction and sometimes it's in my arms too.

Please take a look through the section on Augmentation since after 25 yrs of Mirapex, your symptoms sound pretty classic. And then please post a note telling us about how much you are taking and something about your relationship with your doctor. And feel free to ask any questions that you have. Most of us have been exactly where you are - and there is hope, no cure, but things can get better.

Welcome to My Lad

Posted: Tue Jun 20, 2017 2:03 am
by Rustsmith
Monday, June 19

Welcome to

My Lad, who has an extremely severe case which began in the late 40s and it is in the whole body. My Lad is now 71. My Lad's mother and son also have it.

You are in good company here as that description describes many of us. Please post a note telling us what you are currently doing to manage your RLS and feel free to ask any questions that you have.

Welcome to dliang

Posted: Tue Jun 20, 2017 7:19 am
by badnights
Dliang, who joined us today, has been having trouble concentrating during the day because of the effects of RLS/WED on sleep.

dliang, you're not alone with that problem. The biggest issue we WED/RLS patients face is getting enough sleep. If you would like, you can start a new Topic in one of the Forums and tell us a bit more about yourself. Are you taking any medications? How long have you had RLS/WED? etc. Or you can make a comment (post a reply) in any Topic. We look forward to chatting with you.

Welcome to Tommybeams

Posted: Tue Jun 20, 2017 5:13 pm
by Rustsmith
Tuesday, June 20

Welcome to

Tommybeams, for whom RLS has been a constant nighttime companion for several decades. He has tried numerous prescription and non-prescription treatments with mostly temporary or sporadic success.

After you have a chance to look around, please post a note telling us about what treatments you have tried, what you are currently doing and asking any questions that you have.

Welcome to Soleya_12

Posted: Tue Jun 20, 2017 6:35 pm
by Rustsmith
Tuesday, June 20

Welcome to

Soleya_12, who has RLS and is therefore interested in how to deal with it.

Please take a look around, especially at the discussion thread "A good place to start" at the top of this forum. And then please post a note telling us a bit about yourself, your symptoms and what you are doing to manage them. And please feel free to ask any questions that you have, that is why we are here.

Welcome to Bensenten

Posted: Tue Jun 20, 2017 10:48 pm
by Rustsmith
Tuesday, June 20

Welcome to

Bensenten, who is looking for solutions that have worked for others.

Take a look around to get an idea of what others are doing and then please post a note telling us a bit of what you are currently doing to manage your own RLS.

Welcome to suzanochka

Posted: Tue Jun 20, 2017 11:00 pm
by Rustsmith
Tuesday, June 20

Welcome to

suzanochka, who is interested in providing information on her experience that will help RLS research.

Please take a look around and then post a note telling us a bit about yourself and the experience that you think would help RLS research.

Welcome to EwashH and Walley

Posted: Wed Jun 21, 2017 8:58 am
by Polar Bear
Wednesday 21 June

Welcme today to:

EwashH - who has been noticing more intense and frequent symptoms of Restless Legs Syndrome and I would appreciate to hear other people's stories, suggestions, and advice.

Walley - who is in top physical condition. No physical problems except for crazy making RLS. Takes half an Ambien to aid sleep at night. No other meds and does not need sleeping aid, but for the RLS. Any info would be greatly appreciated.

You will both find lots of advice in the Just Joined Forum. When you are ready feel free to post about your symptoms and treatment, we are here to try and help.

Welcome to PaulaB

Posted: Thu Jun 22, 2017 3:08 pm
by Rustsmith
Thursday, June 22

Welcome to

PaulaB, who suffers from RLS and Wwuld like all the info she can get!

Start with the thread "A good place to start" at the top of the Just Joined forum and then take a look through items such as "Published Research" in the General WED forum. And please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.